"People don't have the answers": A qualitative exploration of the experiences of young people with Long COVID

被引：1

作者：

Newlands, Fiona ^{[1
,9
]}

Lewis, Celine ^{[1
,2
]}

d'Oelsnitz, Anais ^{[1
]}

Pereira, Snehal M. Pinto ^{[3
]}

Stephenson, Terence ^{[1
]}

Chalder, Trudie ^{[4
]}

Coughtrey, Anna ^{[1
]}

Dalrymple, Emma ^{[1
]}

Heyman, Isobel ^{[1
]}

Harnden, Anthony ^{[5
]}

Ford, Tamsin ^{[6
]}

Ladhani, Shamez N. ^{[7
,8
]}

Powell, Claire ^{[1
]}

McOwat, Kelsey ^{[7
]}

Bhopal, Rowan ^{[1
]}

Dudley, Jake ^{[1
]}

Kolasinska, Paige ^{[1
]}

Muhid, Mohammed Z. ^{[1
]}

Nugawela, Manjula ^{[1
]}

Rojas, Natalia K. ^{[3
]}

Shittu, Angel ^{[1
]}

Simmons, Ruth ^{[7
]}

Shafran, Roz ^{[1
]}

机构：

[1] UCL Great Ormond St Inst Child Hlth, Populat Policy & Practice Dept, London, England

[2] Great Ormond St Hosp Children NHS Fdn Trust, NHS North Thames Genom Lab Hub, London, England

[3] UCL, Fac Med Sci, Div Surg & Intervent Sci, London, England

[4] Inst Psychiat Psychol & Neurosci, Dept Psychol Med, Kings Coll London, London, England

[5] Univ Oxford, Nuffield Dept Primary Care Hlth Sci, Oxford, England

[6] Univ Cambridge, Dept Psychiat, Cambridge, England

[7] Immunisat Dept, UK Hlth Secur Agcy, London, England

[8] St Georges Univ London, Paediat Infect Dis Res Grp, London, England

[9] UCL, UCL Great Ormond St Inst Child Hlth, Policy & Practice Dept, 30 Guilford St, London WC1E 6BT, England

来源：

CLINICAL CHILD PSYCHOLOGY AND PSYCHIATRY | 2024年 / 29卷 / 03期

关键词：

Children and young people; Long COVID; qualitative; experience; post-COVID condition;

D O I：

10.1177/13591045241252463

中图分类号：

B849 [应用心理学];

学科分类号：

040203 ;

摘要：

Young people living with Long COVID are learning to navigate life with a constellation of poorly understood symptoms. Most qualitative studies on experiences living with Long COVID focus on adult populations. This study aimed to understand the experiences of young people living with Long COVID. Qualitative, semi-structured interviews were conducted (n = 16); 11 young people (aged 13-19) and five parents were recruited from the Children and Young People with Long COVID (CLoCk) study (n = 11) or its patient and public involvement and engagement (PPIE) group (n = 5). Thematic analysis generated four themes: (i) Unravelling Long COVID: Exploring Symptom Journeys and Diagnostic Dilemmas; (ii) Identity Disruption and Adjustment; (iii) Long COVID's Ripple Effect: the impact on Mental Health, Connections, and Education; and (iv) Navigating Long COVID: barriers to support and accessing services. Treatment options were perceived as not widely available or ineffective, emphasising the need for viable and accessible interventions for young people living with Long COVID.

引用

页码：783 / 798

页数：16

共 34 条

[1] Long COVID in children and adolescents
Asadi-Pooya, Ali A.
Nemati, Hamid
Shahisavandi, Mina
Akbari, Ali
Emami, Amir
Lotfi, Mehrzad
Rostamihosseinkhani, Mahtab
Barzegar, Zohreh
Kabiri, Maryam
Zeraatpisheh, Zahra
Farjoud-Kouhanjani, Mohsen
Jafari, Anahita
Sasannia, Fateme
Ashrafi, Shayan
Nazeri, Masoume
Nasiri, Sara
[J]. WORLD JOURNAL OF PEDIATRICS, 2021, 17 (05) : 495 - 499
[2] Persistent symptoms following SARS-CoV-2 infection amongst children and young people: A meta-analysis of controlled and uncontrolled studies
Behnood, S. A.
Shafran, R.
Bennett, S. D.
Zhang, A. X. D.
O'Mahoney, L. L.
Stephenson, T. J.
Ladhani, S. N.
De Stavola, B. L.
Viner, R. M.
Swann, O. V.
[J]. JOURNAL OF INFECTION, 2022, 84 (02) : 158 - 170
[3] Persistent symptoms are associated with long term effects of COVID-19 among children and young people: Results from a systematic review and meta-analysis of controlled studies
Behnood, Sanaz
Newlands, Fiona
O'Mahoney, Lauren
Haghighat Ghahfarokhi, Mahta
Muhid, Mohammed Z.
Dudley, Jake
Stephenson, Terence
Ladhani, Shamez N.
Bennett, Sophie
Viner, Russell M.
Bhopal, Rowan
Kolasinska, Paige
Shafran, Roz
Swann, Olivia V.
Takeda, Andrea
[J]. PLOS ONE, 2023, 18 (12):
[4] Impact of COVID-19 restrictions on preschool children's eating, activity and sleep behaviours: a qualitative study
Clarke, Joanne
Kipping, Ruth
Chambers, Stephanie
Willis, Kate
Taylor, Hilary
Brophy, Rachel
Hannam, Kimberly
Simpson, Sharon Anne
Langford, Rebecca
[J]. BMJ OPEN, 2021, 11 (10):
[5] Cellular and molecular biomarkers of long COVID: a scoping review
Espin, Estefania
Yang, Chengliang
Shannon, Casey P.
Assadian, Sara
He, Daniel
Tebbutt, Scott J.
[J]. EBIOMEDICINE, 2023, 91
[6] Experiences of the coronavirus disease-19 (COVID-19) pandemic from the perspectives of young people: Rapid qualitative study
Fisher, Harriet
Lambert, Helen
Hickman, Matthew
Yardley, Lucy
Audrey, Suzanne
[J]. PUBLIC HEALTH IN PRACTICE, 2021, 2
[7] Revisiting uncertainty as a felt sense of unsafety: The somatic error theory of intolerance of uncertainty
Freeston, Mark
Komes, Jessica
[J]. JOURNAL OF BEHAVIOR THERAPY AND EXPERIMENTAL PSYCHIATRY, 2023, 79
[8] The role of uncertainty intolerance in adjusting to long-term physical health conditions: A systematic review
Gibson, Benjamin J.
Rosser, Benjamin
Schneider, Jekaterina
Forshaw, Mark
[J]. PLOS ONE, 2023, 18 (06):
[9] Post-COVID-19 Condition in Children
Hahn, Lyndsey M.
Manny, Emilie
Mamede, Fabiana
Dhaliwal, Gurvinder
Chikuma, Joyce
Robinson, Joan L.
Mandhane, Piush J.
[J]. JAMA PEDIATRICS, 2023, 177 (11) : 1226 - 1228
[10] Living with "long COVID": A systematic review and meta-synthesis of qualitative evidence
Hossain, M. Mahbub
Das, Jyoti
Rahman, Farzana
Nesa, Fazilatun
Hossain, Puspita
Islam, A. M. Khairul
Tasnim, Samia
Faizah, Farah
Mazumder, Hoimonty
Purohit, Neetu
Ramirez, Gilbert
[J]. PLOS ONE, 2023, 18 (02):

← 1 2 3 4 →