Systematic review of the needs and health-related quality of life domains relevant to people surviving cancer in Europe

被引：1

作者：

Amat-Fernandez, Clara ^{[1
,2
,3
]}

Garin, Olatz ^{[1
,2
,3
,23
]}

Luer-Aguila, Ricardo ^{[1
]}

Pardo, Yolanda ^{[1
,2
,4
]}

Briseno, Renata ^{[1
]}

Lizano-Barrantes, Catalina ^{[1
,5
]}

Rojas-Concha, Leslye ^{[6
]}

Thong, Melissa S. Y. ^{[7
]}

Apolone, Giovanni ^{[8
,24
]}

Brunelli, Cinzia ^{[8
]}

Caraceni, Augusto ^{[9
]}

Couespel, Norbert ^{[10
]}

Bos, Nanne ^{[11
]}

Groenvold, Mogens ^{[12
,13
]}

Kaasa, Stein ^{[14
]}

Ciliberto, Gennaro ^{[15
]}

Lombardo, Claudio ^{[16
]}

Pietrobon, Ricardo ^{[17
]}

Pravettoni, Gabriella ^{[18
]}

Sirven, Aude ^{[19
]}

Vachon, Hugo ^{[20
]}

Gilbert, Alexandra ^{[21
,22
]}

Velikova, Galina ^{[21
,22
]}

Ferrer, Montse ^{[1
,2
,3
,23
]}

机构：

[1] Hosp del Mar Res Inst, Hlth Serv Res Grp, Barcelona, Spain

[2] CIBER Epidemiol & Salud Publ CIBERESP, Madrid, Spain

[3] Univ Pompeu Fabra, Dept Med & Life Sci, Barcelona, Spain

[4] Univ Autonoma Barcelona, Dept Psychiat & Legal Med, Barcelona, Spain

[5] Univ Costa Rica, Fac Pharm, Dept Pharmaceut Care & Clin Pharm, San Jose, Costa Rica

[6] Univ Copenhagen, Copenhagen Univ Hosp Bispebjerg & Frederiksberg, Dept Geriatr & Palliat Med GP, Palliat Care Res Unit, Copenhagen, Denmark

[7] German Canc Res Ctr, Div Clin Epidemiol & Aging Res, Unit Canc Survivorship, Heidelberg, Germany

[8] Fdn IRCCS Ist Nazl Tumori Milano, Sci Directorate, Milan, Italy

[9] Univ Milan, Dipartimento Sci Clin & Comun, Dipartimento Eccellenza 2023 2027, Milan, Italy

[10] European Canc Org ECO, Brussels, Belgium

[11] Netherlands Inst Hlth Serv Res NIVEL, Utrecht, Netherlands

[12] Univ Copenhagen, Dept Publ Hlth, Copenhagen, Denmark

[13] Univ Copenhagen, Bispebjerg Frederiksberg Hosp, Copenhagen, Denmark

[14] Oslo Univ Sykehus HF, Oslo, Norway

[15] IRCCS Natl Canc Inst Regina Elena Rome, Rome, Italy

[16] Org European Canc Inst, Brussels, Belgium

[17] SporeData OU, Tallinn, Estonia

[18] IRCCS, Ist Europeo Oncol, Milan, Italy

[19] UNICANCER, Paris, France

[20] European Org Res Treatment Canc, Brussels, Belgium

[21] Univ Leeds, Leeds Inst Med Res St Jamess, Leeds, England

[22] Leeds Teaching Hosp NHS Trust, Leeds, England

[23] Hosp del Mar Res Inst, Hlth Serv Res Grp, Barcelona Biomed Res Pk,Off 144,88 Doctor Aiguader, Barcelona 08003, Spain

[24] Org European Canc Inst, Brussels, Belgium

来源：

QUALITY OF LIFE RESEARCH | 2025年 / 34卷 / 04期

关键词：

Quality of life; Cancer survivors; Systematic review; Qualitative research; SUPPORTIVE CARE NEEDS; COLORECTAL-CANCER; EVERYDAY LIFE; PROSTATE-CANCER; EXPERIENCES; EXPLORATION; MEN; SURVIVORSHIP; IMPACT;

D O I：

10.1007/s11136-024-03884-w

中图分类号：

R19 [保健组织与事业（卫生事业管理）];

学科分类号：

摘要：

PurposeTo systematically review qualitative studies on outcomes, needs, experiences, preferences, concerns and health-related quality of life (HRQoL) of people surviving cancer in Europe in the last decade.MethodsProtocol registered (https://www.crd.york.ac.uk/PROSPERO, ID575065). Inclusion criteria: studies with qualitative methods, constructs related to HRQoL, and adults surviving cancer in Europe. The search was conducted in PubMed and Scopus since 2013. Abstracts and full text were revised, data extracted and study risk of bias assessed independently by two researchers. The primary outcomes were the themes arising from each study. A thematic analysis stratified according to the study objective was undertaken by grouping themes into categories.ResultsOf 18,256 articles identified, 43 fulfilled the inclusion criteria: 16 studies with a generic objective and 27 with specific objectives. Seven categories (57 themes) emerged from the studies with a generic focus: Clinical Management (n = 16), Symptoms and Physical Function (n = 5), Psychological Function (n = 21), Social Function (n = 18), HRQoL (n = 3), Life Disruption (n = 6), and Individual Factors (n = 1). The 12 studies focused on treatment and care experiences stand out among those with specific objectives, with most themes fitting into the same seven categories.ConclusionsResults clearly showed the predominance of the social and psychological function domains over physical domains among people surviving cancer, additionally identifying specific needs in clinical management, such as information and communication, and relationship with and support from professionals. Therefore, these aspects should be incorporated into the evaluation of patient-centred initiatives for people surviving cancer. Limitations: only two databases were searched, and most European countries were not represented.

引用

页码：913 / 936

页数：24

共 89 条

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