Provider Perspectives of Long-Term Follow-Up Care of Patients with Severe Combined Immunodeficiency

被引：0
|
作者：
Ige, Kelsey [1 ]
Buchbinder, David [2 ]
Izadi, Neema [3 ]
Butte, Manish [4 ]
Chen, Xin-Hua [1 ]
Collins, Cathleen [5 ]
Cowan, Morton [1 ]
Dimitriades, Victoria [6 ]
Franck, Linda [1 ]
Nguyen, Kathy [1 ]
Shah, Ami [7 ]
Puck, Jennifer [1 ]
Smith, Heather [8 ]
Dorsey, Morna [1 ]
机构：
[1] Univ Calif San Francisco, San Francisco, CA USA
[2] Childrens Hosp Orange Cty, Orange, CA USA
[3] Univ Southern Calif, Childrens Hosp Los Angeles, Div Clin Immunol & Allergy, Los Angeles, CA USA
[4] Univ Calif Los Angeles, Div Immunol Allergy & Rheumatol, Dept Pediat, Los Angeles, CA USA
[5] Univ Calif San Diego, San Diego, CA USA
[6] Univ Calif Davis Hlth, Div Pediat Allergy Immunol & Rheumatol, Dept Pediat, Sacramento, CA USA
[7] Stanford Univ, Stanford, CA USA
[8] SCID Angels Life, Lakeland, FL USA
来源：
CLINICAL IMMUNOLOGY | 2024年 / 262卷
关键词：
Severe combined immunodeficiency; Long-term follow-up; Providers; Needs assessment; CalSCID;
D O I：
10.1016/j.clim.2024.110141
中图分类号：
R392 [医学免疫学]; Q939.91 [免疫学];
学科分类号：
100102 ;
摘要：
199
引用
收藏
页数：1
相关论文
共 50 条
  • [31] Congenital toxoplasmosis: Long-term ophthalmologic follow-up praised by patients
    Beraud, L.
    Rabilloud, M.
    Fleury, J.
    Wallon, M.
    Peyron, F.
    JOURNAL FRANCAIS D OPHTALMOLOGIE, 2013, 36 (06): : 494 - 498
  • [32] Long-term Follow-up of Patients' Status after Gastric Bypass
    James E Mitchell
    Kathryn L Lancaster
    Melissa A Burgard
    L Michael Howell
    Dean D Krahn
    Ross D Crosby
    Stephen A Wonderlich
    Blake A Gosnell
    Obesity Surgery, 2001, 11 : 464 - 468
  • [33] LONG-TERM FOLLOW-UP OF PATIENTS WITH ESSENTIAL BLEPHAROSPASM TREATED WITH INCOBOTULINUMTOXINA
    Wabbels, Bettina
    TOXICON, 2018, 156 : S112 - S112
  • [34] Botulinum toxin A in patients with oromandibular dystonia - Long-term follow-up
    Tan, EK
    Jankovic, J
    NEUROLOGY, 1999, 53 (09) : 2102 - 2107
  • [35] Long-term follow-up in adult patients after Fontan operation
    Tomkiewicz-Pajak, Lidia
    Hoffman, Piotr
    Trojnarska, Olga
    Bednarek, Jacek
    Plazak, Wojciech
    Pajak, Jacek Wladyslaw
    Olszowska, Maria
    Komar, Monika
    Podolec, Piotr Stanislaw
    KARDIOCHIRURGIA I TORAKOCHIRURGIA POLSKA, 2013, 10 (04): : 357 - 363
  • [36] Long-term follow-up of patients' status after gastric bypass
    Mitchell, JE
    Lancaster, KL
    Burgard, MA
    Howell, LM
    Krahn, DD
    Crosby, RD
    Wonderlich, SA
    Gosnell, BA
    OBESITY SURGERY, 2001, 11 (04) : 464 - 468
  • [37] Long-term follow-up in pediatric intensive care-a narrative review
    Quadir, Ashfaque
    Festa, Marino
    Gilchrist, Michelle
    Thompson, Kate
    Pride, Natalie
    Basu, Shreerupa
    FRONTIERS IN PEDIATRICS, 2024, 12
  • [38] Ascertaining Areas for Long-Term Follow-up of Bariatric Surgical Patients for Primary Care: A Narrative Review
    Mahawar, Kamal K.
    Hayes, Catherine
    Graham, Yitka N. H.
    BARIATRIC SURGICAL PRACTICE AND PATIENT CARE, 2020, 15 (02) : 63 - 72
  • [39] Haematopoietic stem cell transplantation for severe combined immunodeficiency: Long-term health outcomes and patient perspectives
    Lee, Adrian Y. S.
    Frith, Katie
    Schneider, Lilian
    Ziegler, John B.
    JOURNAL OF PAEDIATRICS AND CHILD HEALTH, 2017, 53 (08) : 766 - 770
  • [40] Long-term follow-up after bronchoscopic lung volume reduction treatment with coils in patients with severe emphysema
    Hartman, Jorine E.
    Klooster, Karin
    Gortzak, Kiki
    ten Hacken, Nick H. T.
    Slebos, Dirk-Jan
    RESPIROLOGY, 2015, 20 (02) : 319 - 326
12345