Caregivers' experiences in helping individuals with severe and enduring mental health challenges integrate into the community: A qualitative descriptive study in Singapore

被引:3
作者
Goh, Yong-Shian [1 ,5 ]
Ow Yong, Jenna Qing Yun [1 ]
Ng, Chee Keong Vincent [2 ]
Li, Ziqiang [3 ]
Hu, Yanan [1 ]
Tam, Wai-San Wilson [1 ]
Ho, Su Hui Cyrus [4 ]
机构
[1] Natl Univ Singapore, Alice lee Ctr Nursing Studies, Yong Loo Lin Sch Med, Singapore, Singapore
[2] Allkin Singapore Ltd, Singapore, Singapore
[3] Inst Mental Hlth, Singapore, Singapore
[4] Natl Univ Singapore, Yong Loo Lin Sch Med, Dept Psychol Med, Singapore, Singapore
[5] Natl Univ Singapore, Alice Lee Ctr Nursing Studies, Clin Res Ctr, 10 Med Dr, Singapore 117597, Singapore
关键词
caregivers; community integration; experiences; mental health conditions; FAMILY CAREGIVERS; BURDEN; PEOPLE; EMPLOYMENT; REHABILITATION; RECOVERY; MODEL; CARE;
D O I
10.1111/jpm.13071
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
What is known about the subject Individuals with severe and enduring mental health challenges continued to consume mental health services for an average of 13 years as they needed multiple acute psychiatric admissions due to the challenges they experienced in their everyday activities. As caregivers of individuals with severe and enduring mental health challenges, they often bear the brunt of caregiving through their assistance with activities of daily living (ADL), providing emotional support and ensuring medication compliance for their loved ones. When caring for their loved ones, caregivers often reported psychological stress, social isolation and emotional exhaustion due to stressors such as uncertainty of the future, the lack of support from professional services and the isolation from their own social network and support mechanism.What the paper adds to existing knowledge Insights from this study revealed that caregivers for individuals with severe and enduring mental health challenges went through a lonely and exhausting journey fraught with psychological, physical, social and financial challenges, echoing the caregiving needs and the prevalence of the caregiver burden.What are the implications for practice Insights shared by the caregivers demonstrated the need for a centralised point of contact to navigate Singapore's fragmented mental healthcare sector. Peer-support groups should be further promoted because they offer the benefits of information exchange, mutual support and a sense of empowerment and hopefulness, which may help ease the caregiver burden. Life skills training, such as teaching how to communicate empathetically with family members, resolve conflicts using open communication, maintain a structured daily routine and solve pragmatic problems in daily life, is more critical for individuals with severe and enduring mental health challenges. This will help them learn how to manage their well-being, live independently, and stabilise their conditions. Lastly, public awareness campaigns should honour caregivers by highlighting their strength, resilience, and dedication. The state can provide financial assistance in the form of tax relief for their income per annum or caregiver allowance to alleviate the financial stress that caregivers are facing.
引用
收藏
页码:1120 / 1132
页数:13
相关论文
共 68 条
  • [1] Employment After Vocational Rehabilitation Predicts Decreased Health Care Utilization in Veterans With Mental Health Diagnoses
    Abraham, Kristen M.
    Chang, Ming-Un Myron
    Van, Tony
    Resnick, Sandra G.
    Zivin, Kara
    [J]. MILITARY MEDICINE, 2021, 186 (9-10) : 850 - 857
  • [2] Economic burden of caregiving for persons with severe mental illness in sub-Saharan Africa: A systematic review
    Addo, Rebecca
    Agyemang, Samuel Agyei
    Tozan, Yesim
    Nonvignon, Justice
    [J]. PLOS ONE, 2018, 13 (08):
  • [3] Agency for Integrated Care, 2023, SUPPORTING CAREGIVER
  • [4] Agency for Integrated Care, 2023, MEDICAL ESCORT TRANS
  • [5] The experiences of family caregivers of people with severe mental illness in the Middle East: A systematic review and meta-synthesis of qualitative data
    Alyafei, Aisha Hamed
    Alqunaibet, Taghrid
    Mansour, Hassan
    Ali, Afia
    Billings, Jo
    [J]. PLOS ONE, 2021, 16 (07):
  • [6] Angothu H., 2016, Indian Journal of Social Psychiatry, V32, P28, DOI [DOI 10.4103/0971-9962.176764, 10.4103/0971-9962]
  • [7] A qualitative exploration of the feasibility and acceptability of Meaning-Centered Psychotherapy for Cancer Caregivers
    Applebaum, A. J.
    Roberts, K. E.
    Lynch, K.
    Gebert, R.
    Loschiavo, M.
    Behrens, M.
    Walsh, L. E.
    Polacek, L. C.
    Diamond, E. L.
    Breitbart, W. S.
    [J]. PALLIATIVE & SUPPORTIVE CARE, 2022, 20 (05) : 623 - 629
  • [8] Bradshaw C, 2017, GLOB QUALIT NURS RES, V4, DOI 10.1177/2333393617742282
  • [9] To saturate or not to saturate? Questioning data saturation as a useful concept for thematic analysis and sample-size rationales
    Braun, Virginia
    Clarke, Victoria
    [J]. QUALITATIVE RESEARCH IN SPORT EXERCISE AND HEALTH, 2021, 13 (02) : 201 - 216
  • [10] One size fits all? What counts as quality practice in (reflexive) thematic analysis?
    Braun, Virginia
    Clarke, Victoria
    [J]. QUALITATIVE RESEARCH IN PSYCHOLOGY, 2021, 18 (03) : 328 - 352