Evaluating a Digitally Delivered, Multi-Modal Intervention for Parents of Children with Type 1 Diabetes: A Proof-of-Concept Study

被引:0
作者
Tang, Tricia S. [1 ,2 ]
Sharif, Niloufar [3 ]
Ng, Crystal [4 ,5 ]
Mclean, Logan [2 ]
Klein, Gerri [6 ]
Amed, Shazhan [4 ,5 ]
机构
[1] Univ British Columbia, Fac Med, Dept Med, Vancouver, BC V5Z 1M9, Canada
[2] T1D Huddle Gordon & Leslie Diamond Hlth Care Ctr, Vancouver, BC V5Z 1M9, Canada
[3] Univ British Columbia, Sch Kinesiol, Fac Educ, Vancouver, BC V6T 1Z1, Canada
[4] Univ British Columbia, Fac Med, Dept Pediat, Vancouver, BC V6H 0B3, Canada
[5] BC Childrens Hosp, Vancouver, BC V6H 3N1, Canada
[6] BC Diabet, Vancouver, BC V5Y 3W2, Canada
来源
CHILDREN-BASEL | 2024年 / 11卷 / 09期
关键词
digital interventions; parents; peer support; type; 1; diabetes; YOUNG-CHILDREN; LIFE; SUPPORT; STRESS;
D O I
10.3390/children11091114
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
Background/Objectives: We examined the feasibility, acceptability, and potential mental health impact of a digital peer support intervention involving videoconferencing and text-based support for parents of school-aged children living with T1D and analyzed posts exchanged by parents on a texting platform. Methods: Eighteen parents were recruited for Huddle4Parents, a 4-month digital intervention that involved four synchronous group-based Zoom sessions coupled with an asynchronous 24/7 peer support texting room. Primary outcomes were feasibility (i.e., ability to recruit n = 20 parents and retain at least 75%) and acceptability (i.e., satisfaction ratings of "good" to "very good"). Baseline and 4-month assessments also measured diabetes distress, quality of life, and perceived support. A content analysis of text exchanges was also performed. Results: All 15 parents who completed the intervention attended at least one Huddle and posted at least one message on the 24/7 peer support room. The retention rate was 83%, with 100% indicating that they would "definitely" or "probably yes" recommend both platforms to other parents. They also rated the topics, facilitator, and overall Huddles as "good" to "excellent." No changes were observed for psychosocial endpoints. Of the 1084 texts posted, core support themes included the following: (1) dealing with technology and devices; (2) seeking and providing emotional support; (3) managing T1D in the school setting; and (4) exchanging tips and strategies. Conclusions: Huddle4Parents, a digital T1D caregiver intervention offering synchronous and asynchronous support, is feasible based on recruitment, participation, and attrition rates and acceptable as demonstrated by engagement and satisfaction ratings for the Huddles and 24/7 peer support room.
引用
收藏
页数:10
相关论文
共 50 条
[41]   Weekend-Based Parent-Group Intervention to Reduce Stress in Parents of Children and Adolescents with Type 1 Diabetes: A Pilot Study [J].
Ferrito, Lucia ;
Predieri, Barbara ;
Pjetraj, Dorina ;
Alessandrelli, Maria Cristina ;
Pagnini, Manuela ;
Iannilli, Antonio ;
Marino, Monica ;
Tombolini, Stefano ;
Pintaudi, Basilio ;
Lucisano, Giuseppe ;
Zani, Fabiana ;
Iughetti, Lorenzo ;
Nicolucci, Antonio ;
Cherubini, Valentino .
JOURNAL OF DIABETES RESEARCH, 2019, 2019
[42]   A Study on the Sense of Parental Competence, Health Locus of Control and Levels of Anxiety, Depression and Somatization in Parents of Children with Type 1 Diabetes: Evidence on a Possible Relationship [J].
Arcangeli, Ivonne Carosi ;
Celia, Giovanna ;
Girelli, Laura ;
Fioretti, Chiara ;
Cozzolino, Mauro .
