EMPATHY Life in Psoriasis: Embracing Patients' Well-Being in Their Journey of Moderate-to-Severe Psoriasis

被引:1
作者
Prignano, Francesca [1 ]
Campione, Elena [2 ]
Parodi, Aurora [3 ]
Vegni, Elena [4 ,5 ]
Bardazzi, Federico [6 ]
Borroni, Riccardo G. [7 ,8 ]
Burlando, Martina [9 ]
Cinotti, Elisa [10 ]
Dini, Valentina [11 ]
Giacchetti, Alfredo [12 ]
Giofre, Claudia [13 ]
Megna, Matteo [14 ]
Zichichi, Leonardo [15 ]
Fargnoli, Maria Concetta [16 ,17 ]
机构
[1] Univ Florence, Dept Hlth Sci, Sect Dermatol, I-50125 Florence, Italy
[2] Univ Roma Tor Vergata, Dept Syst Med, Dermatol Unit, I-00133 Rome, Italy
[3] Univ Genoa, Osped Policlin San Martino, Dipartimento Sci Salute, Sect Dermatol,IRCCS, Largo R Benzi 10, I-16132 Genoa, Italy
[4] Univ Milan, Dept Hlth Sci, I-20146 Milan, Italy
[5] ASST Santi Paolo & Carlo Hosp, Unit Clin Psychol, I-20142 Milan, Italy
[6] IRCCS Azienda Osped Univ Bologna, Dermatol Unit, Policlin S Orsola Malpighi, I-40126 Bologna, Italy
[7] Humanitas Univ, Dept Biomed Sci, I-20089 Milan, Italy
[8] IRCCS, Humanitas Res Hosp, Dermatol Unit, I-20089 Milan, Italy
[9] San Martino Hosp, Dermatol Clin, DISSAL, I-16132 Genoa, Italy
[10] Univ Siena, Dept Med Surg & Neurol Sci, Dermatol Unit, I-53100 Siena, Italy
[11] Univ Pisa, Unit Dermatol, I-56126 Pisa, Italy
[12] IRCCS INRCA, UOC Dermatol, I-60124 Ancona, Italy
[13] Papardo Hosp, Dermatol Complex Operat Unit, I-98158 Messina, Italy
[14] Univ Naples Federico II, Dept Clin Med & Surg, Sect Dermatol, I-80138 Naples, Italy
[15] San Antonio Abate Hosp, Unit Dermatol, I-80057 Trapani, Italy
[16] Univ Aquila, Dept Biotechnol & Appl Clin Sci, I-67100 Laquila, Italy
[17] Osped San Salvatore, Dermatol Unit, I-67100 Laquila, Italy
关键词
psoriasis; moderate-to-severe; empathy; patient well-being; CARE; MANAGEMENT; ADHERENCE;
D O I
10.3390/jcm13154469
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Background: Psoriasis is a chronic inflammatory skin condition that affects millions of individuals worldwide, impacting their physical and emotional well-being. The management of psoriasis requires effective communication and a strong physician-patient relationship. Objective: We aim to develop a novel algorithm to enhance patient well-being and care in moderate-to-severe psoriasis, considering the time constraints that dermatologists have in public hospitals. Methods: This project employed a multidisciplinary approach, involving collaboration between 14 experienced dermatologists (referred to as Key Opinion Leaders: KOLs) and a psychologist. During three separate meetings (an initial virtual session, a face-to-face meeting, and a final virtual meeting), an algorithm (Embracing Patients' Well-being in their Journey of Moderate-to-Severe psoriasis: EMPATHY), describing the patient's reception through the entire first visit and follow-up visits, was developed and refined. Results: The EMPATHY algorithm provides a step-by-step approach from the moment the patient arrives at reception, through the first visit and on to subsequent visits. This algorithm fills a critical gap in the existing guidelines by specifically addressing how to foster empathy during psoriasis patient visits within time-limited consultations. The algorithm outlines patient-centered strategies at each visit. Key aspects include creating a welcoming environment, active listening, respecting privacy, tailoring communication styles, and managing patient expectations. Conclusions: The EMPATHY algorithm represents a novel and promising approach to improving patient care and well-being in moderate-to-severe psoriasis. Developed together by dermatologists and a psychologist, this algorithm offers healthcare providers practical guidance for managing both initial and follow-up patient visits. While further validation is necessary, the potential for adapting the EMPATHY algorithm to diverse healthcare settings and patient populations holds promise for improving patient outcomes across various chronic conditions.
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页数:12
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