Open government data in health sector: a systematic literature review open government data in health sector

被引:0
作者
Silva, Patricia Nascimento [1 ]
Silva, Sarah Nascimento [2 ]
机构
[1] Univ Fed Minas Gerais, Programa Pos Graduac Gestao & Organizac Conhecimen, Escola Ciencia Informac, Belo Horizonte, MG, Brazil
[2] Fundacao Oswaldo Cruz, Nucleo Avaliacao Tecnol Saude, Grp Pesquisa Clin & Polit Publ Doencas Infecciosas, Inst Rene Rachou, Ave Augusto lima,1715,Barro Preto, BR-30190009 Belo Horizonte, MG, Brazil
关键词
Open government data; Open health data; Government health data; Open government health data; Public Health; Systematic review; CARE;
D O I
10.1186/s12889-024-21149-6
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
BackgroundOpen government data (OGD) in the health sector consolidates transparency, access to information, and collaboration between the government and different sectors of society. It is an essential instrument for health systems and researchers to generate initiatives, drive innovations, and qualify decision-making, whether in health emergencies or supporting the creation of more effective public policies. This review aimed to identify OGD initiatives in healthcare and their possible applications.MethodsA systematic search was conducted in the MEDLINE (PubMed), Web of Science, Scopus, and Scielo databases up to February 12, 2024. Eligibility criteria included original studies that addressed OGD initiatives in public health. Studies using open data to prepare other analyses, reviews, and opinion articles were excluded. The quality methodological of related studies was based on the JBI Critical Appraisal tool. Data extraction included the location of the application, description of the initiative/use of data, themes addressed, data quality, and respective evaluation tools.ResultsOf the 3,176 records initially identified, six studies were included describing initiatives to make available datasets or portals that publish OGD in the healthcare area between 2020 and 2023. Most publications evaluated quality and usability requirements, with five related to the COVID-19 pandemics. There is significant heterogeneity in the data formats available, obtaining, on average, a 3-star rating in the Berners-Lee evaluation model. The availability of open data presents geographic differences, with regions being more developed than others in both the most comprehensive and the most regionalized studies.ConclusionsFew studies using OGD in health were identified in the scientific literature. The heterogeneity of open data formats, the lack of standards, and the quality of the data point to limitations and the need for improvements to enable the use and reliable reuse of this data.Trial registrationPROSPERO CRD42024498446.
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页数:11
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共 38 条
  • [21] Opening government health data to the public: benefits, challenges, and lessons learned from early innovators
    Martin, Erika G.
    Begany, Grace M.
    [J]. JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION, 2017, 24 (02) : 345 - 351
  • [22] Liberating Data to Transform Health Care New York's Open Data Experience
    Martin, Erika G.
    Helbig, Natalie
    Shah, Nirav R.
    [J]. JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 2014, 311 (24): : 2481 - 2482
  • [23] Quality study of open government data related to COVID-19 in Latin America
    Martinez, Roxana
    Pons, Claudia
    Rodriguez, Rocio
    Vera, Pablo
    [J]. REVISTA FACULTAD DE INGENIERIA-UNIVERSIDAD DE ANTIOQUIA, 2023, (108): : 18 - 32
  • [24] Overview of lymphoma diagnosis in Brazilian public health system patients: Open data analysis for health care planning
    Martins, Denise Pires
    Correa-Netto, Nelson Francisco
    Melo, Nina
    Loggetto, Sandra Regina
    de Liberal, Marcia Mello Costa
    [J]. HEMATOLOGY TRANSFUSION AND CELL THERAPY, 2022, 44 (01) : 40 - 48
  • [25] Chronic comorbidities and clinical outcomes in patients with and without COVID-19: a large population-based study using national administrative healthcare open data of Mexico
    Martos-Benitez, Frank Daniel
    Soler-Morejon, Caridad Dios
    Garcia-del Barco, Diana
    [J]. INTERNAL AND EMERGENCY MEDICINE, 2021, 16 (06) : 1507 - 1517
  • [26] McArthur A., 2020, JBI Man Evid Synthesis JBI, V10, P134, DOI [10.46658/JBIMES-20-05, DOI 10.46658/JBIMES-20-05]
  • [27] Lack of detail in population-level data impedes analysis of SARS-CoV-2 variants of concern and clinical outcomes
    Ong, Sean Wei Xiang
    Young, Barnaby Edward
    Lye, David Chien
    [J]. LANCET INFECTIOUS DISEASES, 2021, 21 (09) : 1195 - 1197
  • [28] OPEN DEFINITION (OD), The Open Definition
  • [29] OPEN GOVD, 2007, Eight principles of open government data
  • [30] Orszag P.R., 2009, Open government directive