Challenges in Pediatric Home-Based Hospice and Palliative Care: A Case Series

被引：0

作者：

Jarrell, Jill Ann ^{[1
]}

Grossoehme, Daniel H.

Friebert, Sarah

Ajayi, Toluwalase A.

Thienprayoon, Rachel

Humphrey, Lisa

机构：

[1] Texas Childrens Hosp, Baylor Coll Med, 6621 Fannin St,Suite W 1990, Houston, TX 77030 USA

来源：

JOURNAL OF PAIN AND SYMPTOM MANAGEMENT | 2024年 / 68卷 / 04期

关键词：

Pediatrics; Home-based palliative care; Hospice; Telehealth; Access to care; Policy; PROVIDER-PRIORITIZED DOMAINS; OF-LIFE; CHILDREN; QUALITY; END; PARENTS;

D O I：

10.1016/j.jpainsymman.2024.06.027

中图分类号：

R19 [保健组织与事业（卫生事业管理）];

学科分类号：

摘要：

Pediatric home-based hospice and palliative care is a growing and important sub-field within the larger pediatric palliative care landscape. Despite research demonstrating the clinical and systemic efficacy of pediatric home-based hospice and palliative care, there remain barriers to its optimal development, implementation, and dissemination as well as best clinical practice knowledge gaps. This case series presents specific examples of ubiquitous challenges in pediatric home-based hospice and palliative care in hopes of guiding future research, education, advocacy, and program development efforts. J Pain Symptom Manage 2024;68:e319-e324. (c) 2024 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights are reserved, including those for text and data mining, AI training, and similar technologies.

引用

页码：e319 / e324

页数：6

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