Parallel Journeys of Patients with Cancer and Depression: Challenges and Opportunities for Technology-Enabled Collaborative Care

被引：19

作者：

Suh J. ^{[1
]}

Williams S. ^{[2
]}

Fann J.R. ^{[2
]}

Fogarty J. ^{[2
]}

Bauer A.M. ^{[2
]}

Hsieh G. ^{[2
]}

机构：

[1] University of Washington and Microsoft Research, Seattle

[2] University of Washington, Seattle

来源：

Proceedings of the ACM on Human-Computer Interaction | 2020年 / 4卷 / CSCW1期

基金：

美国国家卫生研究院;

关键词：

cancer; collaborative care; depression; health technology; integrated care; qualitative methods; whole patient;

D O I：

10.1145/3392843

中图分类号：

学科分类号：

摘要：

Depression is common but under-treated in patients with cancer, despite being a major modifiable contributor to morbidity and early mortality. Integrating psychosocial care into cancer services through the team-based Collaborative Care Management (CoCM) model has been proven to be effective in improving patient outcomes in cancer centers. However, there is currently a gap in understanding the challenges that patients and their care team encounter in managing co-morbid cancer and depression in integrated psycho-oncology care settings. Our formative study examines the challenges and needs of CoCM in cancer settings with perspectives from patients, care managers, oncologists, psychiatrists, and administrators, with a focus on technology opportunities to support CoCM. We find that: (1) patients with co-morbid cancer and depression struggle to navigate between their cancer and psychosocial care journeys, and (2) conceptualizing co-morbidities as separate and independent care journeys is insufficient for characterizing this complex care context. We then propose the parallel journeys framework as a conceptual design framework for characterizing challenges that patients and their care team encounter when cancer and psychosocial care journeys interact. We use the challenges discovered through the lens of this framework to highlight and prioritize technology design opportunities for supporting whole-person care for patients with co-morbid cancer and depression. © 2020 ACM.

引用

共 137 条

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