Impact of pediatric inflammatory bowel disease on caregivers' work productivity: A multicenter study by the SEGHNP

Objectives/BackgroundPediatric inflammatory bowel disease (PIBD) poses significant challenges not only to patients but also to their families, particularly affecting the work productivity of caregivers. This Spanish multicenter study aims to elucidate the extent of this impact.Materials and MethodsA cross-sectional, multicenter study was conducted between February 2021 and June 2023, involving parents or caregivers of PIBD patients aged 10-18 years. The study utilized the Work Productivity and Activity Impairment (WPAI) questionnaires alongside assessing disease activity and socioeconomic status to quantify work productivity loss and its economic implications.ResultsThe study included 370 patients from 37 centers, highlighting a significant loss of work productivity among caregivers, especially mothers. The global unemployment rate was notably higher in this group compared to national averages (22.9% vs. 13.8%), particularly among females (30.7% vs. 13.7%), with absenteeism and presenteeism rates (26.4% and 39.9%) significantly impacting the caregivers' ability to work. The study also identified active disease and treatment with biologics or steroids as risk factors for increased work productivity loss.ConclusionsCaregivers of children with inflammatory bowel disease face considerable challenges in maintaining employment, with a notable economic impact due to lost work hours. The findings underscore the need for targeted support and interventions to assist these families, suggesting potential areas for policy improvement and support mechanisms to mitigate the socioeconomic burden of PIBD on affected families. What is Known Pediatric inflammatory bowel disease (PIBD) imposes substantial burdens on the patients and their families, extending to various aspects of daily life, including parental employment.What is New Our study shows thatcaregivers of children with inflammatory bowel disease face considerablechallenges in maintaining employment, with a notable economic impact due tolost work hours. Two independent variables (being mother of a child with active disease) were significantly associated with work absenteeism, presenteeism, and the impact on nonwork activities. These findings highlight the need for targeted interventions to alleviate the economic strain associated with managing this condition.