Digital Health and Self-Management in Idiopathic Inflammatory Myopathies: A Missed Opportunity?

被引:0
作者
Battista, Simone [1 ]
Giardulli, Benedetto [2 ]
Sieiro Santos, Cristiana [3 ]
Aharonov, Or [4 ]
Puttaswamy, Darshan [5 ]
Russell, Anne - Marie [6 ,7 ,8 ]
Gupta, Latika [9 ,10 ]
机构
[1] Univ Salford, Ctr Human Movement & Rehabil, Sch Hlth & Soc, Salford, England
[2] Univ Genoa, Dept Neurosci Rehabil Opthalmol Genet Maternal & C, Campus Savona, Savona, Italy
[3] Complejo Asistencial Univ Leon, Dept Rheumatol, Leon, Spain
[4] Univ Vienna, Dept Psychol, Psychol Aging Grp, Vienna, Austria
[5] King Edward Mem Hosp, Seth Gordhandhas Sunderdas Med Coll, Mumbai, Maharashtra, India
[6] Univ Birmingham, Sch Med & Hlth, Birmingham, England
[7] Univ Exeter, Sch Hlth & Care Profess, Exeter, England
[8] Univ Hosp Birmingham NHS Trust, ILD Reg Serv, Birmingham, England
[9] Royal Wolverhampton Hosp NHS Trust, Dept Rheumatol, Wolverhampton WV10 0QP, England
[10] Univ Manchester, Manchester Acad Hlth Sci Ctr, Fac Biol Med & Hlth,Ctr Musculoskeletal Res, Sch Biol Sci,Div Musculoskeletal & Dermatol Sci, Manchester, England
关键词
Rheumatic diseases; Digital health; Patient education as topic; Health knowledge; Attitudes; Practice; Self-management; SOCIAL MEDIA; CARE PROFESSIONALS; PATIENT; COMMUNICATION; INFOGRAPHICS;
D O I
10.1007/s11926-024-01157-6
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Purpose of ReviewThis paper explored the potential of digital health in idiopathic inflammatory myopathies (IIMs), with a focus on self-management. Digital self-management technology includes tailored treatment plans, symptom tracking, educational resources, enhanced communication, and support for long-term planning.Recent FindingsAfter arguing the importance of digital health in IIMs management, from diagnosis until treatment, our literature review revealed a notable gap in research focusing on the efficacy of digital self-management interventions for individuals with IIMs, with no randomised controlled trials or observational studies addressing this topic.SummaryOur review further highlighted the significant unmet need for research in self-management interventions for individuals with IIMs. The absence of studies underscores the necessity for collaborative efforts to address this gap and develop personalised, effective strategies for managing IIMs using digital technology. Individuals with IIMs deserve tailored self-management approaches akin to those available for other rheumatic and musculoskeletal diseases.
引用
收藏
页码:383 / 391
页数:9
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