Barriers and facilitators of nurse-led self-management support for adolescents with epilepsy: A mixed-methods study in transition preparation

被引:0
作者
Cui, Cui [1 ]
Li, Shuangzi [2 ,3 ]
Zhou, Hengyu [4 ]
Chen, Wenjin [2 ,3 ]
Xiao, Changmin [2 ,3 ]
Fan, Mingping [2 ,3 ]
Zheng, Xianlan [1 ]
机构
[1] Chongqing Med Univ, Natl Clin Res Ctr Child Hlth & Disorders, Minist Educ, Key Lab Child Dev & Disorders,Chongqing Key Lab Pe, 136 Zhongshan Second Rd, Chongqing 400014, Peoples R China
[2] Chongqing Med Univ, Natl Clin Res Ctr Child Hlth & Disorders, Dept Neurol, Childrens Hosp,Minist Educ,Key Lab Child, Chongqing 400014, Peoples R China
[3] Chongqing Key Lab Pediat, Dev & Disorders, Chongqing 400014, Peoples R China
[4] Chongqing Med Univ, Sch Nursing, Chongqing 400014, Peoples R China
关键词
Adolescent; Epilepsy; Evidence-based practice; Mixed-method research; Pediatric nursing; Self-management; ADULT HEALTH-CARE; PEDIATRIC EPILEPSY; VALIDATION; IMPLEMENTATION;
D O I
10.1016/j.heliyon.2024.e33774
中图分类号
O [数理科学和化学]; P [天文学、地球科学]; Q [生物科学]; N [自然科学总论];
学科分类号
07 ; 0710 ; 09 ;
摘要
Aims: To gain insight into the readiness for evidence-based practice of self-management support during transition for adolescents with epilepsy among pediatric nurses, and to explore the promoting and hindering factors. Design: A mixed-methods design with an explanatory sequential approach was employed. Setting: Three specialty children 's hospitals in southwest regions of China. Methods: In phase 1, a total of 126 participants were included in the Survey of Clinical Readiness of Evidence-Based Nursing Assessment (CREBNA) from Dec 2022 to Feb 2023. Total scale and subscale scores were calculated. In phase 2, we developed the interview outline based on the analysis of the quantitative results. In-depth interviews (n = 15) were conducted from Feb 2023 to Apr 2023 to explain and supplement the quantitative phase results. Results: The total score of CREBNA indicated that teams have good readiness and capacity for implementation of evidence-based nursing practice Compared with the norm. The scores of the three subscales of evidence factors, organizational environment, and promoting factors were normal. In subsequent interviews and integration, we extracted four themes based on the Knowledge-To-Action (KTA) framework: 1. organization barriers (incentive mechanism, interdisciplinary cooperation process, information aids); 2. operational barriers (Exemplary evidencebased practice, time pressure, gaps in patient and family understanding of evidence); 3. individual-level barriers (evidence-based and professional knowledge reserve, professional autonomy, shared decision-making roles, dependence on habitual clinical behaviors); and 4. facilitating factors (leadership commitment, self-management identity, transition service needs, patient- and family-centered care culture). A conceptual model was constructed based on the IOTA. Conclusion: It is feasible to carry out evidence-based practice of nurse-led self-management support in transition preparation. Nursing researchers and managers should carry out knowledge selection and tailoring based on barriers at the organizational, operational, and individual levels to promote favorable factors and improve the smooth transition of adolescents with chronic diseases.
引用
收藏
页数:11
相关论文
共 42 条
[1]   Epilepsy: Transition from pediatric to adult care. Recommendations of the Ontario epilepsy implementation task force [J].
