On the Journey: a qualitative study of a community-based, client-centred eating disorder recovery group

BackgroundCommunity-based eating disorder (ED) treatment frequently includes manualized group-based psychoeducation facilitated by a mental health clinician. Body Brave, a non-profit ED organization, developed a novel, participant-guided, community-based virtual healthcare provider (HCP)-facilitated support program called On the Journey (OtJ). The program was designed for people with longstanding EDs who had previously participated in group or individual ED programs but require continued support in their recovery. The purpose of the study was to describe the development and components of OtJ and to understand participant perceptions of the program and its effect on their recovery.MethodsUsing a formative and community-engaged research design, we conducted semi-structured interviews with three OtJ facilitators and focus groups with twelve OtJ clients. Transcripts were analyzed using Braun and Clarke's six-stage approach to reflexive thematic analysis.ResultsFour main themes were generated from the data (1) "Designing and Evolving OtJ" (2) "Is OtJ a Treatment or Support Group?" (3) "Fostering a Safe Environment throughout Program Delivery" and (4) "The Power of Lived Experience." Clients noted several strengths of the OtJ program: fostering a sense of community, valuing client autonomy, and providing accessible ED support.ConclusionsKey considerations for other organizations looking to offer programming similar to OtJ include having skilled and clinically trained facilitators and prescreening discussion topics to ensure that conversations are productive towards recovery. OtJ supports people with longstanding EDs, and other organizations could consider adopting a similar model of care. This study contributes to the growing body of including lived ED experience in research. On the Journey (OtJ) is a community-based eating disorder (ED) support program that is facilitated by healthcare providers. It was created by Body Brave, a non-profit organization from Hamilton, Ontario, Canada. This program is for people who have had an ED for at least two years and want low barrier support from a qualified clinician and others facing similar struggles as they continue to recover. This study describes the creation and implementation of OtJ and describes themes from interviews of clinicians and focus groups with clients of the program. Four main themes were identified (1) "Designing and Evolving OtJ" (2) "Is OtJ a Treatment or Support Group?" (3) "Fostering a Safe Environment throughout Program Delivery" and (4) "The Power of Lived Experience." Other ED organizations could consider implementing a similar program for their clients with longstanding EDs looking who are seeking accessible support.