A qualitative study on the experience of internet outpatient consultation in palliative care for relatives of cancer patients

被引:0
|
作者
Li, Shuo [2 ]
Lu, Guijun [2 ]
Shen, Yongqing [1 ]
Ye, Jianya [1 ]
Ji, Jingmin [1 ,3 ]
机构
[1] Hebei Univ Chinese Med, Sch Nursing, Shijiazhuang 050200, Hebei, Peoples R China
[2] Tsinghua Univ, Beijing Tsinghua Changgung Hosp, Sch Clin Med, Dept Nursing, Beijing 102218, Peoples R China
[3] Key Lab Hlth Care Chinese Med Hebei Prov, Shijiazhuang 050200, Peoples R China
来源
BMC PALLIATIVE CARE | 2025年 / 24卷 / 01期
关键词
Relatives of patients with malignant tumors; Home-based palliative care; Experience; Internet-based outpatient clinic; Qualitative study; CAREGIVERS; LIFE; END;
D O I
10.1186/s12904-025-01732-3
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
BackgroundThe palliative Internet-based outpatient service ensures seamless connectivity and equitable patient care; however, there is a lack of research on service quality, as well as the experiences and perceptions of patients' relatives. The aim of this study was to explore the perspectives and experiences of patients' relatives when using the palliative Internet clinic.MethodsA qualitative study involving semi-structured interviews with 13 relatives of terminal cancer patients was conducted, and data were analyzed using content analysis.ResultsRelatives reported that they were capable of caring for the patients at home but experienced confusion and challenges in managing their symptoms and addressing their psychological issues. They expressed hope that Internet clinics would provide timely and effective professional guidance to families, easing caregiving burdens and enhancing the quality of home-based care.ConclusionsThis study highlights the potential of Internet-based palliative care to enhance the quality of home-based caregiving and reduce caregiver burden. In addition, Internet-based consultations as an alternative to face-to-face consultations offers an appropriate option in palliative care settings.
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页数:9
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