Patient-reported outcomes measure for patients with cleft palate

被引:0
|
作者
Xia, Wenbo [1 ,2 ,3 ]
Du, Meijun [1 ,2 ,3 ]
Wu, Min [1 ,2 ,3 ]
Chen, Zehua [1 ,2 ,3 ]
Yang, Renjie [2 ,4 ,5 ]
Shi, Bing [1 ,2 ,3 ]
Huang, Hanyao [1 ,2 ,3 ]
机构
[1] Sichuan Univ, West China Hosp Stomatol, State Key Lab Oral Dis, Chengdu, Peoples R China
[2] Sichuan Univ, West China Hosp Stomatol, Natl Clin Res Ctr Oral Dis, Chengdu, Peoples R China
[3] Sichuan Univ, West China Hosp Stomatol, Dept Oral & Maxillofacial Surg, Chengdu, Peoples R China
[4] Sichuan Univ, West China Hosp Stomatol, State Key Lab Oral Dis, Chengdu, Peoples R China
[5] Sichuan Univ, West China Hosp Stomatol, Eastern Clin, Chengdu, Peoples R China
基金
中国博士后科学基金; 中国国家自然科学基金;
关键词
quality of life; cleft palate; patient-reported outcomes measure; velopharyngeal insufficiency; patient perception; QUALITY-OF-LIFE; INFORMAL CAREGIVERS; BERLIN QUESTIONNAIRE; SLEEP QUESTIONNAIRE; CARERQOL-INSTRUMENT; ASSESSMENT SCALE; CEREBRAL-PALSY; STOP-BANG; VALIDATION; VALIDITY;
D O I
10.3389/fpubh.2024.1469455
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Cleft palate presents multifaceted challenges impacting speech, hearing, appearance, and cognition, significantly affecting patients' quality of life (QoL). While surgical advancements aim to restore function and improve appearance, traditional clinical measures often fail to comprehensively capture patients' experiences. Patient-reported outcomes measure (PROMs) have emerged as crucial tools in evaluating QoL, offering insights into various aspects such as esthetic results, speech function, and social integration. This review explores PROMs relevant to cleft palate complications, including velopharyngeal insufficiency, oronasal fistulas, maxillary hypoplasia, sleep-disordered breathing, and caregiver QoL. Additionally, the review highlights the need for cleft palate-specific scales to better address the unique challenges faced by patients. By incorporating PROMs, healthcare providers can achieve more personalized, patient-centered care, improve communication, and enhance treatment outcomes. Future research should focus on developing and validating specialized PROMs to further refine patient assessments and care strategies.
引用
收藏
页数:9
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