From Isolation to Inclusion: Innovating Digital Health Solutions for Rare Diseases - The Potential of Crowd-based Requirement Engineering

被引：0

作者：

Hoelzer, Sabrina ^{[1
,2
,3
]}

机构：

[1] Ernst Abbe Hsch Jena, Dept Ind Engn, Jena, Germany

[2] Friedrich Schiller Univ, Fac Med, Jena, Germany

[3] Univ Hosp Jena, Ctr Rare Dis, Facial Nerve Ctr, Jena, Germany

来源：

32ND INTERNATIONAL REQUIREMENTS ENGINEERING CONFERENCE WORKSHOPS, REW 2024 | 2024年

关键词：

crowd-based Requirements Engineering; digital health; facial palsy; rare disease; inclusion; quality of life; empowerment; FEEDBACK;

D O I：

10.1109/REW61692.2024.00018

中图分类号：

TP [自动化技术、计算机技术];

学科分类号：

0812 ;

摘要：

This contribution outlines the vision of utilizing Crowd-Based Requirements Engineering to create or customize digital health solutions for those afflicted with rare diseases, centering on facial palsy. It proposes leveraging the crowd of patients, caregivers, and medical professionals to enhance the requirements engineering process and foster a supportive network, while simultaneously promoting inclusion and understanding among users. This approach further acknowledges the inherent challenges of engaging a diverse crowd to meet the specific needs of individuals with facial palsy, aiming to integrate their experiences directly into the development of impactful digital health solutions.

引用

页码：95 / 100

页数：6