Interpersonal relationships after prenatal diagnosis of congenital heart disease: Social stressors and supports

被引：0

作者：

Marshall, Emily ^{[1
,2
]}

Gramszlo, Colette ^{[1
]}

Perez Ramirez, Alejandra ^{[3
]}

Kazak, Anne E. ^{[2
,3
]}

Shillingford, Amanda J. ^{[4
]}

Ortinau, Cynthia M. ^{[5
]}

Kelly, Sarah L. ^{[6
,7
]}

Kasparian, Nadine ^{[8
,9
,10
]}

Edwards, Lindsay A. ^{[11
,17
]}

Divanovic, Allison A. ^{[10
,12
]}

Davis, Jo Ann ^{[13
]}

Butler, Samantha C. ^{[14
]}

Braley, Katherine ^{[15
]}

Riegel, Erin ^{[16
]}

Sood, Erica ^{[1
,2
,3
]}

机构：

[1] Nemours Childrens Hosp Delaware, Nemours Cardiac Ctr, Wilmington, DE 19803 USA

[2] Thomas Jefferson Univ, Sidney Kimmel Med Coll, Philadelphia, PA 19107 USA

[3] Nemours Childrens Hosp Delaware, Nemours Ctr Healthcare Delivery Sci, Wilmington, DE USA

[4] Childrens Hosp Philadelphia, Cardiac Ctr, Philadelphia, PA USA

[5] Washington Univ, Dept Pediat, St Louis, MO USA

[6] Univ Colorado, Sch Med, Dept Pediat, Aurora, CO USA

[7] Univ Colorado, Sch Med, Dept Psychiat, Aurora, CO USA

[8] Cincinnati Childrens Hosp Med Ctr, Heart & Mind Wellbeing Ctr, Heart Inst, Cincinnati, OH USA

[9] Cincinnati Childrens Hosp Med Ctr, Div Behav Med & Clin Psychol, Cincinnati, OH USA

[10] Univ Cincinnati, Coll Med, Dept Pediat, Cincinnati, OH USA

[11] Seattle Childrens Hosp, Seattle, WA USA

[12] Cincinnati Childrens Hosp Med Ctr, Heart Inst, Cincinnati, OH USA

[13] Nationwide Childrens Hosp, Dept Pediat, Columbus, OH USA

[14] Harvard Med Sch, Boston Childrens Hosp, Dept Psychiat & Behav Sci, Boston, MA USA

[15] Nemours Childrens Hosp Florida, Nemours Cardiac Ctr, Orlando, FL USA

[16] Parent Res Partner, Wilmington, DE USA

[17] Duke Univ, Med Ctr, Durham, NC USA

来源：

JOURNAL OF PERINATOLOGY | 2025年

基金：

美国医疗保健研究与质量局;

关键词：

PERSON-CENTERED CARE; PREVALENCE; CHILDREN; PARENTS; HEALTH;

D O I：

10.1038/s41372-025-02250-z

中图分类号：

R71 [妇产科学];

学科分类号：

100211 ;

摘要：

ObjectiveTo identify social stressors and supports for expectant parents after prenatal diagnosis of congenital heart disease (CHD) and inform interventions to reduce distress.MethodParents of children diagnosed prenatally with CHD (N = 37) were purposively sampled across eight health systems. Qualitative data were collected using crowdsourcing methods and coded/analyzed using thematic analysis.ResultsSocial stressors increasing distress after prenatal diagnosis were widely endorsed: (1) feelings of loneliness (most common: 68%), (2) well-meaning yet unhelpful comments, (3) loss of celebration of pregnancy, (4) information overload, and (5) untimely/insensitive discussions surrounding pregnancy termination. Social supports included: (1) emotional support and small acts of kindness, (2) hope/connection through the experiences of others, (3) informational support, (4) nurturing normalcy and the joy of pregnancy, and (5) connection through religion/spirituality.ConclusionInterpersonal relationships are vital for coping with prenatal diagnosis. Interventions to reduce distress after prenatal diagnosis should attend to common social stressors.

引用

页数：7

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