Exploring the role of perceived social support, and spiritual well-being in predicting the family Caregiving burden among the parents of disabled children

被引:0
作者
Taher, Mohammad [1 ]
Azizi, Nemat [2 ]
Rohani, Mohammadreza [3 ]
Koukamari, Parisa Hosseini [4 ]
Rashidi, Fatemeh [5 ]
Araban, Marzieh [6 ]
Coetzer-Liversage, Anthony [7 ,8 ]
Karimy, Mahmood [2 ]
机构
[1] Saveh Univ Med Sci, Dept Nursing, Saveh, Iran
[2] Saveh Univ Med Sci, Social Determinants Hlth Res Ctr, Saveh, Iran
[3] Saveh Univ Med Sci, Dept Internal Med, Saveh, Iran
[4] Saveh Univ Med Sci, Dept Publ Hlth, Saveh, Iran
[5] Saveh Univ Med Sci, Student Res Comm, Saveh, Iran
[6] Ahvaz Jundishapur Univ Med Sci, Menopause Andropause Res Ctr, Ahvaz, Iran
[7] ServeMinnesota, Minneapolis, MN USA
[8] Univ Rhode Isl, Dept Psychol, Kingston, RI USA
关键词
Caregiving burden; Perceived social support; Spiritual well-being; PSYCHOMETRIC PROPERTIES;
D O I
10.1186/s12889-025-21654-2
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Background and aim Caregiver burden encompasses the physical, emotional, financial, and social challenges faced by individuals caring for a sick or disabled person. Spiritual well-being and social support have been identified as protective factors against psychological and physical issues, potentially alleviating caregiver burden. This study aims to explore the relationship between spiritual well-being, perceived social support, and caregiver burden among parents of children with disabilities. Method A descriptive-analytical study was conducted with 260 family caregivers, selected through systematic random sampling. Data were collected using a demographic questionnaire, the Novak and Gaug Caregiving Burden Scale, the Paloutzian-Ellison Spiritual Well-being Scale, and the Zimet Social Support Questionnaire. Statistical analysis was performed using IBM SPSS version 22, with significance set at p < 0.05. Results Among the caregivers, 148 (61.4%) reported a high level of caregiving burden, while 81% indicated moderate spiritual well-being and 14.5% reported high spiritual well-being. A significant negative correlation was found between spiritual well-being, social support, and caregiving burden (p < 0.05). Multiple linear regression analysis revealed that spiritual well-being (beta = -0.41) and social support (beta = -0.33) were the most significant predictors of caregiving burden. Additional significant predictors included social activities, underlying health conditions, age, caregiving duration, insurance coverage, and marital status (p < 0.05). Conclusion The high caregiving burden observed in this population, along with the inverse relationship between social support, spiritual well-being, and caregiving burden, underscores the need for strategies to enhance social support and spiritual well-being. These factors may serve as cost-effective, accessible interventions to alleviate caregiving burden.
引用
收藏
页数:9
相关论文
共 50 条
[31]   A latent profile analysis of spiritual well-being and their relation to perceived social support and hope in patients with early-stage lung cancer [J].
Huang, Peiwen ;
He, Xueyu ;
Li, Ling ;
Xu, Jingwei ;
Wang, Meifang ;
Li, Yang .
SUPPORTIVE CARE IN CANCER, 2025, 33 (01)
[32]   THE ROLE OF SOCIODEMOGRAPHIC VARIABLES AND SPIRITUAL WELL-BEING IN PREDICTING LEVELS OF HAPPINESS IN BRAZILIANS [J].
Nunes, Sandra adriana neves ;
Costa, Jhessica santos ;
de Almeida, Ana karolynne silva ;
Fernandes, Marcos gimenes .
SYNESIS, 2023, 15 (04) :289-314
[33]   The mediating role of spiritual well-being in the relationship between patience and meaning of life in parents of children with special needs [J].
Bulbul, Ayse Eliusuk ;
Bilgin, Muhammet .
JOURNAL OF BELIEFS & VALUES-STUDIES IN RELIGION & EDUCATION, 2024,
[34]   The effect of psychological resilience and spiritual well-being on the experience of hope in parents of children with cancer [J].
Koyu, Hazal Ozdemir ;
Algul, Goekce ;
Altay, Naime ;
Kilicarslan, Ebru .
JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES, 2024, 76 :e34-e41
[35]   The Relationship between Emotional Intelligence and Psychological Well-Being among Male University Students: The Mediating Role of Perceived Social Support and Perceived Stress [J].
Malinauskas, Romualdas ;
Malinauskiene, Vilija .
INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH, 2020, 17 (05)
[36]   Care burden and the predictive role of spiritual well-being and religious coping: A cross sectional study among Iranian family caregivers of patients with stroke [J].
Mirhosseini, Seyedmohammad ;
Nezhad, Fatemeh Sadat Hosseini ;
Rahim, Ali Haji Mohammad ;
Basirinezhad, Mohammad Hasan ;
Bakhshiarab, Amirheidar ;
Saeedi, Maryam ;
Ebrahimi, Hossein .
HEALTH SCIENCE REPORTS, 2024, 7 (06)
[37]   When is received social support related to perceived support and well-being? When it is needed [J].
Melrose, Karen L. ;
Brown, Gordon D. A. ;
Wood, Alex M. .
PERSONALITY AND INDIVIDUAL DIFFERENCES, 2015, 77 :97-105
[38]   Perceived social support as a moderator between perceived discrimination and subjective well-being among people with physical disabilities in Israel [J].
Itzick, Michal ;
Kagan, Maya ;
Tal-Katz, Patricia .
DISABILITY AND REHABILITATION, 2018, 40 (18) :2208-2216
[39]   Perceived Social Support and School Well-Being Among Chinese Early and Middle Adolescents: The Mediational Role of Self-Esteem [J].
Lili Tian ;
Benrong Liu ;
Siyuan Huang ;
E. Scott Huebner .
Social Indicators Research, 2013, 113 :991-1008
[40]   Perceived Social Support and School Well-Being Among Chinese Early and Middle Adolescents: The Mediational Role of Self-Esteem [J].
Tian, Lili ;
Liu, Benrong ;
Huang, Siyuan ;
Huebner, E. Scott .
SOCIAL INDICATORS RESEARCH, 2013, 113 (03) :991-1008