JOURNAL OF CLINICAL MEDICINE, 2024, 13 (08)
[43]   Evaluation of the possible impact of the fear of hypoglycemia on diabetes management in children and adolescents with type 1 diabetes mellitus and their parents: a cross-sectional study [J].
Andreopoulou, Ourania ;
Kostopoulou, Eirini ;
Kotanidou, Eleni ;
Daskalaki, Sophia ;
Vakka, Angeliki ;
Galli-Tsinopoulou, Assimina ;
Spiliotis, Bessie E. .
HORMONES-INTERNATIONAL JOURNAL OF ENDOCRINOLOGY AND METABOLISM, 2024, 23 (03) :419-428
[44]   Camp-based multi-component intervention for families of young children with type 1 diabetes: A pilot and feasibility study [J].
Gupta, Olga T. ;
MacKenzie, Marsha ;
Burris, Angie ;
Jenkins, Bonnie B. ;
Collins, Nikki ;
Shade, Molly ;
Santa-Sosa, Eileen ;
Stewart, Sunita M. ;
White, Perrin C. .
PEDIATRIC DIABETES, 2018, 19 (04) :761-768
[45]   Low-Carbohydrate Diet among Children with Type 1 Diabetes: A Multi-Center Study [J].
Neuman, Vit ;
Plachy, Lukas ;
Pruhova, Stepanka ;
Kolouskova, Stanislava ;
Petruzelkova, Lenka ;
Obermannova, Barbora ;
Vyzralkova, Jana ;
Konecna, Petra ;
Vosahlo, Jan ;
Romanova, Martina ;
Pavlikova, Marketa ;
Sumnik, Zdenek .
NUTRIENTS, 2021, 13 (11)
[46]   A physical activity intervention for children with type 1 diabetes-steps to active kids with diabetes (STAK-D): a feasibility study [J].
Quirk, Helen ;
Glazebrook, Cris ;
Blake, Holly .
BMC PEDIATRICS, 2018, 18
[47]   The diabetes body project: Study protocol of a multi-site trial of a virtually delivered eating disorder prevention program for young women with type 1 diabetes [J].
Haugvik, Severina ;
Hennekes, Mareille ;
Stice, Eric ;
de Wit, Maartje ;
Toschi, Elena ;
Wisting, Line .
DIABETIC MEDICINE, 2024, 41 (09)
[48]   Challenges of optimizing glycaemic control in children with Type 1 diabetes: a qualitative study of parents' experiences and views [J].
Lawton, J. ;
Waugh, N. ;
Barnard, K. D. ;
Noyes, K. ;
Harden, J. ;
Stephen, J. ;
McDowell, J. ;
Rankin, D. .
DIABETIC MEDICINE, 2015, 32 (08) :1063-1070
[49]   The effects of suppressing inflammation by tofacitinib may simultaneously improve glycaemic parameters and inflammatory markers in rheumatoid arthritis patients with comorbid type 2 diabetes: a proof-of-concept, open, prospective, clinical study [J].
Di Muzio, Claudia ;
Di Cola, Ilenia ;
Panahi, Azadeh Shariat ;
Ursini, Francesco ;
Iagnocco, Annamaria ;
Giacomelli, Roberto ;
Cipriani, Paola ;
Ruscitti, Piero .
ARTHRITIS RESEARCH & THERAPY, 2024, 26 (01)
[50]   PRIORITY Trial: Results from a feasibility randomised controlled trial of a psychoeducational intervention for parents to prevent disordered eating in children and young people with type 1 diabetes [J].
Jones, Christina J. ;
Read, Rebecca ;
O'Donnell, Nicola ;
Wakelin, Katherine ;
John, Mary ;
Skene, Simon S. ;
Stewart, Rose ;
Hale, Lucy ;
Cooke, Debbie ;
Kanumakala, Shankar ;
Satherley, Rose-Marie .
DIABETIC MEDICINE, 2024, 41 (04)