Data Model for the Comprehensive Management of Biobanks and Its Contribution to Personalized Medicine

被引:1
|
作者
Sanchez-Lopez, Ana Maria [1 ,2 ]
Catalina, Purificacion [1 ]
Franco, Fernando [1 ]
Panadero-Fajardo, Sonia [1 ]
Rejon, Juan David [1 ]
Romero-Sanchez, Maria Concepcion [1 ]
Puerta-Puerta, Jose Manuel [1 ,3 ]
Aguilar-Quesada, Rocio [1 ]
机构
[1] Andalusian Publ Hlth Syst Biobank, Coordinating Node, Granada 18016, Spain
[2] Inst Invest Biosanit Ibs GRANADA, Granada 18012, Spain
[3] Hosp Univ Virgen Nieves, Unidad Gest Clin Hematol & Hemoterapia, Granada 18014, Spain
来源
JOURNAL OF PERSONALIZED MEDICINE | 2024年 / 14卷 / 07期
关键词
biobank; personalized medicine; data model; data harmonization; BIMS; IMPLEMENTATION; VERSION;
D O I
10.3390/jpm14070668
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Biobanks are infrastructures essential for research involving multi-disciplinary teams and an increasing number of stakeholders. In the field of personalized medicine, biobanks play a key role through the provision of well-characterized and annotated samples protecting at the same time the right of donors. The Andalusian Public Health System Biobank (SSPA Biobank) has implemented a global information management system made up of different modules that allow for the recording, traceability and monitoring of all the information associated with the biobank operations. The data model, designed in a standardized and normalized way according to international initiatives on data harmonization, integrates the information necessary to guarantee the quality of results from research, benefiting researchers, clinicians and donors.
引用
收藏
页数:11
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