Who is your ideal peer mentor? A qualitative study to identify cancer patient preferences for a digital peer support app

被引:0
作者
Knaapen, Loes [1 ]
Laizner, Andrea Maria [1 ,2 ]
Agnew, Kelly [1 ]
Du, Xiao Jian [3 ]
El Abiad, Douaa [1 ]
Galarneau, Luc [1 ]
Judd, Susie [1 ]
Manalad, James [4 ]
Mittal, Ridhi [1 ]
Williams, Tristan [1 ]
Woolfson, Brandon [3 ]
Wen, Angele [1 ]
Kildea, John [1 ,3 ,4 ]
机构
[1] McGill Univ Hlth Ctr, Canc Res Program, Opal Hlth Informat Grp, Res Inst, Montreal, PQ, Canada
[2] McGill Univ, Ingram Sch Nursing, Montreal, PQ, Canada
[3] McGill Univ, Gerald Bronfman Dept Oncol, Montreal, PQ, Canada
[4] McGill Univ, Med Phys Unit, Montreal, PQ, Canada
基金
加拿大自然科学与工程研究理事会;
关键词
Peer support; Peer matching; Cancer; Mentor; Semi-structured interviews; BREAST-CANCER; PROGRAM; EXPERIENCE; LEADERS; NEEDS; WOMEN;
D O I
10.1007/s00520-025-09262-7
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
PurposePeer support can provide many benefits to cancer patients. However, sustained use of one-on-one peer support requires a good match between patient and peer mentor. Using an artificial intelligence (AI) matching algorithm has the potential to improve peer matching by achieving complex, preference-based matching. Therefore, using stakeholder co-design, this study identified patient preferences for peer matching criteria and other features of OpalBuddy, a digital peer support service to be developed within the Opal patient portal.MethodsPatients using the Opal app were recruited, and semi-structured individual interviews were carried out with eight available women cancer patients. Qualitative data analysis followed an iterative and collaborative thematic analysis approach, using computer-assisted software (NVivo).ResultsThree themes, with supporting sub-themes, that describe patient preferences for matching with an ideal peer mentor were identified:Theme 1. An ideal mentor can provide support at multiple levels, with sub-themes describing the levels: (A) Sharing illness experiences, (B) Practical information support, (C) Emotional support, (D) Social management coaching.Theme 2. The ideal mentor has similar lived experience, with sub-themes describing the type of lived experience: (A) Similar clinical situation, (B) Similar socio-demographics, (C) Interpersonal affinity.Theme 3. The ideal peer mentor will be supported in their role, with sub-themes describing support options: (A) Formal or informal training, (B) General guidance, (C) Supportive supervision.Finally, based on different support needs (practical vs emotional), it was found that patients had varying, even opposing, expectations from a mentor's interpersonal communication style (solution focused vs good listener).ResultsThree themes, with supporting sub-themes, that describe patient preferences for matching with an ideal peer mentor were identified:Theme 1. An ideal mentor can provide support at multiple levels, with sub-themes describing the levels: (A) Sharing illness experiences, (B) Practical information support, (C) Emotional support, (D) Social management coaching.Theme 2. The ideal mentor has similar lived experience, with sub-themes describing the type of lived experience: (A) Similar clinical situation, (B) Similar socio-demographics, (C) Interpersonal affinity.Theme 3. The ideal peer mentor will be supported in their role, with sub-themes describing support options: (A) Formal or informal training, (B) General guidance, (C) Supportive supervision.Finally, based on different support needs (practical vs emotional), it was found that patients had varying, even opposing, expectations from a mentor's interpersonal communication style (solution focused vs good listener).ResultsThree themes, with supporting sub-themes, that describe patient preferences for matching with an ideal peer mentor were identified:Theme 1. An ideal mentor can provide support at multiple levels, with sub-themes describing the levels: (A) Sharing illness experiences, (B) Practical information support, (C) Emotional support, (D) Social management coaching.Theme 2. The ideal mentor has similar lived experience, with sub-themes describing the type of lived experience: (A) Similar clinical situation, (B) Similar socio-demographics, (C) Interpersonal affinity.Theme 3. The ideal peer mentor will be supported in their role, with sub-themes describing support options: (A) Formal or informal training, (B) General guidance, (C) Supportive supervision. Finally, based on different support needs (practical vs emotional), it was found that patients had varying, even opposing, expectations from a mentor's