Who is your ideal peer mentor? A qualitative study to identify cancer patient preferences for a digital peer support app

被引:0
|
作者
Knaapen, Loes [1 ]
Laizner, Andrea Maria [1 ,2 ]
Agnew, Kelly [1 ]
Du, Xiao Jian [3 ]
El Abiad, Douaa [1 ]
Galarneau, Luc [1 ]
Judd, Susie [1 ]
Manalad, James [4 ]
Mittal, Ridhi [1 ]
Williams, Tristan [1 ]
Woolfson, Brandon [3 ]
Wen, Angele [1 ]
Kildea, John [1 ,3 ,4 ]
机构
[1] McGill Univ Hlth Ctr, Canc Res Program, Opal Hlth Informat Grp, Res Inst, Montreal, PQ, Canada
[2] McGill Univ, Ingram Sch Nursing, Montreal, PQ, Canada
[3] McGill Univ, Gerald Bronfman Dept Oncol, Montreal, PQ, Canada
[4] McGill Univ, Med Phys Unit, Montreal, PQ, Canada
基金
加拿大自然科学与工程研究理事会;
关键词
Peer support; Peer matching; Cancer; Mentor; Semi-structured interviews; BREAST-CANCER; PROGRAM; EXPERIENCE; LEADERS; NEEDS; WOMEN;
D O I
10.1007/s00520-025-09262-7
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
PurposePeer support can provide many benefits to cancer patients. However, sustained use of one-on-one peer support requires a good match between patient and peer mentor. Using an artificial intelligence (AI) matching algorithm has the potential to improve peer matching by achieving complex, preference-based matching. Therefore, using stakeholder co-design, this study identified patient preferences for peer matching criteria and other features of OpalBuddy, a digital peer support service to be developed within the Opal patient portal.MethodsPatients using the Opal app were recruited, and semi-structured individual interviews were carried out with eight available women cancer patients. Qualitative data analysis followed an iterative and collaborative thematic analysis approach, using computer-assisted software (NVivo).ResultsThree themes, with supporting sub-themes, that describe patient preferences for matching with an ideal peer mentor were identified:Theme 1. An ideal mentor can provide support at multiple levels, with sub-themes describing the levels: (A) Sharing illness experiences, (B) Practical information support, (C) Emotional support, (D) Social management coaching.Theme 2. The ideal mentor has similar lived experience, with sub-themes describing the type of lived experience: (A) Similar clinical situation, (B) Similar socio-demographics, (C) Interpersonal affinity.Theme 3. The ideal peer mentor will be supported in their role, with sub-themes describing support options: (A) Formal or informal training, (B) General guidance, (C) Supportive supervision.Finally, based on different support needs (practical vs emotional), it was found that patients had varying, even opposing, expectations from a mentor's interpersonal communication style (solution focused vs good listener).ResultsThree themes, with supporting sub-themes, that describe patient preferences for matching with an ideal peer mentor were identified:Theme 1. An ideal mentor can provide support at multiple levels, with sub-themes describing the levels: (A) Sharing illness experiences, (B) Practical information support, (C) Emotional support, (D) Social management coaching.Theme 2. The ideal mentor has similar lived experience, with sub-themes describing the type of lived experience: (A) Similar clinical situation, (B) Similar socio-demographics, (C) Interpersonal affinity.Theme 3. The ideal peer mentor will be supported in their role, with sub-themes describing support options: (A) Formal or informal training, (B) General guidance, (C) Supportive supervision.Finally, based on different support needs (practical vs emotional), it was found that patients had varying, even opposing, expectations from a mentor's interpersonal communication style (solution focused vs good listener).ResultsThree themes, with supporting sub-themes, that describe patient preferences for matching with an ideal peer mentor were identified:Theme 1. An ideal mentor can provide support at multiple levels, with sub-themes describing the levels: (A) Sharing illness experiences, (B) Practical information support, (C) Emotional support, (D) Social management coaching.Theme 2. The ideal mentor has similar lived experience, with sub-themes describing the type of lived experience: (A) Similar clinical situation, (B) Similar socio-demographics, (C) Interpersonal affinity.Theme 3. The ideal peer mentor will be supported in their role, with sub-themes describing support options: (A) Formal or informal training, (B) General guidance, (C) Supportive supervision. Finally, based on different support needs (practical vs emotional), it was found that patients had varying, even opposing, expectations from a mentor's interpersonal communication style (solution focused vs good listener).ResultsThree themes, with supporting sub-themes, that describe patient preferences for matching with an ideal peer mentor were identified:Theme 1. An ideal mentor can provide support at multiple levels, with sub-themes describing the levels: (A) Sharing illness experiences, (B) Practical information support, (C) Emotional support, (D) Social management coaching.Theme 2. The ideal mentor has similar lived experience, with sub-themes describing the type of lived experience: (A) Similar clinical situation, (B) Similar socio-demographics, (C) Interpersonal affinity.Theme 3. The ideal peer mentor will be supported in their role, with sub-themes describing support options: (A) Formal or informal training, (B) General guidance, (C) Supportive supervision.Finally, based on different support needs (practical vs emotional), it was found that patients had varying, even opposing, expectations from a mentor's interpersonal communication style (solution focused vs good listener).ResultsThree themes, with supporting sub-themes, that describe patient preferences for matching with an ideal peer mentor were identified:Theme 1. An ideal mentor can provide support at multiple levels, with sub-themes describing the levels: (A) Sharing illness experiences, (B) Practical information support, (C) Emotional support, (D) Social management coaching.Theme 2. The ideal mentor has similar lived experience, with sub-themes describing the type of lived experience: (A) Similar clinical situation, (B) Similar socio-demographics, (C) Interpersonal affinity.Theme 3. The ideal peer mentor will be supported in their role, with sub-themes describing support options: (A) Formal or informal training, (B) General guidance, (C) Supportive supervision.Finally, based on different support needs (practical vs emotional), it was found that patients had varying, even opposing, expectations from a mentor's interpersonal communication style (solution focused vs good listener).ConclusionPatient preferences for an ideal peer mentor were identified through semi-structured interviews with a sample of eight women with a diverse set of cancers. Findings will be used to guide further work, including a similar study with men and a pilot study of a digital patient matching service for peer support in the open-source Opal patient portal.
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