Survival to Young Adulthood Among Individuals With Congenital Heart Defects and Genetic Syndromes: Congenital Heart Survey to Recognize Outcomes, Needs, and Well-Being

被引：1
|
作者：
Downing, Karrie F. [1 ]
Lin, Angela E. [2 ]
Nembhard, Wendy N. [3 ,4 ]
Rose, Charles E. [1 ]
Andrews, Jennifer G. [5 ]
Goudie, Anthony [6 ]
Klewer, Scott E. [5 ]
Oster, Matthew E. [1 ,7 ,8 ]
Farr, Sherry L. [1 ]
机构：
[1] CDCP, Natl Ctr Birth Defects & Dev Disabil, 4770 Buford Hwy,Mailstop S106-3, Atlanta, GA 30341 USA
[2] Massachusetts Gen Hosp Children, Med Genet, Boston, MA USA
[3] Univ Arkansas Med Sci, Fay W Boozman Coll Publ Hlth, Dept Epidemiol, Little Rock, AR USA
[4] Univ Arkansas Med Sci, Arkansas Ctr Birth Defects Res & Prevent, Little Rock, AR USA
[5] Univ Arizona, Dept Pediat, Tucson, AZ USA
[6] Univ Arkansas Med Sci, Fay W Boozman Coll Publ Hlth, Dept Hlth Policy & Management, Little Rock, AR USA
[7] Childrens Healthcare Atlanta, Atlanta, GA USA
[8] Emory Univ, Sch Med, Atlanta, GA USA
来源：
JOURNAL OF THE AMERICAN HEART ASSOCIATION | 2024年 / 13卷 / 15期
关键词：
congenital heart defects; 22q11 deletion syndrome; genetic syndromes; mortality; survival; trisomy syndromes; Turner syndrome; DOWN-SYNDROME; SURGERY;
D O I：
10.1161/JAHA.124.036049
中图分类号：
R5 [内科学];
学科分类号：
1002 ; 100201 ;
摘要：
引用
收藏
页数：3
相关论文
共 26 条
  • [21] Peer support among parents of children with congenital heart defects: A qualitative analysis of written responses submitted via an online survey
    Carlsson, Tommy
    Klarare, Anna
    Mattsson, Elisabet
    JOURNAL OF ADVANCED NURSING, 2020, 76 (12) : 3528 - 3536
  • [22] Prevalence and correlates of successful transfer from pediatric to adult health care among a cohort of young adults with complex congenital heart defects
    Reid, GJ
    Irvine, MJ
    McCrindle, BW
    Sananes, R
    Ritvo, PG
    Siu, SC
    Webb, GD
    PEDIATRICS, 2004, 113 (03) : E197 - E205
  • [23] Congenital heart defects among Down's syndrome cases: an updated review from basic research to an emerging diagnostics technology and genetic counselling
    Asim, Ambreen
    Agarwal, Sarita
    JOURNAL OF GENETICS, 2021, 100 (02)
  • [24] Congenital heart defects among Down’s syndrome cases: an updated review from basic research to an emerging diagnostics technology and genetic counselling
    Ambreen Asim
    Sarita Agarwal
    Journal of Genetics, 2021, 100
  • [25] Racial and Ethnic Disparities in Health Care Usage and Death by Neighborhood Poverty Among Individuals With Congenital Heart Defects, 4 US Surveillance Sites, 2011 to 2013
    Raskind-Hood, Cheryl L.
    Kancherla, Vijaya
    Ivey, Lindsey C.
    Rodriguez III, Fred H.
    Sullivan, Anaclare M.
    Lui, George K.
    Botto, Lorenzo
    Feldkamp, Marcia
    Li, Jennifer S.
    D'Ottavio, Alfred
    Farr, Sherry L.
    Glidewell, Jill
    Book, Wendy M.
    JOURNAL OF THE AMERICAN HEART ASSOCIATION, 2024, 13 (11):
  • [26] Prevalence and risk factors of congenital heart defects among live births: a population-based cross-sectional survey in Shaanxi province, Northwestern China
    Leilei Pei
    Yijun Kang
    Yaling Zhao
    Hong Yan
    BMC Pediatrics, 17
123