Intensive Interdisciplinary Rehabilitation in the Pediatric Hematology/Oncology Setting: Feasibility and Perceived Benefit of the Acute Neurological Injury Service

被引:0
作者
Raches, Darcy [1 ]
Gajjar, Amar [2 ]
Robinson, Giles W. [2 ]
Ashford, Jason M. [1 ]
Bryndziar, Martina [1 ]
Huggins, April [1 ]
Lockett, Sherry [3 ]
Harris, Allison [3 ]
Taylor, Hannah [3 ]
Bursi, Ellen [3 ]
Conklin, Heather M. [1 ]
机构
[1] St Jude Childrens Res Hosp, Dept Psychol & Biobehav Sci, 262 Danny Thomas Pl, Memphis, TN 38105 USA
[2] St Jude Childrens Res Hosp, Div Neuro Oncol, 262 Danny Thomas Pl, Memphis, TN 38105 USA
[3] St Jude Childrens Res Hosp, Dept Rehabil Serv, 262 Danny Thomas Pl, Memphis, TN 38105 USA
关键词
pediatric hematology/oncology; interdisciplinary rehabilitation; posterior fossa syndrome; cerebellar mutism syndrome; POSTERIOR-FOSSA SYNDROME; RADIATION NECROSIS; CEREBELLAR MUTISM; RISK-FACTORS; CHILDREN; MULTIDISCIPLINARY; MEDULLOBLASTOMA; INTERVENTION; ONCOLOGY; OUTCOMES;
D O I
10.3390/cancers16172999
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Simple Summary Interdisciplinary rehabilitation more effectively promotes recovery from acquired brain injury than a single discipline approach. Little is known about the desirability and benefit of this approach for pediatric cancer patients. We show that an interdisciplinary approach within a specialized pediatric hematology/oncology hospital is manageable for caregivers of children with new cancer diagnoses. Parents found this approach helpful, including coordinated care planning, setting an interdisciplinary goal, parent brain injury education, cognitive assessment reports, and weekly cognitive intervention sessions. Parents wanted to have a peer mentor while managing new cancer diagnoses and later serve as a mentor for a newly diagnosed family. Other benefits of this approach should be explored.Abstract (1) Background: Intensive interdisciplinary rehabilitation services more effectively promote recovery from acquired brain injury than a single discipline approach. However, research literature is lacking regarding the perceived feasibility and utility of an interdisciplinary approach across disciplines for patients within a tertiary care pediatric hematology/oncology setting. (2) Methods: The Acute Neurological Injury (ANI) service applied an acquired brain injury/inpatient rehabilitation interdisciplinary approach to a pediatric hematology/oncology population, with a focus on interdisciplinary communication, shared goal setting, and coordinated transition planning. Caregivers whose children received coordinated ANI program care were interviewed regarding the perceived feasibility and utility of ANI program components. (3) Results: An interdisciplinary approach to a pediatric hematology/oncology population is feasible for caregivers and for providers of rehabilitation and psychosocial services within a tertiary care cancer hospital setting. Parents perceived benefits from aspects of this approach including coordinated interdisciplinary care planning, the implementation of an interdisciplinary goal, parent brain injury education, neuropsychological assessment reports, and weekly cognitive intervention sessions. Parents were interested in both having a peer mentor while managing new cancer diagnoses and later serving in a mentor role for a newly diagnosed family. (4) Conclusions: An interdisciplinary acquired brain injury approach to a pediatric hematology/oncology population is feasible with perceived benefits to families managing new cancer diagnoses.
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页数:12
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