Patients' and plastic surgeons' experiences with an online patient decision aid for breast reconstruction: considerations for nationwide implementation

被引：0

作者：

Stege, Jacqueline A. ter ^{[1
]}

Engelhardt, Ellen G. ^{[1
,2
]}

Woerdeman, Leonie A. E. ^{[3
]}

Oldenburg, Hester S. A. ^{[4
]}

Kieffer, Jacobien M. ^{[1
]}

Hahn, Daniela E. E. ^{[5
]}

van Duijnhoven, Frederieke H. ^{[4
]}

van Huizum, Martine A. ^{[3
]}

The, Regina ^{[6
]}

Karssen, Klemens ^{[6
]}

Kuenen, Marianne ^{[1
]}

Gerritsma, Miranda A. ^{[1
]}

Ruhe, Quinten ^{[7
]}

Krabbe-Timmerman, Irene S. ^{[8
]}

Riet, Martijne van't ^{[9
]}

Kimmings, Nikola ^{[10
,17
]}

Corten, Eveline M. L. ^{[11
,12
]}

Sherman, Kerry A. ^{[13
]}

Witkamp, Arjen J. ^{[14
]}

Bleiker, Eveline M. A. ^{[1
,15
,16
]}

机构：

[1] Netherlands Canc Inst, Div Psychosocial Res & Epidemiol, Amsterdam, Netherlands

[2] Netherlands Canc Inst, Div Mol Pathol, Amsterdam, Netherlands

[3] Netherlands Canc Inst, Dept Plast & Reconstruct Surg, Amsterdam, Netherlands

[4] Netherlands Canc Inst, Dept Surg Oncol, Amsterdam, Netherlands

[5] Netherlands Canc Inst, Dept Psychosocial Counseling, Amsterdam, Netherlands

[6] Zorgkeuzelab, Delft, Netherlands

[7] Meander Med Ctr, Dept Plast & Reconstruct Surg, Amersfoort, Netherlands

[8] MED CTR LEEUWARDEN, DEPT PLAST & RECONSTRUCT SURG, LEEUWARDEN, Netherlands

[9] Reinier De Graaf Hosp, Dept Surg, Delft, Netherlands

[10] Slotervaart Med Ctr, Dept Surg, Amsterdam, Netherlands

[11] Erasmus Univ, Med Ctr, Rotterdam, Netherlands

[12] Franciscus Gasthuis & Vlietland, Dept Plast & Reconstruct Surg, Rotterdam, Netherlands

[13] Macquarie Univ Sydney, Ctr Emot Hlth, Sch Psychol Sci, Sydney, Australia

[14] Univ Med Ctr Utrecht, Dept Surg, Utrecht, Netherlands

[15] Netherlands Canc Inst, Family Canc Clin, Amsterdam, Netherlands

[16] Leiden Univ, Med Ctr, Dept Clin Genet, Leiden, Netherlands

[17] Alexander Monro Hosp, Bilthoven, Netherlands

来源：

BMC MEDICAL INFORMATICS AND DECISION MAKING | 2025年 / 25卷 / 01期

关键词：

Breast neoplasms; Breast reconstruction; Patient decision aid; Informational needs; Process evaluation; Implementation; eHealth; Shared decision making; QUALITY-OF-LIFE; MASTECTOMY;

D O I：

10.1186/s12911-024-02832-5

中图分类号：

R-058 [];

学科分类号：

摘要：

BackgroundWomen diagnosed with breast cancer undergoing a mastectomy often have the option to undergo breast reconstruction (BR). BR decisions are complex and have considerable impact. We developed a patient decision aid (pDA) to support patients' BR decision-making. Here, we assess patients' and physicians' use of the BR pDA and their views on the barriers and facilitators for widespread implementation.MethodsParticipants completed a questionnaire, and back-end data of the pDA was analyzed.ResultsOf 116 eligible patients, 113 patients accessed the BR pDA (median age: 50 years and 50% were highly educated. Most patients (72%) were satisfied with the pDA and 74% would recommend the BR pDA to other women facing the same choice. Patients' preferences regarding how much, what kind and how to present information varied. Plastic surgeons (N = 22; 71% response) were satisfied with the pDA. Their key factors for implementation included the perceived match between information and clinical practice, costs, impact on patients, and support from peers and management for the tool.ConclusionsAs the BR pDA was highly valued by its end users, the identified factors for implementation should be taken into account.

引用

页数：11

共 17 条

[1] Fostering implementation of health services research findings into practice: a consolidated framework for advancing implementation science [J].

Damschroder, Laura J. ;

Aron, David C. ;

Keith, Rosalind E. ;

Kirsh, Susan R. ;

Alexander, Jeffery A. ;

Lowery, Julie C. .

IMPLEMENTATION SCIENCE, 2009, 4

[2] Quality of life after mastectomy with or without immediate breast reconstruction [J].

