Technologies for Supporting Individuals and CaregiversLiving With Fetal Alcohol Spectrum Disorder:Scoping Review

被引:0
作者
Chu, Joanna Ting Wai [1 ,2 ,3 ,4 ]
Wilson, Holly [1 ,4 ]
Cai, Cynthia Zhiyin [1 ,4 ]
McCormack, Jessica C. [1 ,5 ]
Newcombe, David [4 ]
Bullen, Chris [1 ]
机构
[1] Univ Auckland, Sch Populat Hlth, Natl Inst Hlth Innovat, Auckland, New Zealand
[2] Univ Auckland, Ctr Arts & Social Transformat, Fac Educ & Social Work, Auckland, New Zealand
[3] Univ Auckland, Ctr Addict Res Med & Hlth Sci, Auckland, New Zealand
[4] Univ Auckland, Sch Populat Hlth, Social & Community Hlth, Private Bag 92019 Auckland Mail Ctr, Auckland 1142, New Zealand
[5] Univ Otago, Food Sci, Sensory Neurosci Lab, Dunedin, New Zealand
来源
JMIR MENTAL HEALTH | 2024年 / 11卷
关键词
etal alcohol; scoping review; technology; caregivers; diagnosis; support; intervention; fetal alcohol spectrum disorder; FASD; developmental disability; lifelong support; caregiver; accessibility; alcohol; alcohol intake; pregnantsubstance; pregnant; fetal; PRISMA; Preferred Reporting Items for Systematic Reviews and Meta-Analyses; mobile phone; CHILDREN; INTERVENTIONS; TELEHEALTH; DEPRESSION; FAMILIES; BEHAVIOR; ANXIETY; WORK; FIRE; FASD;
D O I
10.2196/51074
中图分类号
R749 [精神病学];
学科分类号
100205 ;
摘要
Background: Fetal alcohol spectrum disorder (FASD) is a common developmental disability that requires lifelong and ongoing support but is often difficult to find due to the lack of trained professionals, funding, and support available. Technology could provide cost-effective, accessible, and effective support to those living with FASD and their caregivers. Objective: In this review, we aimed to explore the use of technology available for supporting people living with FASD and their caregivers. Methods: We conducted a scoping review to identify studies that included technology for people with FASD or their caregivers; focused on FASD; used an empirical study design; were published since 2005; and used technology for assessment, diagnosis, monitoring, or support for people with FASD. We searched MEDLINE, Web of Science, Scopus, Embase, APA PsycINFO, ACM Digital Library, JMIR Publications journals, the Cochrane Library, EBSCOhost, IEEE, study references, and gray literature to find studies. Searches were conducted in November 2022 and updated in January 2024. Two reviewers (CZC and HW) independently completed study selection and data extraction. Results: In total, 17 studies exploring technology available for people with FASD showed that technology could be effective at teaching skills, supporting caregivers, and helping people with FASD develop skills. Conclusions: Technology could provide support for people affected by FASD; however, currently there is limited technology available, and the potential benefits are largely unexplored. Trial Registration: PROSPERO CRD42022364885; https://tinyurl.com/3zaatu9u
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页数:12
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共 63 条
  • [1] Abernethy Amy, 2022, NAM Perspect, V2022, DOI 10.31478/202206e
  • [2] Use of telehealth for facilitating the diagnostic assessment of Autism Spectrum Disorder (ASD): A scoping review
    Alfuraydan, Manahil
    Croxall, Jodie
    Hurt, Lisa
    Kerr, Mike
    Brophy, Sinead
    [J]. PLOS ONE, 2020, 15 (07):
  • [3] Aromataris E., 2020, JBI MANUAL EVIDENCE, DOI DOI 10.46658/JBIMES-20-08
  • [4] Benoit T, 2002, Paediatr Child Health, V7, P147
  • [5] Factors Affecting the Quality of Person-Generated Wearable Device Data and Associated Challenges: Rapid Systematic Review
    Cho, Sylvia
    Ensari, Ipek
    Weng, Chunhua
    Kahn, Michael G.
    Natarajan, Karthik
    [J]. JMIR MHEALTH AND UHEALTH, 2021, 9 (03):
  • [6] Codesign approaches involving older adults in the development of electronic healthcare tools: a systematic review
    Cole, Amy C.
    Adapa, Karthik
    Khasawneh, Amro
    Richardson, Daniel R.
    Mazur, Lukasz
    [J]. BMJ OPEN, 2022, 12 (07):
  • [7] Games that "work": Using computer games to teach alcohol-affected children about fire and street safety
    Coles, Claire D.
    Strickland, Dorothy C.
    Padgett, Lynne
    Bellmoff, Lynnae
    [J]. RESEARCH IN DEVELOPMENTAL DISABILITIES, 2007, 28 (05) : 518 - 530
  • [8] A Metacognitive Strategy for Reducing Disruptive Behavior in Children with Fetal Alcohol Spectrum Disorders: GoFAR Pilot
    Coles, Claire D.
    Kable, Julie A.
    Taddeo, Elles
    Strickland, Dorothy C.
    [J]. ALCOHOLISM-CLINICAL AND EXPERIMENTAL RESEARCH, 2015, 39 (11) : 2224 - 2233
  • [9] Fetal alcohol spectrum disorder: a guideline for diagnosis across the lifespan
    Cook, Jocelynn L.
    Green, Courtney R.
    Lilley, Christine M.
    Anderson, Sally M.
    Baldwin, Mary Ellen
    Chudley, Albert E.
    Conry, Julianne L.
    LeBlanc, Nicole
    Loock, Christine A.
    Lutke, Jan
    Mallon, Bernadene F.
    McFarlane, Audrey A.
    Temple, Valerie K.
    Rosales, Ted
    [J]. CANADIAN MEDICAL ASSOCIATION JOURNAL, 2016, 188 (03) : 191 - 197
  • [10] Immersive virtual reality for improving cognitive deficits in children with ADHD: a systematic review and meta-analysis
    Corrigan, Niamh
    Pasarelu, Costina-Ruxandra
    Voinescu, Alexandra
    [J]. VIRTUAL REALITY, 2023, 27 (04) : 3545 - 3564