interpersonal communication style (solution focused vs good listener).ResultsThree themes, with supporting sub-themes, that describe patient preferences for matching with an ideal peer mentor were identified:Theme 1. An ideal mentor can provide support at multiple levels, with sub-themes describing the levels: (A) Sharing illness experiences, (B) Practical information support, (C) Emotional support, (D) Social management coaching.Theme 2. The ideal mentor has similar lived experience, with sub-themes describing the type of lived experience: (A) Similar clinical situation, (B) Similar socio-demographics, (C) Interpersonal affinity.Theme 3. The ideal peer mentor will be supported in their role, with sub-themes describing support options: (A) Formal or informal training, (B) General guidance, (C) Supportive supervision.Finally, based on different support needs (practical vs emotional), it was found that patients had varying, even opposing, expectations from a mentor's interpersonal communication style (solution focused vs good listener).ResultsThree themes, with supporting sub-themes, that describe patient preferences for matching with an ideal peer mentor were identified:Theme 1. An ideal mentor can provide support at multiple levels, with sub-themes describing the levels: (A) Sharing illness experiences, (B) Practical information support, (C) Emotional support, (D) Social management coaching.Theme 2. The ideal mentor has similar lived experience, with sub-themes describing the type of lived experience: (A) Similar clinical situation, (B) Similar socio-demographics, (C) Interpersonal affinity.Theme 3. The ideal peer mentor will be supported in their role, with sub-themes describing support options: (A) Formal or informal training, (B) General guidance, (C) Supportive supervision.Finally, based on different support needs (practical vs emotional), it was found that patients had varying, even opposing, expectations from a mentor's interpersonal communication style (solution focused vs good listener).ConclusionPatient preferences for an ideal peer mentor were identified through semi-structured interviews with a sample of eight women with a diverse set of cancers. Findings will be used to guide further work, including a similar study with men and a pilot study of a digital patient matching service for peer support in the open-source Opal patient portal.
引用
收藏
页数:11
相关论文
共 27 条
  • [21] What do patients with a rare cancer living in rural, regional or remote areas and stakeholders want from a peer support program? A qualitative study
    Hemming, L.
    Duijts, S. F. A.
    Cockburn, C.
    Wilson, C.
    Yuen, E. Y. N.
    Spelten, E.
    BMC CANCER, 2025, 25 (01)
  • [22] Young Adults' Perceptions of 2 Publicly Available Digital Resources for Self-injury: Qualitative Study of a Peer Support App and Web-Based Factsheets
    Kruzan, Kaylee Payne
    Whitlock, Janis
    Chapman, Julia
    Bhandari, Aparajita
    Bazarova, Natalya
    JMIR FORMATIVE RESEARCH, 2023, 7
  • [23] Experiences of Patient-Led Chronic Pain Peer Support Groups After Pain Management Programs: A Qualitative Study
    Farr, Michelle
    Brant, Heather
    Patel, Rita
    Linton, Myles-Jay
    Ambler, Nicholas
    Vyas, Sareeta
    Wedge, Hannah
    Watkins, Sue
    Horwood, Jeremy
    PAIN MEDICINE, 2021, 22 (12) : 2884 - 2895
  • [24] An Online Resource of Digital Stories About Cancer Genetics: Qualitative Study of Patient Preferences and Information Needs
    Iredale, Rachel
    Mundy, Lisa
    Hilgart, Jennifer
    JOURNAL OF MEDICAL INTERNET RESEARCH, 2011, 13 (03) : e78
  • [25] The experience of family caregivers of ventilator-assisted individuals who participated in a pilot web-based peer support program: A qualitative study
    Wasilewski, Marina B.
    Kokorelias, Kristina M.
    Nonoyama, Mika
    Dale, Craig
    McKim, Douglas A.
    Road, Jeremy
    Leasa, David
    Tandon, Anu
    Goldstein, Roger
    Rose, Louise
    DIGITAL HEALTH, 2022, 8
  • [26] The impact of peer support on testing, linkage to and engagement in HIV care for people who inject drugs in Indonesia: qualitative perspectives from a community-led study
    Arif Rachman Iryawan
    Claudia Stoicescu
    Faisyal Sjahrial
    Kuntanto Nio
    Alexa Dominich
    Harm Reduction Journal, 19
  • [27] The impact of peer support on testing, linkage to and engagement in HIV care for people who inject drugs in Indonesia: qualitative perspectives from a community-led study
    Iryawan, Arif Rachman
    Stoicescu, Claudia
    Sjahrial, Faisyal
    Nio, Kuntanto
    Dominich, Alexa
    HARM REDUCTION JOURNAL, 2022, 19 (01)