Dauplat, J. ;

Kwiatkowski, F. ;

Rouanet, P. ;

Delay, E. ;

Clough, K. ;

Verhaeghe, J. L. ;

Raoust, I. ;

Houvenaeghel, G. ;

Lemasurier, P. ;

Thivat, E. ;

Pomel, C. .

BRITISH JOURNAL OF SURGERY, 2017, 104 (09) :1197-1206

[3] Findings of a national comparative audit of mastectomy and breast reconstruction surgery in England [J].

Jeevan, Ranjeet ;

Cromwell, David A. ;

Browne, John P. ;

Caddy, Christopher M. ;

Pereira, Jerome ;

Sheppard, Carmel ;

Greenaway, Kimberley ;

van der Meulen, Jan H. P. .

JOURNAL OF PLASTIC RECONSTRUCTIVE AND AESTHETIC SURGERY, 2014, 67 (10) :1333-1344

[4] What Works in Implementing Patient Decision Aids in Routine Clinical Settings? A Rapid Realist Review and Update from the International Patient Decision Aid Standards Collaboration [J].

Joseph-Williams, Natalie ;

Abhyankar, Purva ;

Boland, Laura ;

Bravo, Paulina ;

Brenner, Alison T. ;

Brodney, Suzanne ;

Coulter, Angela ;

Giguere, Anik ;

Hoffman, Aubri ;

Korner, Mirjam ;

Langford, Aisha ;

Legare, France ;

Matlock, Daniel ;

Moumjid, Nora ;

Munro, Sarah ;

Dahl Steffensen, Karina ;

Stirling, Christine ;

van der Weijden, Trudy .

MEDICAL DECISION MAKING, 2021, 41 (07) :907-937

[5] Long-Term Health-Related Quality of Life after Four Common Surgical Treatment Options for Breast Cancer and the Effect of Complications: A Retrospective Patient-Reported Survey among 1871 Patients [J].

Kouwenberg, Casimir A. E. ;

de Ligt, Kelly M. ;

Kranenburg, Leonieke W. ;

Rakhorst, Hinne ;

de Leeuw, Danielle ;

Siesling, Sabine ;

Busschbach, Jan J. ;

Mureau, Marc A. M. .

PLASTIC AND RECONSTRUCTIVE SURGERY, 2020, 146 (01) :1-13

[6] The 9-item Shared Decision Making Questionnaire (SDM-Q-9). Development and psychometric properties in a primary care sample [J].

Kriston, Levente ;

Scholl, Isabelle ;

Hoelzel, Lars ;

Simon, Daniela ;

Loh, Andreas ;

Haerter, Martin .

PATIENT EDUCATION AND COUNSELING, 2010, 80 (01) :94-99

[7] Accuracy of Predictions of Patients With Breast Cancer of Future Well-being After Immediate Breast Reconstruction [J].

Lee, Clara Nan-hi ;

Pignone, Michael Patrick ;

Deal, Allison M. ;

Blizard, Lillian ;

Hunt, Caprice ;

Huh, Ruth ;

Liu, Yuen-Jong ;

Ubel, Peter Anthony .

JAMA SURGERY, 2018, 153 (04)

[8] Quality of Patient Decisions About Breast Reconstruction After Mastectomy [J].

Lee, Clara Nan-Hi ;

Deal, Allison M. ;

Huh, Ruth ;

Ubel, Peter Anthony ;

Liu, Yuen-Jong ;

Blizard, Lillian ;

Hunt, Caprice ;

Pignone, Michael Patrick .

JAMA SURGERY, 2017, 152 (08) :741-748

[9] How Informed Is the Decision About Breast Reconstruction After Mastectomy? A Prospective, Cross-sectional Study [J].

Lee, Clara Nan-hi ;

Ubel, Peter Anthony ;

Deal, Allison M. ;

Blizard, Lillian Burdick ;

Sepucha, Karen R. ;

Ollila, David W. ;

Pignone, Michael Patrick .

ANNALS OF SURGERY, 2016, 264 (06) :1103-1109

[10] Dutch Translation and Psychometric Testing of the 9-Item Shared Decision Making Questionnaire (SDM-Q-9) and Shared Decision Making Questionnaire-Physician Version (SDM-Q-Doc) in Primary and Secondary Care [J].

Rodenburg-Vandenbussche, Sumayah ;

Pieterse, Arwen H. ;

Kroonenberg, Pieter M. ;

Scholl, Isabelle ;

van der Weijden, Trudy ;

Luyten, Gre P. M. ;

Kruitwagen, Roy F. P. M. ;

den Ouden, Henk ;

Carlier, Ingrid V. E. ;

van Vliet, Irene M. ;

Zitman, Frans G. ;

Stiggelbout, Anne M. .

PLOS ONE, 2015, 10 (07) :e0132158

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