Navigating childhood hearing loss: the experiences of parents, grandparents and siblings

PurposeThis study aimed to explore the impact of childhood hearing loss on the family unit and their resulting intervention needs.Materials & MethodsQualitative descriptive methodology was used, with in-depth interviews analysed using reflexive thematic analysis. Four family units of children with hearing loss participated in the study, including parents (n = 5), grandparents (n = 7), and siblings (n = 5).ResultsFive themes were developed from interview data: (1) the daily grind; (2) we're all in this together; (3) family dynamics; (4) the early intervention experience and (5) personal growth and adaptations. Family members were impacted in multi-faceted ways and identified informational and emotional intervention needs, with an integrative theme highlighting the emotional toll of childhood hearing loss on families.ConclusionsEarly intervention services have a crucial role in addressing third-party disability through a multi-disciplinary service delivery model that addresses the needs of all family members, beyond the child with hearing loss. The diagnosis and management of childhood hearing loss takes an emotional toll on the entire family unit including parents, grandparents, and siblings.Parents, grandparents, and siblings experience a broad ranging and pervasive impact to daily functioning and family dynamics because of hearing loss.It is essential to move beyond a child-centred approach and adopt a truly family-centred approach which both assesses and targets the unique needs of all family members.