End-of-life preferences of people with advanced chronic obstructive pulmonary disease

被引:0
|
作者
Mendes, M. Aurora [1 ,2 ,3 ,4 ]
Muijsenberg, Anouk J. L. [5 ,6 ,7 ]
Houben-Wilke, Sarah [5 ]
Houben, Carmen H. M. [8 ]
Spruit, Martijn A. [5 ,7 ,9 ]
Marques, Alda [2 ]
Janssen, Daisy J. A. [3 ,4 ,5 ,6 ]
机构
[1] Unidade Local Saude Regiao Aveiro ULSRA, Pulmonol, Aveiro, Portugal
[2] Univ Aveiro, Sch Hlth Sci ESSUA, Resp Res & Rehabil Lab Lab3R, Aveiro, Portugal
[3] Univ Aveiro, Inst Biomed iBiMED, Aveiro, Portugal
[4] Maastricht Univ, Fac Hlth Med & Life Sci, Dept Hlth Serv Res, Maastricht, Netherlands
[5] Ciro, Dept Res & Dev, Horn, Netherlands
[6] Maastricht Univ, Dept Family Med, Care & Publ Hlth Res Inst, Fac Hlth Med & Life Sci, Maastricht, Netherlands
[7] Maastricht Univ, Fac Hlth Med & Life Sci, NUTRIM Sch Nutr & Translat Res Metab, Maastricht, Netherlands
[8] VieCuri Med Ctr, Dept Med Psychol, Venlo, Netherlands
[9] Maastricht Univ, Med Ctr, Dept Resp Med, Maastricht, Netherlands
关键词
Chronic obstructive pulmonary disease; Palliative Care; End of life care; Advance Care Planning; DEATH; CARE;
D O I
10.1136/spcare-2024-005067
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Objectives To identify end-of-life preferences of people with advanced chronic obstructive pulmonary disease (COPD) and to compare characteristics between those who wish to discuss the end-of-life and those who do not.Methods An analysis of the baseline data of a randomised controlled trial was performed including people with COPD GOLD stages III-IV or former quadrant D with modified Medical Research Council questionnaire grade >= 2, after hospital discharge following an exacerbation. Participants were interviewed using the End-of-Life Preferences Interview.Results A total of 165 individuals (53% men; 68 +/- 9 years old; 55% care dependent) were included. Most participants wished to take part in shared decision-making (78%), to be informed about a short life expectancy (82%), to discuss the end-of-life (82%), to have loved ones around at death (87%) and to choose when to die (70%). They also reported accepting opioids (74%). Preferences for who to provide physical care, the place, consciousness and atmosphere at death as well as life-sustaining treatments were heterogeneous. Participants who wanted to discuss the end-of-life had a significantly higher educational level (p=0.030) and worse health status than participants who did not (p=0.007).Conclusions End-of-life preferences of people with advanced COPD were heterogeneous, however, most wished to discuss it, especially those with higher educational level and worse health status.Trial registration number NTR3940.
引用
收藏
页码:134 / 140
页数:7
相关论文
共 50 条
  • [1] End-of-Life Strategies among Patients with Advanced Chronic Obstructive Pulmonary Disease
    Gershon, Andrea S.
    Maclagan, Laura C.
    Luo, Jin
    To, Teresa
    Kendzerska, Tetyana
    Stanbrook, Matthew B.
    Bourbeau, Jean
    Etches, Jacob
    Aaron, Shawn D.
    AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, 2018, 198 (11) : 1389 - 1396
  • [2] End-of-life care in chronic obstructive pulmonary disease
    Anthonisen, Nick R.
    CANADIAN RESPIRATORY JOURNAL, 2008, 15 (05) : 233 - 234
  • [3] End-of-life care for people with chronic obstructive pulmonary disease: a scoping review protocol
    Minami, Kotoko
    Unozawa, Chihiro
    Matsunaga, Arina
    Kamei, Tomoko
    SYSTEMATIC REVIEWS, 2024, 13 (01)
  • [4] End-of-life care for patients with advanced lung cancer and chronic obstructive pulmonary disease
    Okauchi, Shinichiro
    Sasatani, Yuika
    Satoh, Hiroaki
    POLISH ARCHIVES OF INTERNAL MEDICINE-POLSKIE ARCHIWUM MEDYCYNY WEWNETRZNEJ, 2019, 129 (06): : 436 - 436
  • [5] End-of-life care in patients with chronic obstructive pulmonary disease
    Steel, A.
    Goldring, J.
    BRITISH JOURNAL OF HOSPITAL MEDICINE, 2015, 76 (01) : C10 - C13
  • [6] Improving end-of-life care for patients with chronic obstructive pulmonary disease
    Sorenson, Helen M.
    THERAPEUTIC ADVANCES IN RESPIRATORY DISEASE, 2013, 7 (06) : 320 - 326
  • [7] Recommendations for End-Of-Life Care in Patients with Chronic Obstructive Pulmonary Disease
    Escarrabill, Joan
    Soler Cataluna, Juan Jose
    Hernandez, Carme
    Servera, Emilio
    ARCHIVOS DE BRONCONEUMOLOGIA, 2009, 45 (06): : 297 - 303
  • [8] Comparison of end-of-life care in people with chronic obstructive pulmonary disease or lung cancer: A systematic review
    Butler, Stacey J.
    Ellerton, Lauren
    Gershon, Andrea S.
    Goldstein, Roger S.
    Brooks, Dina
    PALLIATIVE MEDICINE, 2020, 34 (08) : 1030 - 1043
  • [9] Palliative care or end-of-life care in advanced chronic obstructive pulmonary disease: a prospective community survey
    White, Patrick
    White, Suzanne
    Edmonds, Polly
    Gysels, Marjolein
    Moxham, John
    Seed, Paul
    Shipman, Cathy
    BRITISH JOURNAL OF GENERAL PRACTICE, 2011, 61 (587): : e362 - e370
  • [10] People with chronic obstructive pulmonary disease at the end of life: A review of the literature
    Goodridge, Donna
    INTERNATIONAL JOURNAL OF PALLIATIVE NURSING, 2006, 12 (08) : 390 - 396