From a concept to a theory: The six eras of quality of life research and application

被引:5
|
作者
Verdugo, Miguel Angel [1 ,3 ]
Schalock, Robert L. [2 ]
机构
[1] Univ Salamanca, INICO, Salamanca, Spain
[2] Hastings Coll Law, Psychol Dept, Hastings, NE USA
[3] Univ Salamanca, Inst Community Inclus, Fac Psychol, Avda Merced 109-131, Salamanca 37005, Spain
关键词
Quality of life; Intellectual and developmental disabilities; Theory; Measurement; Applications; INTELLECTUAL DISABILITIES; CONCEPTUALIZATION; INDICATORS; VALIDATION; PEOPLE;
D O I
10.1016/j.ridd.2024.104763
中图分类号
G76 [特殊教育];
学科分类号
040109 ;
摘要
This article describes the evolution of the quality of life concept through the lens of six distinct eras. Each era reflects a shared process in which multiple stakeholders, including persons with intellectual and developmental disabilities and researchers, have played a significant role. Across these six eras, research on quality of life has evolved from operationalizing a concept to developing a theory. As described in the article, the first three eras resulted in formulating conceptualization, measurement, and application principles; developing quality of life conceptual and operational models; and constructing reliable and valid instruments to assess quality of life domains or domain-referenced indicators. The application era has focused on applying the concept of quality of life and its measurement, supports provision, conceptualization and theory, and systemic change. The final two eras have involved theory development and theory confirmation.
引用
收藏
页数:9
相关论文
共 50 条
  • [41] The Use of Quality of Life Scores for Monitoring and Reporting, Quality Improvement, and Research
    Schalock, R. L.
    Baker, A.
    Claes, C.
    Gonzalez, J.
    Malatest, R.
    van Loon, J.
    Verdugo, M. A.
    Wesley, G.
    JOURNAL OF POLICY AND PRACTICE IN INTELLECTUAL DISABILITIES, 2018, 15 (03) : 176 - 182
  • [42] Theory-based approaches to the concept of life
    El-Hani, Charbel Nino
    JOURNAL OF BIOLOGICAL EDUCATION, 2008, 42 (04) : 147 - 149
  • [43] The impact of epilepsy on quality of life: Findings from a European survey
    Strzelczyk, Adam
    Aledo-Serrano, Angel
    Coppola, Antonietta
    Didelot, Adrien
    Bates, Elizabeth
    Sainz-Fuertes, Ricardo
    Lawthom, Charlotte
    EPILEPSY & BEHAVIOR, 2023, 142
  • [44] Concept for quality of life measurement in patients suffering from chronic sinusitis.
    Maune, S
    Rudert, H
    Heissenberg, MC
    Schmidt, C
    Eggers, S
    Landmann, K
    Küchler, T
    LARYNGO-RHINO-OTOLOGIE, 1999, 78 (09) : 475 - 480
  • [45] QUALITY-OF-LIFE - AN OVERVIEW OF THE CONCEPT AND MEASURES
    DEDHIYA, S
    KONG, SX
    PHARMACY WORLD & SCIENCE, 1995, 17 (05): : 141 - 148
  • [46] Life Quality: More than Just a Concept
    Robaina Becerra, Hilda
    Fernandez Vidal, Ana Teresa
    Ramirez Perez, Alicia del Rosario
    MEDISUR-REVISTA DE CIENCIAS MEDICAS DE CIENFUEGOS, 2011, 9 (05): : 420 - 423
  • [47] THE DILEMMAS OF THE 'QUALITY OF LIFE' CONCEPT IN PSYCHOLOGICAL PRACTICE
    Laranjeira, Carlos Antonio
    PSYCHOLOGIA, 2008, 54 (04) : 304 - 318
  • [48] THEORETICAL REVIEW AND MEASUREMENT OF THE QUALITY OF LIFE CONCEPT
    Escobar Ramirez, Aida
    Fitch Osuna, Jesus Manuel
    ACE-ARCHITECTURE CITY AND ENVIRONMENT, 2013, 8 (22): : 99 - 121
  • [49] Is quality of life a useful concept for companion animals?
    Taylor, K. D.
    Mills, D. S.
    ANIMAL WELFARE, 2007, 16 : 55 - 65
  • [50] Assessing quality of life in stuttering treatment outcomes research
    Yaruss, J. Scott
    JOURNAL OF FLUENCY DISORDERS, 2010, 35 (03) : 190 - 202