Provider Perspectives of Long-Term Follow-Up Care of Patients with Severe Combined Immunodeficiency

被引:0
|
作者
Ige, Kelsey [1 ]
Buchbinder, David [2 ]
Izadi, Neema [3 ]
Butte, Manish [4 ]
Chen, Xin-Hua [1 ]
Collins, Cathleen [5 ]
Cowan, Morton [1 ]
Dimitriades, Victoria [6 ]
Franck, Linda [1 ]
Nguyen, Kathy [1 ]
Shah, Ami [7 ]
Puck, Jennifer [1 ]
Smith, Heather [8 ]
Dorsey, Morna [1 ]
机构
[1] Univ Calif San Francisco, San Francisco, CA USA
[2] Childrens Hosp Orange Cty, Orange, CA USA
[3] Univ Southern Calif, Childrens Hosp Los Angeles, Div Clin Immunol & Allergy, Los Angeles, CA USA
[4] Univ Calif Los Angeles, Div Immunol Allergy & Rheumatol, Dept Pediat, Los Angeles, CA USA
[5] Univ Calif San Diego, San Diego, CA USA
[6] Univ Calif Davis Hlth, Div Pediat Allergy Immunol & Rheumatol, Dept Pediat, Sacramento, CA USA
[7] Stanford Univ, Stanford, CA USA
[8] SCID Angels Life, Lakeland, FL USA
关键词
Severe combined immunodeficiency; Long-term follow-up; Providers; Needs assessment; CalSCID;
D O I
10.1016/j.clim.2024.110141
中图分类号
R392 [医学免疫学]; Q939.91 [免疫学];
学科分类号
100102 ;
摘要
199
引用
收藏
页数:1
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