Telemedicine in nutritional management of children with severe neurological impairment: implication for quality of life

被引:0
|
作者
Tagi, Veronica Maria [1 ,2 ]
Eletti, Francesca [1 ,2 ]
Dolor, Jonabell [1 ]
Zuccotti, Gianvincenzo [1 ,2 ]
Montanari, Chiara [1 ,2 ]
Verduci, Elvira [3 ,4 ]
机构
[1] Vittore Buzzi Childrens Hosp, Dept Pediat, Milan, Italy
[2] Univ Milan, Dept Biomed & Clin Sci, Milan, Italy
[3] Univ Milan, Dept Hlth Sci, Milan, Italy
[4] Univ Milan, Vittore Buzzi Childrens Hosp, Dept Pediat, Metab Dis Unit, Milan, Italy
来源
FRONTIERS IN NUTRITION | 2024年 / 11卷
关键词
neurological impairment; telemedicine; telehealth; nutrition; dysphagia; children; PEDIATRIC-GASTROENTEROLOGY; ENTERAL NUTRITION; NON-INFERIORITY; HEALTH; TELEHEALTH; CARE; ADOLESCENTS; GASTROSTOMY; GROWTH; HOME;
D O I
10.3389/fnut.2024.1452880
中图分类号
R15 [营养卫生、食品卫生]; TS201 [基础科学];
学科分类号
100403 ;
摘要
Children with severe neurological impairment (SNI) frequently present feeding problems requiring a close monitoring of their nutritional status. In addition to constant clinical monitoring of body composition and nutritional indexes in these patients, frequent reports of dietary intake and weight gain variations are useful to ensure proper nutritional management. Furthermore, non-oral feeding is often needed to avoid malnutrition or aspiration pneumonia, constantly necessitating medical assistance. Despite their necessity for frequent hospital accesses, these patients' disabilities represent an important obstacle to accessing care, generating anxiety and concern in children and their families. Telemedicine has proven to be a promising instrument for improving pediatric patients' healthcare in several fields. By breaking down geographical and temporal barriers, telehealth may represent a valuable tool to implement in clinical practice, in order to improve patients' outcomes and quality of life. The aim of this narrative review is to provide an overview of the main nutritional issues in children with SNI, the potential implications of telemedicine in their management and the available evidence regarding the effects and benefits of telehealth.
引用
收藏
页数:9
相关论文
共 50 条
  • [41] Parent-Reported Symptoms and Medications Used Among Children With Severe Neurological Impairment
    Feinstein, James A.
    Feudtner, Chris
    Blackmer, Allison B.
    Valuck, Robert J.
    Fairclough, Diane L.
    Holstein, Jacqueline
    Gregoire, LiseAnne
    Samay, Sadaf
    Kempe, Allison
    JAMA NETWORK OPEN, 2020, 3 (12)
  • [42] Quality of Life in Children with Hearing Impairment: Systematic Review and Meta-analysis
    Roland, Lauren
    Fischer, Caroline
    Tran, Kayla
    Rachakonda, Tara
    Kallogjeri, Dorina
    Lieu, Judith E. C.
    OTOLARYNGOLOGY-HEAD AND NECK SURGERY, 2016, 155 (02) : 208 - 219
  • [43] Impairment of executive function in Kenyan children exposed to severe falciparum malaria with neurological involvement
    Symon M Kariuki
    Amina Abubakar
    Charles RJC Newton
    Michael Kihara
    Malaria Journal, 13
  • [44] Sleep disturbances in children, adolescents, and young adults with severe psychomotor impairment: impact on parental quality of life and sleep
    Tietze, Anna L.
    Zernikow, Boris
    Michel, Erik
    Blankenburg, Markus
    DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY, 2014, 56 (12) : 1187 - 1193
  • [45] Dysphagia and Gastroesophageal Reflux Disease: Dilemmas in Diagnosis and Management in Children with Neurological Impairment
    Srivastava, Rajendu
    Jackson, W. Daniel
    Barnhart, Douglas C.
    PEDIATRIC ANNALS, 2010, 39 (04): : 225 - 231
  • [46] Pneumatosis intestinalis in a cohort of children with neurological impairment: A patient group with a management dilemma
    Awad, Karim
    Short, Melissa
    Niyogi, Anindya
    Hosie, Gareth
    Godse, Alok
    JOURNAL OF PAEDIATRICS AND CHILD HEALTH, 2017, 53 (07) : 663 - 666
  • [47] Quality Management in Design Telemedicine Service for Children in Home Mechanical Ventilation
    Formisano, M.
    Faiella, G.
    Vitullo, M. E.
    Dolcini, A.
    Clemente, F.
    2021 INTERNATIONAL CONFERENCE ON E-HEALTH AND BIOENGINEERING (EHB 2021), 9TH EDITION, 2021,
  • [48] Interrater reliability and agreement between children with visual impairment and their parents on participation and quality of life
    Elsman, Ellen B. M.
    Koel, Mitchel L. C.
    vanNispen, Ruth M. A.
    vanRens, Ger H. M. B.
    ACTA OPHTHALMOLOGICA, 2022, 100 (04) : 468 - 476
  • [49] Interventions to improve functioning, participation, and quality of life in children with visual impairment: a systematic review
    Elsman, Ellen B. M.
    Al Baaj, Mo
    van Rens, Gerardus H. M. B.
    Sijbrandi, Wencke
    van den Broek, Ellen G. C.
    van der Aa, Hilde P. A.
    Schakel, Wouter
    Heymans, Martijn W.
    de Vries, Ralph
    Vervloed, Mathijs P. J.
    Steenbergen, Bert
    van Nispen, Ruth M. A.
    SURVEY OF OPHTHALMOLOGY, 2019, 64 (04) : 512 - 557
  • [50] Quality of life of caregivers of children with visual impairment: A qualitative approach
    Lupon, Marta
    Armayones, Manuel
    Cardona, Genis
    RESEARCH IN DEVELOPMENTAL DISABILITIES, 2023, 138