Roles in the Discussion: An Analysis of Social Support in an Online Forum for People with Dementia

被引：5
作者：
Johnson J. [1 ]
Black R.W. [1 ]
Hayes G.R. [1 ]
机构：
[1] University of California - Irvine, Irvine, CA
来源：
Proceedings of the ACM on Human-Computer Interaction | 2020年 / 4卷 / CSCW2期
关键词：
alzheimer's; companionship; dementia; discussion forum; emotional support; information support; network support; online communities; social support;
D O I：
10.1145/3415198
中图分类号：
学科分类号：
摘要：
Social computing provides a variety of challenges and opportunities for people who are experiencing cognitive decline. Following a recent diagnosis of dementia, older adults sometimes engage in online communities designated for people with dementia. In this work, we analyzed all original posts from a seven-year period on a forum for persons with dementia to understand 1) who posts in this forum and 2) what kinds of social support posters seek to gain from this engagement. Our analyses indicate that, in addition to people with dementia, a variety of dementia-related stakeholders create original posts in this forum. Our results suggest that seeking and offering social support are key activities for all forum users, not just those with dementia for whom the forum was designated. Given these findings, we offer design implications for online spaces for vulnerable communities, with a focus on design that allows for external stakeholder participation while still maintaining the privacy and safety of vulnerable members of the community. © 2020 ACM.
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[81]  
Wilks S.E., Croom B., Perceived stress and resilience in Alzheimer's disease caregivers: Testing moderation and mediation models of social support, Aging and Mental Health, 12, 3, pp. 357-365, (2008)
[82]  
Winefield H.R., Support provision and emotional work in an Internet support group for cancer patients, Patient Education and Counseling, 62, 2, pp. 193-197, (2006)
[83]  
Wood R.T.A., Wood S.A., An evaluation of two United Kingdom online support forums designed to help people with gambling issues, Journal of Gambling Issues, 23, pp. 5-30, (2009)
[84]  
Ziebland S., Lavie-Ajayi M., Lucius-Hoene G., The role of the Internet for people with chronic pain: Examples from the DIPEx International Project, British Journal of Pain, 9, 1, pp. 62-64, (2015)
[85]  
Ziebland S.U.E., Wyke S., Health and illness in a connected world: How might sharing experiences on the internet affect people's health?, The Milbank Quarterly, 90, 2, pp. 219-249, (2012)
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