Discordant Perception of Disease Activity Between Providers and Adolescents with Systemic Lupus Erythematosus: A Cohort Study

被引：0
|
作者：
Mian, Zanab [1 ,2 ]
Calistro, Terrence [3 ]
Rapoza, Kimberly [3 ]
Berkowitz, Shari Salzhauer [4 ]
Rubinstein, Tamar B. [5 ]
Walters, Heather M. [1 ,2 ]
Eberhard, B. Anne [1 ,2 ]
Kenney-Riley, Kathleen [4 ,5 ,6 ]
Hui-Yuen, Joyce S. [1 ,2 ]
机构：
[1] Donald & Barbara Zucker Sch Med Hofstra Northwell, Dept Pediat, Hempstead, NY USA
[2] Cohen Childrens Med Ctr NY, Div Pediat Rheumatol, New Hyde Pk, NY USA
[3] Mercy Univ, Sch Social & Behav Sci, Dept Psychol, Dobbs Ferry, NY USA
[4] Mercy Univ, Sch Hlth & Nat Sci, Dobbs Ferry, NY USA
[5] Childrens Hosp Montefiore, Div Pediat Rheumatol, Bronx, NY USA
[6] Mercy Univ, Sch Nursing, Dobbs Ferry, NY USA
来源：
JOURNAL OF PEDIATRICS | 2024年 / 274卷
关键词：
CRITERIA; CLASSIFICATION; PHYSICIANS; DERIVATION; VALIDATION; PATIENT;
D O I：
10.1016/j.jpeds.2024.114216
中图分类号：
R72 [儿科学];
学科分类号：
100202 ;
摘要：
Discordance in perception of disease activity between adolescent patients with lupus and their providers may influence disease outcomes. We found that patients endorsed higher perceptions of disease activity than providers. Discordance was present at all levels of disease activity, particularly in patients with high activity, nephritis, and/or taking corticosteroids or mycophenolate mofetil.
引用
收藏
页数：5
相关论文
共 50 条
  • [31] Associations between physicians' global assessment of disease activity and patient-reported outcomes in patients with systemic lupus erythematosus: A longitudinal study
    Louthrenoo, Worawit
    Kasitanon, Nuntana
    Morand, Eric
    Kandane-Rathnayake, Rangi
    LUPUS, 2021, 30 (10) : 1586 - 1595
  • [32] Differences between central nervous system infection and neuropsychiatric systemic lupus erythematosus in patients with systemic lupus erythematosus
    Fang, Hongli
    Lan, Likang
    Qu, Yanzhou
    Zhang, Qiankun
    Lv, Jin
    JOURNAL OF INTERNATIONAL MEDICAL RESEARCH, 2018, 46 (01) : 485 - 491
  • [33] Perceived Stress and Prediction of Worse Disease Activity and Symptoms in a Multiracial, Multiethnic Systemic Lupus Erythematosus Cohort
    Patterson, Sarah
    Trupin, Laura
    Hartogensis, Wendy
    DeQuattro, Kimberly
    Lanata, Cristina
    Gordon, Caroline
    Barbour, Kamil E. E.
    Greenlund, Kurt J. J.
    Dall'Era, Maria
    Yazdany, Jinoos
    Katz, Patricia
    ARTHRITIS CARE & RESEARCH, 2023, : 1681 - 1689
  • [34] Cerebrovascular Events in Systemic Lupus Erythematosus: Results From an International Inception Cohort Study
    Hanly, John G.
    Li, Qiuju
    Su, Li
    Urowitz, Murray B.
    Gordon, Caroline
    Bae, Sang-Cheol
    Romero-Diaz, Juanita
    Sanchez-Guerrero, Jorge
    Bernatsky, Sasha
    Clarke, Ann E.
    Wallace, Daniel J.
    Isenberg, David A.
    Rahman, Anisur
    Merrill, Joan T.
    Fortin, Paul
    Gladman, Dafna D.
    Bruce, Ian N.
    Petri, Michelle
    Ginzler, Ellen M.
    Dooley, M. A.
    Steinsson, Kristjan
    Ramsey-Goldman, Rosalind
    Zoma, Asad A.
    Manzi, Susan
    Nived, Ola
    Jonsen, Andreas
    Khamashta, Munther A.
