Interventions delivered by primary or community healthcare professionals to support people living at home with dementia with activities of daily living: a systematic review and narrative synthesis

被引：0

作者：

Chester, Helen ^{[1
]}

Bradbury, Barbara ^{[2
]}

Santer, Miriam ^{[3
]}

Morrison, Leanne ^{[4
]}

Fader, Mandy ^{[5
]}

Ward, Jane ^{[6
]}

Manthorpe, Jill ^{[1
]}

Murphy, Catherine ^{[2
]}

机构：

[1] Kings Coll London, Policy Inst, NIHR Policy Res Unit Hlth & Social Care Workforce, Virginia Woolf Bldg 22 Kingsway, London WC2B 6LE, England

[2] Univ Southampton, Southampton Gen Hosp, Sch Hlth Sci, Tremona Rd, Shirley SO16 6YD, England

[3] Univ Southampton, Fac Med, Primary Care Res Ctr, Aldermoor Hlth Ctr,Populat Sci & Med Educ PPM, Southampton SO16 5ST, England

[4] Univ Southampton, Fac Environm & Life Sci, Fac Med, Primary Care Res Ctr,Dept Psychol, Southampton SO17 1BJ, England

[5] Univ Southampton Univ, Southampton Gen Hosp, Sch Hlth Sci, Tremona Rd, Southampton SO16 6YD, England

[6] Lead Dementia Friendly Hampshire, Alzheimers Soc Res Network Member, Portsmouth, Hants, England

来源：

BMC GERIATRICS | 2024年 / 24卷 / 01期

关键词：

Systematic review; People living with dementia; Family carers; Non-pharmacological interventions; Behavioural interventions; Continence; Healthcare professionals; Primary care; Community care; INFORMAL CARERS; INCONTINENCE; INDEPENDENCE; ONLINE; IMPACT;

D O I：

10.1186/s12877-024-05465-5

中图分类号：

R592 [老年病学]; C [社会科学总论];

学科分类号：

03 ; 0303 ; 100203 ;

摘要：

BackgroundMost people living with dementia live in their own home supported by family carers. One of the most challenging problems they face is managing toilet-use and continence. Carers have repeatedly asked for better advice from healthcare professionals. The purpose of this systematic review was to inform the development of an intervention to support healthcare professionals to provide existing continence management advice to the carers of people living at home with dementia. It aimed to identify and synthesise lessons from the development and evaluation of interventions, involving primary or community healthcare professionals, to support the provision of management advice aimed at supporting people living at home with dementia and their carers with activities of daily living. Due to a lack of relevant continence or toilet-use interventions, this included, but was not limited to, toileting or continence care.MethodsLiterature (February 2009-November 2022) was searched using five databases: MEDLINE (Ovid); PsycINFO (Ovid); EMBASE (Ovid); Cumulative Index to Nursing and Allied Health Literature (CINAHL) (EBSCO); and Cochrane Central Register of Controlled Trials (CENTRAL). Empirical studies using a variety of methodologies were included and thus the quality of papers appraised using the Mixed-Methods Appraisal Tool. No studies were excluded based on quality. A narrative synthesis was undertaken.ResultsTwelve articles reporting on 10 interventions were included. Most comprised the provision of online resources only, although some combined these with online or face-to-face contact with healthcare professionals. A variety of methodologies was utilised including randomised controlled trials. The quality of included studies was variable. Six main themes were identified: mode of delivery; targeted and tailored resources; content, design and navigation; credibility; user involvement in the development and evaluation of information resources; and role of professionals and organisations.ConclusionsDespite the urgent need to better support people living at home with dementia and their carers, this review highlights the paucity of studies reporting on interventions delivered within primary and community healthcare contexts to provide management advice aimed at supporting this population with activities of daily living. This review has identified important considerations that will potentially aid the development, delivery and evaluation of such interventions.Systematic Review RegistrationPROSPERO International Prospective Register of Systematic Reviews CRD42022372456.

引用

页数：17

共 58 条

[1]

Dementia factsheet, World Health Organisation, (2023)

[2]

Dementia: At a glance, SCIE., (2020)

[3]

Health and Social Care Committee Supporting people with dementia and their carers. Seventh Report of Session 2021–22 report, (2021)

[4]

. Carers UK’s State of Caring 2021 report – Alzheimer’s Society responds, . London: Alzheimer’s Society., (2021)

[5]

Caring in a complex world: Perspectives from unpaid carers and the organisations that support them, The King’s Fund, (2023)

[6]

Bucks R., Ashworth D., Wilcock G., Siegfried K., Assessment of activities of daily living in dementia: development of the Bristol activities of Daily Living Scale, Age Ageing, 25, 2, pp. 113-120, (1996)

[7]

Giebel C., Sutcliffe C., Challis D., Activities of daily living and quality of life across different stages of dementia: a UK study, Aging Ment Health, 19, 1, pp. 63-71, (2015)

[8]

Global action plan on the public health response to dementia 2017–2025, (2017)

[9]

Norton L., Malloy P., Salloway S., The impact of behavioral symptoms on activities of daily living in patients with dementia, Am J Geriatr Psychiatry, 9, 1, pp. 41-48, (2001)

[10]

Murphy C., de Laine C., Macaulay M., Avery M., Fader M., A qualitative study and preliminary model of living with dementia and incontinence at home: beyond containment, Age Ageing, 51, 1, pp. 1-9, (2022)

← 1 2 3 4 5 6 →