Views of general practice staff on sharing general practice data for research: a scoping review protocol

被引:0
作者
Green, Heidi [1 ,2 ]
Fabrianesi, Belinda [1 ]
Carolan, Lucy [1 ]
Braunack-Mayer, Annette [1 ]
机构
[1] Univ Wollongong, Australian Ctr Hlth Engagement Evidence & Values, Sch Hlth & Soc, Wollongong, NSW, Australia
[2] Univ Newcastle, Ctr Transformat Nursing Midwifery & Hlth Res, JBI Ctr Excellence, Gosford, NSW, Australia
关键词
electronic medical records; general practice; patient records for research; primary care; views; CARE;
D O I
10.11124/JBIES-23-00317
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Objective:The objective of this scoping review is to understand the range and types of evidence in relation to the views of general practitioner and other general practice staff on sharing general practice data for research purposes.Introduction:The use of general practice data for research has the potential to drive transformative improvements in health care. The vast amount of patient data collected in general practice is valuable and provides researchers with data to conduct large-scale studies and generate evidence that can inform policy decisions, support the development of personalized medicine, and enhance patient outcomes. However, despite there being clear benefits to using general practice data for research, there are also potential harms, such as data misuse, loss of trust between the general practitioner and patient, and data breaches.Inclusion criteria:This scoping review will focus on the views of general practice staff, including general practitioners, practice nurses, and practice managers, about sharing general practice data for the purposes of research. This scoping review will exclude sources of evidence that are conducted outside of the general practice setting, and papers that report on public, patient, or community views on data sharing.Methods:This scoping review will be conducted in accordance with JBI methodology for scoping reviews. A 3-step search strategy will be used to acquire both published and unpublished sources of evidence. Two reviewers will independently select sources of evidence in line with the inclusion and exclusion criteria. No limits on the date of the search or language will be applied. Data will be extracted and the results will be summarized descriptively and presented in a tabular format.Review registration:Open Science Framework https://osf.io/49yw5
引用
收藏
页码:2185 / 2191
页数:7
相关论文
共 19 条
[1]   A valuable approach to the use of electronic medical data in primary care research: Panning for gold [J].
Barnett, Stephen ;
Henderson, Joan ;
Hodgkins, Adam ;
Harrison, Christopher ;
Ghosh, Abhijeet ;
Dijkmans-Hadley, Bridget ;
Britt, Helena ;
Bonney, Andrew .
HEALTH INFORMATION MANAGEMENT JOURNAL, 2017, 46 (02) :51-57
[2]   Data Linkage: A powerful research tool with potential problems [J].
Bohensky, Megan A. ;
Jolley, Damien ;
Sundararajan, Vijaya ;
Evans, Sue ;
Pilcher, David V. ;
Scott, Ian ;
Brand, Caroline A. .
BMC HEALTH SERVICES RESEARCH, 2010, 10
[3]   Gathering data for decisions: best practice use of primary care electronic records for research [J].
Canaway, Rachel ;
Boyle, Douglas I. R. ;
Manski-Nankervis, Jo-Anne E. ;
Bell, Jessica ;
Hocking, Jane S. ;
Clarke, Ken ;
Clark, Malcolm ;
Gunn, Jane M. ;
Emery, Jon D. .
MEDICAL JOURNAL OF AUSTRALIA, 2019, 210 :S12-S16
[4]   The social licence for research: why care.data ran into trouble [J].
Carter, Pam ;
Laurie, Graeme T. ;
Dixon-Woods, Mary .
JOURNAL OF MEDICAL ETHICS, 2015, 41 (05) :404-409
[5]   Secondary use of clinical data: The Vanderbilt approach [J].
Danciu, Ioana ;
Cowan, James D. ;
Basford, Melissa ;
Wang, Xiaoming ;
Saip, Alexander ;
Osgood, Susan ;
Shirey-Rice, Jana ;
Kirby, Jacqueline ;
Harris, Paul A. .
JOURNAL OF BIOMEDICAL INFORMATICS, 2014, 52 :28-35
[6]   The need for research in primary care [J].
De Maeseneer, JM ;
van Driel, ML ;
Green, LA ;
van Weel, C .
LANCET, 2003, 362 (9392) :1314-1319
[7]  
Hodgkins AJ, 2020, AUST J GEN PRACT, V49, P145, DOI 10.31128/AJGP-07-19-5024
[8]  
Jussen I., 2023, Scholar Space
[9]   Physicians' Knowledge, Perceptions, and Attitudes Related to Patient Confidentiality and Data Sharing [J].
Karasneh, Reema ;
Al-Mistarehi, Abdel-Hameed ;
Al-Azzam, Sayer ;
Abuhammad, Sawsan ;
Muflih, Suhaib M. ;
Hawamdeh, Sahar ;
Alzoubi, Karem H. .
INTERNATIONAL JOURNAL OF GENERAL MEDICINE, 2021, 14 :721-731
[10]  
Page MJ, 2021, BMJ-BRIT MED J, V372, DOI [10.1136/bmj.n160, 10.1136/bmj.n71]