Andrade, Danielle M. ;
Bassett, Anne S. ;
Bercovici, Eduard ;
Borlot, Felippe ;
Bui, Esther ;
Camfield, Peter ;
Clozza, Guida Quaglia ;
Cohen, Eyal ;
Gofine, Timothy ;
Graves, Lisa ;
Greenaway, Jon ;
Guttman, Beverly ;
Guttman-Slater, Maya ;
Hassan, Ayman ;
Henze, Megan ;
Kaufman, Miriam ;
Lawless, Bernard ;
Lee, Hannah ;
Lindzon, Lezlee ;
Lomax, Lysa Boisse ;
McAndrews, Mary Pat ;
Menna-Dack, Dolly ;
Minassian, Berge A. ;
Mulligan, Janice ;
Nabbout, Rima ;
Nejm, Tracy ;
Secco, Mary ;
Sellers, Laurene ;
Shapiro, Michelle ;
Slegr, Marie ;
Smith, Rosie ;
Szatmari, Peter ;
Tao, Leeping ;
Vogt, Anastasia ;
Whiting, Sharon ;
Snead, O. Carter, III .
EPILEPSIA, 2017, 58 (09) :1502-1517
[2]  
[Anonymous], 2021, Journal of Epilepsy, V7, P417
[3]   Qualitative research: deductive and inductive approaches to data analysis [J].
Azungah, Theophilus .
QUALITATIVE RESEARCH JOURNAL, 2018, 18 (04) :383-400
[4]   Health system context and implementation of evidence-based practices-development and validation of the Context Assessment for Community Health (COACH) tool for low- and middle-income settings [J].
Bergstrom, Anna ;
Skeen, Sarah ;
Duc, Duong M. ;
Blandon, Elmer Zelaya ;
Estabrooks, Carole ;
Gustavsson, Petter ;
Dinh Thi Phuong Hoa ;
Kallestal, Carina ;
Malqvist, Mats ;
Nguyen Thu Nga ;
Persson, Lars-Ake ;
Pervin, Jesmin ;
Peterson, Stefan ;
Rahman, Anisur ;
Selling, Katarina ;
Squires, Janet E. ;
Tomlinson, Mark ;
Waiswa, Peter ;
Wallin, Lars .
IMPLEMENTATION SCIENCE, 2015, 10
[5]  
Betz C.L., 2020, Transition from Pediatric to Adult Healthcare Services for Adolescents and Young Adults with Long-term Conditions
[6]  
Betz CL, 2017, J PEDIATR REHAB MED, V10, P177, DOI 10.3233/PRM-170446
[7]   TRANSITION FROM CHILD-CENTERED TO ADULT HEALTH-CARE SYSTEMS FOR ADOLESCENTS WITH CHRONIC CONDITIONS - A POSITION PAPER OF THE SOCIETY FOR ADOLESCENT MEDICINE [J].
BLUM, RW ;
GARELL, D ;
HODGMAN, CH ;
JORISSEN, TW ;
OKINOW, NA ;
ORR, DP ;
SLAP, GB .
JOURNAL OF ADOLESCENT HEALTH, 1993, 14 (07) :570-576
[8]   How can transition to adult care be best orchestrated for adolescents with epilepsy? [J].
Camfield, Peter R. ;
Andrade, Danielle ;
Camfield, Carole S. ;
Carrizosa-Moog, Jaime ;
Appleton, Richard ;
Baulac, Michel ;
Brown, Lawrence ;
Ben Menachem, Eleonor ;
Cross, Helen ;
Desguerre, Isabelle ;
Grant, Christina ;
Hosny, Hassan ;
Jurasek, Laura ;
Mula, Marco ;
Pfaefflin, Margarete ;
Rheims, Sylvain ;
Ring, Howard ;
Shellhaas, Renee A. ;
Vinayan, K. P. ;
Wirrell, Elaine ;
Nabbout, Rima .
EPILEPSY & BEHAVIOR, 2019, 93 :138-147
[9]   Transition of care for adolescents from paediatric services to adult health services [J].
Campbell, Fiona ;
Biggs, Katie ;
Aldiss, Susie K. ;
O'Neill, Philip M. ;
Clowes, Mark ;
McDonagh, Janet ;
While, Alison ;
Gibson, Faith .
COCHRANE DATABASE OF SYSTEMATIC REVIEWS, 2016, (04)
[10]   Validation of the theoretical domains framework for use in behaviour change and implementation research [J].
Cane, James ;
O'Connor, Denise ;
Michie, Susan .
IMPLEMENTATION SCIENCE, 2012, 7