Provider Perspectives of Long-Term Follow-Up Care of Patients with Severe Combined Immunodeficiency

被引:0
|
作者
Ige, Kelsey [1 ]
Buchbinder, David [2 ]
Izadi, Neema [3 ]
Butte, Manish [4 ]
Chen, Xin-Hua [1 ]
Collins, Cathleen [5 ]
Cowan, Morton [1 ]
Dimitriades, Victoria [6 ]
Franck, Linda [1 ]
Nguyen, Kathy [1 ]
Shah, Ami [7 ]
Puck, Jennifer [1 ]
Smith, Heather [8 ]
Dorsey, Morna [1 ]
机构
[1] Univ Calif San Francisco, San Francisco, CA USA
[2] Childrens Hosp Orange Cty, Orange, CA USA
[3] Univ Southern Calif, Childrens Hosp Los Angeles, Div Clin Immunol & Allergy, Los Angeles, CA USA
[4] Univ Calif Los Angeles, Div Immunol Allergy & Rheumatol, Dept Pediat, Los Angeles, CA USA
[5] Univ Calif San Diego, San Diego, CA USA
[6] Univ Calif Davis Hlth, Div Pediat Allergy Immunol & Rheumatol, Dept Pediat, Sacramento, CA USA
[7] Stanford Univ, Stanford, CA USA
[8] SCID Angels Life, Lakeland, FL USA
关键词
Severe combined immunodeficiency; Long-term follow-up; Providers; Needs assessment; CalSCID;
D O I
10.1016/j.clim.2024.110141
中图分类号
R392 [医学免疫学]; Q939.91 [免疫学];
学科分类号
100102 ;
摘要
199
引用
收藏
页数:1
相关论文
共 50 条
  • [21] Long-Term Follow-Up in Childhood Cancer Survivors Position paper 2018 of the working group "long-term follow-up" of the Society of Pediatric Oncology and Hematology (GPOH) on long-term surveillance, long-term follow-up and late effect evaluation in pediatric oncology patients
    Langer, Thorsten
    Grabow, Desiree
    Kaatsch, Peter
    Creutzig, Ursula
    Eggert, Angelika
    Escherich, Gabriele
    Calaminus, Gabriele
    KLINISCHE PADIATRIE, 2018, 230 (06): : 291 - 298
  • [22] Long-term follow-up of a preschool experiment
    Schweinhart, Lawrence J.
    JOURNAL OF EXPERIMENTAL CRIMINOLOGY, 2013, 9 (04) : 389 - 409
  • [23] Results of a long-term follow-up of transsexuals
    Rauchfleisch, U
    Barth, D
    Battegay, R
    NERVENARZT, 1998, 69 (09): : 799 - 805
  • [24] Long-Term Follow-up of Vestibular Neuritis
    Mandala, Marco
    Nuti, Daniele
    BASIC AND CLINICAL ASPECTS OF VERTIGO AND DIZZINESS, 2009, 1164 : 427 - 429
  • [25] Long-term follow-up in patients with a history of (H)ELLP syndrome
    van Pampus, MG
    Wolf, H
    Mayruhu, G
    Treffers, PE
    Bleker, OP
    HYPERTENSION IN PREGNANCY, 2001, 20 (01) : 15 - 23
  • [26] Long-term follow-up of untreated patients with sleep apnoea syndrome
    Fisher, D
    Pillar, G
    Malhotra, A
    Peled, N
    Lavie, P
    RESPIRATORY MEDICINE, 2002, 96 (05) : 337 - 343
  • [27] Long-term follow-up study of patients with unilateral Moyamoya disease
    Hirotsune, N
    Meguro, T
    Kawada, S
    Nakashima, H
    Ohmoto, T
    CLINICAL NEUROLOGY AND NEUROSURGERY, 1997, 99 : S178 - S181
  • [28] Long-term follow-up of surgically treated gallbladder cancer patients
    Puhalla, H
    Wild, T
    Bareck, E
    Pokorny, H
    Ploner, M
    Soliman, T
    Stremitzer, S
    Depisch, D
    Laengle, F
    Gruenberger, T
    EUROPEAN JOURNAL OF SURGICAL ONCOLOGY, 2002, 28 (08): : 857 - 863
  • [29] DUPUYTRENS DISEASE - ANALYSIS OF 110 PATIENTS ON A LONG-TERM FOLLOW-UP
    REBELO, JS
    FERREIRA, JB
    BOLEOTOME, J
    EUROPEAN JOURNAL OF PLASTIC SURGERY, 1995, 18 (01) : 32 - 39
  • [30] Long-term follow-up in depressed patients treated with electroconvulsive therapy
    Johanson, A
    Gustafson, L
    Risberg, J
    Rosén, I
    Sjöbeck, M
    Silfverskiöld, P
    JOURNAL OF ECT, 2005, 21 (04) : 214 - 220