Pediatric Intestinal Failure Associated Eating Disorder An Overview of the Importance of Oral Feeding in a Population at Risk for Feeding Difficulties

被引:1
作者
Boctor, Dana Liza [1 ]
Fenton, Tanis R. [2 ]
Goulet, Olivier [3 ]
Lambe, Cecile [3 ]
机构
[1] Univ Calgary, Alberta Childrens Hosp, Sect Gastroenterol Hepatol & Nutr, 28 Oki Dr NW, Calgary, AB T3B 6A8, Canada
[2] Univ Calgary, Alberta Childrens Hosp Res Inst, Inst Publ Hlth, Dept Community Hlth Sci,Cumming Sch Med, 3rd Floor,3280 Hosp Drive NW, Calgary, AB T2N 4Z6, Canada
[3] Univ Paris Cite, Pediat Intestinal Failure Rehabil Ctr, Natl Reference Ctr Rare Digest Dis,Hosp Necker Enf, Dept Pediat Gastroenterol Hepatol & Nutr, 149 Rue Sevres, F-75015 Paris, France
关键词
Pediatric intestinal failure; Feeding difficulty; Feeding disorder; Oral feeds; SHORT-BOWEL SYNDROME; HOME PARENTERAL-NUTRITION; QUALITY-OF-LIFE; ESPGHAN COMMITTEE; POSITION PAPER; CHILDREN; FOOD; INFANTS; DISEASE; REHABILITATION;
D O I
10.1016/j.gtc.2023.12.003
中图分类号
R57 [消化系及腹部疾病];
学科分类号
摘要
Achieving feeding skills and food acceptance is a multi-layered process. In pediatric intestinal failure (PIF), oral feeding is important for feeding skills development, physiologic adaptation, quality of life and the prevention of eating disorders. In PIF, risk factors for feeding difficulties are common and early data suggests that feeding difficulties are prevalent. There is a unique paradigm for the feeding challenges in PIF. Conventional definitions of eating disorders have limited application in this context. A pediatric intestinal failure associated eating disorder (IFAED) definition that includes feeding/eating skills dysfunction, psychosocial dysfunction, and the influence on weaning nutrition support is proposed.
引用
收藏
页码:309 / 327
页数:19
相关论文
共 84 条
[1]   Complementary feeding: A commentary by the ESPGHAN committee on nutrition [J].
Agostoni, Carlo ;
Decsi, Tamas ;
Fewtrell, Mary ;
Goulet, Olivier ;
Kolacek, Sanja ;
Koletzko, Berthold ;
Michaelsen, Kim Fleischer ;
Moreno, Luis ;
Puntis, John ;
Rigo, Jacques ;
Shamir, Raanan ;
Szajewska, Hania ;
Turck, Dominique ;
van Gdoever, Johannes .
JOURNAL OF PEDIATRIC GASTROENTEROLOGY AND NUTRITION, 2008, 46 (01) :99-110
[2]   The Development of the International Intestinal Failure Registry and an Overview of its Results [J].
Avitzur, Yaron ;
Pahl, Eric ;
Venick, Robert .
EUROPEAN JOURNAL OF PEDIATRIC SURGERY, 2024, 34 (02) :172-181
[3]   Oral-feeding guidelines for preterm neonates in the NICU: a scoping review [J].
Bakker, Lise ;
Jackson, Bianca ;
Miles, Anna .
JOURNAL OF PERINATOLOGY, 2021, 41 (01) :140-149
[4]   Impact of exclusive enteral nutrition on the gut microbiome of children with medical complexity [J].
Beauchamp-Walters, Julia ;
Aleti, Gajender ;
Herrera, Lourdes ;
Debelius, Justine ;
Lima, Natalie ;
Dalal, Pritha ;
Hong, Suzi ;
Knight, Rob ;
Rhee, Kyung E. .
JOURNAL OF PARENTERAL AND ENTERAL NUTRITION, 2023, 47 (01) :77-86
[5]   Oral intake and plasma citrulline predict quality of life in patients with intestinal failure [J].
Bednarsch, Jan ;
Bluethner, Elisabeth ;
Karber, Mirjam ;
Gerlach, Undine A. ;
Pascher, Andreas ;
Maasberg, Sebastian ;
Pevny, Sophie ;
Pratschke, Johann ;
Pape, Ulrich-Frank ;
Stockmann, Martin .
NUTRITION, 2020, 79-80
[6]   Carrying the Burden: Informal Care Requirements by Caregivers of Children with Intestinal Failure Receiving Home Parenteral Nutrition [J].
Belza, Christina ;
Ungar, Wendy J. ;
Avitzur, Yaron ;
Stremler, Robyn ;
Fehlings, Darcy ;
Wales, Paul W. .
JOURNAL OF PEDIATRICS, 2022, 250 :75-+
[7]   "Line care governs our entire world": Understanding the experience of caregivers of children with intestinal failure receiving long-term parenteral nutrition [J].
Belza, Christina ;
Patterson, Catherine ;
Ghent, Emily ;
Avitzur, Yaron ;
Ungar, Wendy J. ;
Fehlings, Darcy ;
Stremler, Robyn ;
Wales, Paul W. .
JOURNAL OF PARENTERAL AND ENTERAL NUTRITION, 2022, 46 (07) :1602-1613
[8]   Development and validation of the disease-specific Short Bowel Syndrome-Quality of Life (SBS-QoL™) scale [J].
Berghoefer, P. ;
Fragkos, K. C. ;
Baxter, J. P. ;
Forbes, A. ;
Joly, F. ;
Heinze, H. ;
Loth, S. ;
Pertkiewicz, M. ;
Messing, B. ;
Jeppesen, P. B. .
CLINICAL NUTRITION, 2013, 32 (05) :789-796
[9]  
Bernard-Bonnin AC, 2006, CAN FAM PHYSICIAN, V52, P1247
[10]   Actinobacteria: A relevant minority for the maintenance of gut homeostasis [J].
Binda, Cecilia ;
Lopetuso, Loris Riccardo ;
Rizzatti, Gianenrico ;
Gibiino, Giulia ;
Cennamo, Vincenzo ;
Gasbarrini, Antonio .
DIGESTIVE AND LIVER DISEASE, 2018, 50 (05) :421-428