A systematic review of digital access to post-diagnostic health and social care services for dementia

被引:1
作者
Watson, James [1 ]
Hanna, Kerry [2 ]
Talbot, Catherine [3 ]
Hansen, Marcus [4 ]
Cannon, Jacqueline [5 ]
Caprioli, Thais [1 ,6 ]
Gabbay, Mark [1 ,6 ]
Komuravelli, Aravind [7 ]
Eley, Ruth [8 ]
Tetlow, Hilary [6 ,8 ,9 ]
Giebel, Clarissa [1 ,6 ]
机构
[1] Univ Liverpool, Dept Primary Care & Mental Hlth, Liverpool, England
[2] Univ Liverpool, Sch Hlth Sci, Liverpool, England
[3] Bournemouth Univ, Ageing & Dementia Res Ctr, Bournemouth, England
[4] Liverpool John Moores Univ, Fac Business & Law, Liverpool, England
[5] Lewy Body Soc, Wigan, England
[6] NIHR Appl Res Collaborat North West Coast, Liverpool, England
[7] Natl Hlth Serv, Mersey Care NHS Fdn Trust, Liverpool, England
[8] Together Dementia Everyday TIDE, Liverpool, England
[9] Serv User Reference Forum SURF, Liverpool, England
关键词
care access; dementia; inequalities; systematic review; technology; unpaid carers; PEOPLE; TECHNOLOGY; CAREGIVERS; PROGRAM; ENGLAND;
D O I
10.1002/gps.6119
中图分类号
R592 [老年病学]; C [社会科学总论];
学科分类号
03 ; 0303 ; 100203 ;
摘要
ObjectivesFor many people with dementia and unpaid carers, using technology for care and support has become essential. Rapid proliferation of technology highlights the need to understand digital access to health and social care services for dementia. This mixed-methods systematic review aims to explore digital access to health and social care services for dementia, from the perspective of people with dementia and unpaid carers.MethodsNine electronic databases were searched in May 2023 for qualitative, quantitative, or mixed-method studies, published in English or German, focused on experiences of using technology-delivered health and social care services for people with dementia and unpaid carers. After removal of duplicates and screening, 44 empirical papers were included.ResultsFrom the 44 studies, findings were grouped into five categories, highlighting experiences for people with dementia and unpaid carers: (1) Adapting to technology, (2) Inequalities and variations in outcomes, (3) Impact on caring, (4) Impact on health, and (5) Impact on relationships. Proliferation of technology in care access emphasised the need for quick adaptation to technology and examination of its impact. The impact of such service delivery has evidenced mixed findings. There were improvements in the health and wellbeing of people with dementia and unpaid carers, and benefits for their dyadic relationship. However, using technology for health and social care access is not always possible and is often reliant on unpaid carers for support. Lower tech-literacy, lack of equipment or money to buy equipment and poor internet connection can impact the potential for positive outcomes.ConclusionsTechnology can bring great benefits: social inclusion, improved service access and care. However, using technology in service delivery in dementia needs careful thought. Professionals and service providers need to be cognizant of the complex nature of dementia, and the benefits and challenges of hybrid service delivery. Evidence emphasises benefits and challenges to the availability, implementation, use, of technology in health and social care access in dementia. Though there are issues, technology can help improve quality of life for people with dementia, can support carers to care, and facilitate positive relationships between unpaid carers and people with dementia. Proliferation of technology for care access was expedited during COVID-19, but has not been equally rolled out, making remote and disadvantaged groups less well-served. A hybrid delivery of services in which people are given choice of delivery method, and are supported in accessing and using technology, will better serve people with dementia and unpaid carers.
引用
收藏
页数:17
相关论文
共 93 条
  • [1] Alzheimers Research UK, 2023, Prevalence and incidence of dementia
  • [2] Anderson M, 2022, PLOS DIGIT HEALTH, V1, DOI 10.1371/journal.pdig.0000053
  • [3] Facing the digital divide into a dementia clinic during COVID-19 pandemic: caregiver age matters
    Arighi, Andrea
    Fumagalli, Giorgio Giulio
    Carandini, Tiziana
    Pietroboni, Anna Margherita
    De Riz, Milena Alessandra
    Galimberti, Daniela
    Scarpini, Elio
    [J]. NEUROLOGICAL SCIENCES, 2021, 42 (04) : 1247 - 1251
  • [4] Using the Double Diamond model to co-design a dementia caregivers telehealth peer support program
    Banbury, Annie
    Pedell, Sonja
    Parkinson, Lynne
    Byrne, Louise
    [J]. JOURNAL OF TELEMEDICINE AND TELECARE, 2021, 27 (10) : 667 - 673
  • [5] Implementing a peer-support programme by group videoconferencing for isolated carers of people with dementia
    Banbury, Annie
    Parkinson, Lynne
    Gordon, Steven
    Wood, Denise
    [J]. JOURNAL OF TELEMEDICINE AND TELECARE, 2019, 25 (09) : 572 - 577
  • [6] Use and uptake of technology by people with dementia and their supporters during the COVID-19 pandemic
    Barbosa, Ana
    Ferreira, Ana Rita
    Smits, Carolien
    Hegerath, Flora-Marie
    Vollmar, Horst
    Fernandes, Lia
    Craven, Michael P.
    Innes, Anthea
    Casey, Dympna
    Sezgin, Duygu
    Hopper, Louise
    oksnebjerg, Laila
    [J]. AGING & MENTAL HEALTH, 2024, 28 (01) : 83 - 94
  • [7] Rural Caregivers: Identification of Informational Needs Through Telemedicine Questions
    Bardach, Shoshana H.
    Gibson, Allison
    Parsons, Kelly
    Stauffer, April
    Jicha, Gregory A.
    [J]. JOURNAL OF RURAL HEALTH, 2021, 37 (02) : 406 - 411
  • [8] Adaptation of an online training and support program for caregivers of people with dementia to Indian cultural setting
    Baruah, Upasana
    Loganathan, Santosh
    Shivakumar, Prafulla
    Pot, Anne Margriet
    Mehta, Kala M.
    Gallagher-Thompson, Dolores
    Dua, Tarun
    Varghese, Mathew
    [J]. ASIAN JOURNAL OF PSYCHIATRY, 2021, 59
  • [9] Feasibility and preliminary effectiveness of an online training and support program for caregivers of people with dementia in India: a randomized controlled trial
    Baruah, Upasana
    Varghese, Mathew
    Loganathan, Santosh
    Mehta, Kala M.
    Gallagher-Thompson, Dolores
    Zandi, Diana
    Dua, Tarun
    Pot, Anne Margriet
    [J]. INTERNATIONAL JOURNAL OF GERIATRIC PSYCHIATRY, 2021, 36 (04) : 606 - 617
  • [10] Technology-Based Counselling for People with Dementia and Their Informal Carers: A Systematic Review and Meta-Analysis
    Bauernschmidt, Dorothee
    Hirt, Julian
    Langer, Gero
    Meyer, Gabriele
    Unverzagt, Susanne
    Wilde, Fabian
    Wittmann, Janina
    Bieber, Anja
    [J]. JOURNAL OF ALZHEIMERS DISEASE, 2023, 93 (03) : 891 - 906