    Alarcon, Graciela S.
    Chatham, Winn
    van Vollenhoven, Ronald F.
    Aranow, Cynthia
    Mackay, Meggan
    Ruiz-Irastorza, Guillermo
    Ramos-Casals, Manuel
    Lim, S. Sam
    Inanc, Murat
    Kalunian, Kenneth C.
    Jacobsen, Soren
    Peschken, Christine A.
    Kamen, Diane L.
    Askanase, Anca
    Theriault, Chris
    Farewell, Vernon
    ARTHRITIS CARE & RESEARCH, 2018, 70 (10) : 1478 - 1487
  • [35] Impact of belimumab therapy on the quality of life in patients with systemic lupus erythematosus: A cohort study
    Prete, Marcella
    Susca, Nicola
    Leone, Patrizia
    De Giacomo, Andrea
    Bray, Antonella
    Brunori, Giuliano
    Favoino, Elvira
    Perosa, Federico
    Racanelli, Vito
    LUPUS, 2023, 32 (13) : 1528 - 1535
  • [36] Risk of epilepsy in patients with systemic lupus erythematosus - a retrospective cohort study
    Tsai, Jeng-Dau
    Lin, Cheng-Li
    Lin, Cheng-Chieh
    Sung, Fung-Chang
    Lue, Ko-Huang
    NEUROPSYCHIATRIC DISEASE AND TREATMENT, 2014, 10 : 1635 - 1643
  • [37] Cardiovascular disease and cognitive dysfunction in systemic lupus erythematosus
    Murray, Sara G.
    Yazdany, Jinoos
    Kaiser, Rachel
    Criswell, Lindsey A.
    Trupin, Laura
    Yelin, Edward H.
    Katz, Patricia P.
    Julian, Laura J.
    ARTHRITIS CARE & RESEARCH, 2012, 64 (09) : 1328 - 1333
  • [38] Patterns of Medication Use in Systemic Lupus Erythematosus: A Multicenter Cohort Study
    Kandane-Rathnayake, Rangi
    Louthrenoo, Worawit
    Luo, Shue-Fen
    Wu, Yeong-Jian J.
    Chen, Yi-Hsing
    Golder, Vera
    Lateef, Aisha
    Cho, Jiacai
    Navarra, Sandra, V
    Zamora, Leonid
    Hamijoyo, Laniyati
    Sockalingam, Sargunan
    An, Yuan
    Li, Zhanguo
    Montes, Ricardo
    Oon, Shereen
    Katsumata, Yasuhiro
    Harigai, Masayoshi
    Hao, Yanjie
    Zhang, Zhuoli
    Chan, Madelynn
    Kikuchi, Jun
    Takeuchi, Tsutomu
    Goldblatt, Fiona
    O'Neill, Sean
    Bae, Sang-Cheol
    Lau, Chak S.
    Hoi, Alberta
    Karyekar, Chetan S.
    Nikpour, Mandana
    Morand, Eric F.
    ARTHRITIS CARE & RESEARCH, 2022, 74 (12) : 2033 - 2041
  • [39] Factors associated with osteoporosis and fractures in patients with systemic lupus erythematosus: Kyoto Lupus Cohort
    Nakajima, Tomoya
    Doi, Hiroshi
    Watanabe, Ryu
    Murata, Koichi
    Takase, Yudai
    Inaba, Ryuta
    Itaya, Takahiro
    Iwasaki, Takeshi
    Shirakashi, Mirei
    Tsuji, Hideaki
    Kitagori, Koji
    Akizuki, Shuji
    Nakashima, Ran
    Onishi, Akira
    Yoshifuji, Hajime
    Tanaka, Masao
    Ito, Hiromu
    Hashimoto, Motomu
    Ohmura, Koichiro
    Morinobu, Akio
    MODERN RHEUMATOLOGY, 2023, 34 (01) : 113 - 121
  • [40] Hyponatremia in systemic lupus erythematosus patients: Relation to disease activity and fatigue
    El-Badawy, Mohja A.
    El-Mahdi, Amira R.
    El-Sherbiny, Dalia A.
    Bawady, Somia A. H.
    EGYPTIAN RHEUMATOLOGIST, 2019, 41 (04) : 283 - 287
12345