The challenges and opportunities of mental health data sharing in the UK

被引：16

作者：

Ford, Tamsin ^{[1
]}

Mansfield, Karen L ^{[2
]}

Markham, Sarah ^{[3
]}

McManus, Sally ^{[7
]}

John, Ann ^{[8
]}

O'Reilly, Dermot ^{[9
]}

Newlove-Delgado, Tamsin ^{[10
]}

Iveson, Matthew H ^{[12
]}

Fazel, Mina ^{[2
]}

Das Munshi, Jayati ^{[4
]}

Dutta, Rina ^{[6
]}

Leavy, Gerard ^{[13
]}

Downs, Johnny ^{[5
,14
]}

Foley, Tom ^{[15
]}

Russell, Abigail ^{[10
]}

Maguire, Aideen ^{[9
]}

Moon, Graham ^{[16
]}

Kirkham, Elizabeth J ^{[11
]}

Finning, Katie ^{[10
]}

Russell, Ginny ^{[10
]}

Moore, Anna ^{[1
]}

Jones, Peter B ^{[1
]}

Shenow, Sarah ^{[17
]}

机构：

[1] Department of Psychiatry, University of Cambridge, Cambridge, United Kingdom

[2] Department of Psychiatry, University of Oxford, Warneford Hospital, Oxford,OX3 7JX, United Kingdom

[3] Department of Biostatistics and Health Informatics, King's College London, London, United Kingdom

[4] Department of Psychological Medicine, King's College London, London, United Kingdom

[5] Institute of Psychiatry, Psychology and Neuroscience, King's College London, London, United Kingdom

[6] Department of Psychological Medicine, Division of Academic Psychiatry, King's College London, London, United Kingdom

[7] School of Health Sciences, City, University of London, London, United Kingdom

[8] Public Health and Psychiatry, Swansea University Medical School, Swansea University, Swansea, United Kingdom

[9] Centre for Public Health, Queen's University Belfast, Royal Group of Hospitals, Belfast, United Kingdom

[10] Children and Young People's Mental Health Research Collaboration, University of Exeter College of Medicine and Health, University of Exeter Medical School, Exeter, United Kingdom

[11] Centre for Clinical Brain Sciences, Royal Edinburgh Hospital, University of Edinburgh, Edinburgh, United Kingdom

[12] Centre for Cognitive Ageing and Cognitive Epidemiology, Royal Edinburgh Hospital, University of Edinburgh, Edinburgh, United Kingdom

[13] School of Psychology, Ulster University, Londonderry, United Kingdom

[14] National Institute for Health Research Maudsley Biomedical Research Centre, South London and Maudsely National Health Service Foundation Trust, London, United Kingdom

[15] Population Health Sciences Institute, Newcastle University, Newcastle, United Kingdom

[16] School of Geography and Environmental Science, University of Southampton, Southampton, United Kingdom

[17] MQ, London, United Kingdom

来源：

The Lancet Digital Health | 2021年 / 3卷 / 06期

关键词：

SMc reports institutional funding from NHS Digital; outside of this Comment. TN-D reports that they are an author of the Mental Health of Children and Young People in England 2020 Survey report and has two applications submitted to NHS Digital for access to survey data. JDM reports grants from the National Institute for Health Research (NIHIR); the Economic and Social Research Council (ESRC); and the Health Foundation; outside of this Comment. PBJ reports salary support from the Higher Education Funding Council through the University of Cambridge and from the NHS. TFol reports employment by NHS Digital; outside of this Comment. All other authors declare no competing interests. KLM is funded by the NIHR Oxford Health NHS Foundation Trust Biomedical Research Centre. JDM is partly supported by the ESRC Centre for Society and Mental Health at King's College London (ESRC reference ES/S012567/1); a jointly funded clinical fellowship from the Health Foundation and Academy of Medical Sciences; and the NIHR Applied Research Collaboration South London at King's College Hospital NHS Foundation Trust. JD and JDM are partly supported by the NIHR Biomedical Research Centre at South London and Maudsley NHS Foundation Trust. MF was funded by the NIHR Applied Research Collaboration Oxford and Thames Valley at Oxford Health NHS Foundation Trust. AR is supported by an NIHR advanced fellowship (NIHR300591). KF received funding from Place2Be; Research England's Strategic Priorities Fund; and the ESRC postdoctoral fellowship scheme (ES/V011936/1). AJ is funded by MQ and the Medical Research Council. TN-D is supported by an NIHR advanced fellowship (NIHR300056). The views expressed in this Comment are those of the authors and not necessarily those of the NIHR; the ESRC; the Department of Health and Social Care; or NHS Digital. We are grateful for MQ's support in organising the series of teleconferences and workshops that resulted in the content of this Comment. In particular; we thank Eva Wölbert and Peter B Jones for facilitating the workshop; Sarah Shenow for supporting the survey of researchers' experiences and helping to refine the implementation actions required in the sector; Abigail Russell for leading the survey; Taj Sallamuddin for his advice on the impact of the GDPR on delays in accessing data and for improving figure 1 in our appendix; and our contacts at NHS Digital for supporting the workshop and providing invaluable comments and advice;

D O I：

10.1016/S2589-7500(21)00078-9

中图分类号：

学科分类号：

摘要：

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