A qualitative study on the experience of internet outpatient consultation in palliative care for relatives of cancer patients
被引:0
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作者:
Li, Shuo
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机构:
Tsinghua Univ, Beijing Tsinghua Changgung Hosp, Sch Clin Med, Dept Nursing, Beijing 102218, Peoples R ChinaHebei Univ Chinese Med, Sch Nursing, Shijiazhuang 050200, Hebei, Peoples R China
Li, Shuo
[2
]
Lu, Guijun
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机构:
Tsinghua Univ, Beijing Tsinghua Changgung Hosp, Sch Clin Med, Dept Nursing, Beijing 102218, Peoples R ChinaHebei Univ Chinese Med, Sch Nursing, Shijiazhuang 050200, Hebei, Peoples R China
Lu, Guijun
[2
]
Shen, Yongqing
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机构:
Hebei Univ Chinese Med, Sch Nursing, Shijiazhuang 050200, Hebei, Peoples R ChinaHebei Univ Chinese Med, Sch Nursing, Shijiazhuang 050200, Hebei, Peoples R China
Shen, Yongqing
[1
]
Ye, Jianya
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机构:
Hebei Univ Chinese Med, Sch Nursing, Shijiazhuang 050200, Hebei, Peoples R ChinaHebei Univ Chinese Med, Sch Nursing, Shijiazhuang 050200, Hebei, Peoples R China
Ye, Jianya
[1
]
Ji, Jingmin
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机构:
Hebei Univ Chinese Med, Sch Nursing, Shijiazhuang 050200, Hebei, Peoples R China
Key Lab Hlth Care Chinese Med Hebei Prov, Shijiazhuang 050200, Peoples R ChinaHebei Univ Chinese Med, Sch Nursing, Shijiazhuang 050200, Hebei, Peoples R China
Ji, Jingmin
[1
,3
]
机构:
[1] Hebei Univ Chinese Med, Sch Nursing, Shijiazhuang 050200, Hebei, Peoples R China
[2] Tsinghua Univ, Beijing Tsinghua Changgung Hosp, Sch Clin Med, Dept Nursing, Beijing 102218, Peoples R China
[3] Key Lab Hlth Care Chinese Med Hebei Prov, Shijiazhuang 050200, Peoples R China
来源:
BMC PALLIATIVE CARE
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2025年
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24卷
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01期
关键词:
Relatives of patients with malignant tumors;
Home-based palliative care;
Experience;
Internet-based outpatient clinic;
Qualitative study;
CAREGIVERS;
LIFE;
END;
D O I:
10.1186/s12904-025-01732-3
中图分类号:
R19 [保健组织与事业(卫生事业管理)];
学科分类号:
摘要:
BackgroundThe palliative Internet-based outpatient service ensures seamless connectivity and equitable patient care; however, there is a lack of research on service quality, as well as the experiences and perceptions of patients' relatives. The aim of this study was to explore the perspectives and experiences of patients' relatives when using the palliative Internet clinic.MethodsA qualitative study involving semi-structured interviews with 13 relatives of terminal cancer patients was conducted, and data were analyzed using content analysis.ResultsRelatives reported that they were capable of caring for the patients at home but experienced confusion and challenges in managing their symptoms and addressing their psychological issues. They expressed hope that Internet clinics would provide timely and effective professional guidance to families, easing caregiving burdens and enhancing the quality of home-based care.ConclusionsThis study highlights the potential of Internet-based palliative care to enhance the quality of home-based caregiving and reduce caregiver burden. In addition, Internet-based consultations as an alternative to face-to-face consultations offers an appropriate option in palliative care settings.
机构:Univ Texas MD Anderson Canc Ctr, Dept Palliat Care & Rehabil Med, Unit 1414, Houston, TX 77030 USA
Yennurajalingam, Sriram
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机构:
Kang, Jung Hun
Hui, David
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机构:Univ Texas MD Anderson Canc Ctr, Dept Palliat Care & Rehabil Med, Unit 1414, Houston, TX 77030 USA
Hui, David
Kang, Duck-Hee
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机构:
Univ Texas Houston, Hlth Sci Ctr, Ctr Nursing Res, Biosci Lab,Sch Nursing, Houston, TX USAUniv Texas MD Anderson Canc Ctr, Dept Palliat Care & Rehabil Med, Unit 1414, Houston, TX 77030 USA
Kang, Duck-Hee
Kim, Sun Hyun
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机构:
Kwandong Univ, Myongji Hosp, Coll Med, Dept Family Med, Goyang, South KoreaUniv Texas MD Anderson Canc Ctr, Dept Palliat Care & Rehabil Med, Unit 1414, Houston, TX 77030 USA
Kim, Sun Hyun
Bruera, Eduardo
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Univ Texas MD Anderson Canc Ctr, Dept Palliat Care & Rehabil Med, Unit 1414, Houston, TX 77030 USAUniv Texas MD Anderson Canc Ctr, Dept Palliat Care & Rehabil Med, Unit 1414, Houston, TX 77030 USA
机构:
Medical Anthropology and Sociology Unit, University of Amsterdam, 1012 DK, AmsterdamMedical Anthropology and Sociology Unit, University of Amsterdam, 1012 DK, Amsterdam
De Graaff F.M.
Francke A.L.
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机构:
NIVEL (Netherlands Institute for Health Services Research), 3500 BN, Utrecht
VU University Medical Centre (EMGO+), 1007 MB, AmsterdamMedical Anthropology and Sociology Unit, University of Amsterdam, 1012 DK, Amsterdam
Francke A.L.
Van Den Muijsenbergh M.E.T.C.
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机构:
Radboud University Nijmegen Medical Centre, 6500 HC, Nijmegen
Pharos (Knowledge and Advisory Centre on Refugees, Migrants and Health), 3507 LH, UtrechtMedical Anthropology and Sociology Unit, University of Amsterdam, 1012 DK, Amsterdam
Van Den Muijsenbergh M.E.T.C.
Van Der Geest S.
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机构:
Medical Anthropology and Sociology Unit, University of Amsterdam, 1012 DK, AmsterdamMedical Anthropology and Sociology Unit, University of Amsterdam, 1012 DK, Amsterdam