Empowering Support for Family Members of Patients With Traumatic Brain Injury During the Acute Care: Insights From Family Members and Nurses

被引:1
作者
Lindlof, Julia [1 ]
Turunen, Hannele [1 ,2 ]
Coco, Kirsi [1 ]
Huhtakangas, Justiina [3 ,4 ]
Verhaeghe, Sofie [5 ,6 ,7 ]
Vaelimaki, Tarja [1 ]
机构
[1] Univ Eastern Finland, Dept Nursing Sci, Kuopio, Finland
[2] Kuopio Univ Hosp, Kuopio, Finland
[3] Helsinki Univ Hosp, Helsinki, Finland
[4] Univ Helsinki, Helsinki, Finland
[5] Univ Ghent, Univ Ctr Nursing & Midwifery, Fac Med & Hlth Sci, Dept Publ Hlth & Primary Care, Ghent, Belgium
[6] VIVES Univ Coll, Dept Nursing, Roeselare, Belgium
[7] Univ Hasselt, Fac Med & Life Sci, Hasselt, Belgium
关键词
acute care; empowering support; family members; neurological care; neurosurgical care; nurses; patients with traumatic brain injury; practice development; qualitative approaches; QUALITATIVE RESEARCH; CAREGIVERS;
D O I
10.1111/jan.16424
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
AimTo investigate the perceptions of family members (FMs) of patients with traumatic brain injury (TBI) and nurses on empowering support and its implementation during the acute phase within Finnish neurosurgical and neurological care in hospital settings, focusing on identifying similarities and differences in their viewpoints.DesignParticipatory qualitative descriptive study.MethodsData were collected from seven FMs and 11 nurses using the World Caf & eacute; method in November 2019. An abductive approach was employed for data analysis, combining deductive interpretation within the conceptual framework of empowering support and inductive content analysis.ResultsFour main themes were identified: (1) FMs' diverse information and guidance needs of TBI, treatment and its impact on family life, (2) support based on empowering FMs in participation, competence and decision-making, (3) empowering FMs through collaborative nursing practices and interprofessional support, and (4) internal and external hospital support enhancing and promoting the empowerment of FMs.ConclusionThe perceptions of FMs and nurses regarding empowering support were largely consistent, yet diverged in its implementation in nursing practice. Nurses play a crucial role in fostering the empowerment of FMs; however, further research is needed to explore the impact of organisational and community factors on the implementation of empowering support.ImpactOur study contributes to advancing nursing practices by underscoring the necessity for a paradigm shift towards a family-centred approach. Furthermore, it emphasises the urgency for standardising nursing practices to ensure equitable access to empowering support for FMs, applicable across various care settings for patients with TBI.Public ContributionThis review is part of a larger research project in which FMs of patients with TBI and nurses were involved in designing the project.Reporting MethodThis study was reported using the Consolidated Criteria for Reporting Qualitative Checklist for qualitative studies.
引用
收藏
页数:16
相关论文
共 50 条
[41]   Information and support needs of adult family members of patients in intensive care units: an Iranian perspective [J].
Bandari, Razieh ;
Heravi-Karimooi, Majideh ;
Rejeh, Nahid ;
Mirmohammadkhani, Majid ;
Vaismoradi, Mojtaba ;
Snelgrove, Sherrill .
JOURNAL OF RESEARCH IN NURSING, 2015, 20 (05) :401-422
[42]   Care quality and satisfaction at the cancer hospital - a questionnaire study of older patients with cancer and their family members [J].
Launonen, Minna ;
Vehvilainen-Julkunen, Katri ;
Mikkonen, Santtu ;
Kvist, Tarja .
BMC HEALTH SERVICES RESEARCH, 2024, 24 (01)
[43]   Family members integration in patients' care in haematology units: a new application of proximology [J].
Amblard-Manhes, E. ;
Fedor, M. -C. ;
Belgacem, B. ;
Brugnon, D. ;
Nore, F. ;
Gironde, M. ;
Bay, J. -O. ;
Hermet, R. ;
Guyotat, D. ;
Bezy, O. ;
Gerbaud, L. ;
Tournilhac, O. .
BULLETIN DU CANCER, 2009, 96 :S109-S114
[44]   Roles of nurse aides and family members in acute patient care in Taiwan [J].
Tzeng, HM .
JOURNAL OF NURSING CARE QUALITY, 2004, 19 (02) :169-175
[45]   Acute Physiologic Stress and Subsequent Anxiety Among Family Members of ICU Patients [J].
Beesley, Sarah J. ;
Hopkins, Ramona O. ;
Holt-Lunstad, Julianne ;
Wilson, Emily L. ;
Butler, Jorie ;
Kuttler, Kathryn G. ;
Orme, James ;
Brown, Samuel M. ;
Hirshberg, Eliotte L. .
CRITICAL CARE MEDICINE, 2018, 46 (02) :229-235
[46]   The Caring Experience of Family Caregivers for Patients of Living Donor Liver Transplantation from the Family Members [J].
Bang, Miseon ;
Kwon, Suhye .
JOURNAL OF KOREAN ACADEMY OF NURSING, 2022, 52 (04) :435-450
[47]   ACUTE CARE AFTER PEDIATRIC TRAUMATIC BRAIN INJURY: A QUALITATIVE STUDY OF THE FAMILY PERSPECTIVE [J].
Moore, M. ;
Robinson, G. ;
Mink, R. ;
Hudson, K. ;
Dotolo, D. ;
Gooding, T. ;
Ramirez, A. ;
Zatzick, D. ;
Vavilala, M. .
JOURNAL OF NEUROTRAUMA, 2014, 31 (12) :A59-A59
[48]   How does information influence hope in family members of traumatic coma patients in intensive care unit? [J].
Verhaeghe, Sofie T. L. ;
van Zuuren, Florence J. ;
Defloor, Tom ;
Duijnstee, Mia S. H. ;
Grypdonck, Mieke H. F. .
JOURNAL OF CLINICAL NURSING, 2007, 16 (08) :1488-1497
[49]   Intentions of nurses and nursing students to tell the whole truth to patients and family members [J].
Tabak, Nili ;
Itzhaki, Michal ;
Sharon, Dganit ;
Barnoy, Sivia .
JOURNAL OF CLINICAL NURSING, 2013, 22 (9-10) :1434-1441
[50]   Bridging Experience and Practice: A Grounded Theory Study of Nurses' Hospitalisation Experiences as Patients or Family Members [J].
Lee, Won ;
Jang, Seung Gyeong ;
Pyo, Jeehee ;
Ock, Minsu ;
Choi, Eun Young .
JOURNAL OF ADVANCED NURSING, 2025,