Development of the acne-specific quality of life questionnaire Quality of Life Relevance-Acne

被引：2
作者：
Chernyshov, Pavel V. [1 ]
Sampogna, Francesca [2 ]
Raimondi, Giulia [2 ,3 ]
Zouboulis, Christos C. [4 ,5 ,6 ,7 ,8 ]
Boffa, Michael J. [9 ]
Marron, Servando E. [10 ]
Manolache, Liana [11 ]
Pustisek, Nives [12 ]
Bettoli, Vincenzo [13 ]
Koumaki, Dimitra [14 ]
Bewley, Anthony P. [15 ,16 ]
Dreno, Brigitte [17 ]
Tomas-Aragones, Lucia [18 ,19 ]
机构：
[1] Natl Med Univ, Dept Dermatol & Venereol, 13 Bulvar Shevchenko, UA-01601 Kiev, Ukraine
[2] IRCCS, Ist Dermopat Immacolata IDI, Clin Epidemiol Unit, Rome, Italy
[3] Sapienza Univ Rome, Dept Dev & Social Psychol, Rome, Italy
[4] Brandenburg Med Sch Theodor Fontane, Staedt Klinikum Dessau, Dept Dermatol, Dessau, Germany
[5] Brandenburg Med Sch Theodor Fontane, Staedt Klinikum Dessau, Dept Venereol, Dessau, Germany
[6] Brandenburg Med Sch Theodor Fontane, Staedt Klinikum Dessau, Dept Allergol, Dessau, Germany
[7] Brandenburg Med Sch Theodor Fontane, Dept Immunol, Staedt Klinikum Dessau, Dessau, Germany
[8] Fac Hlth Sci Brandenburg, Dessau, Germany
[9] Mater Dei Hosp, Dept Dermatol, Msida, Malta
[10] IIS Aragon, Univ Hosp Miguel Servet, Aragon Psychodermatol Res Grp, Dept Dermatol,Associated Aragon Hlth Sci Inst IACS, Zaragoza, Spain
[11] Dali Med, Dermatol, Bucharest, Romania
[12] Childrens Hosp Zagreb, Zagreb, Croatia
[13] Univ Ferrara, Dept Med Sci, Sect Dermatol, Ferrara, Italy
[14] Univ Hosp Heraklion, Dept Dermatol & Venereol, Iraklion, Greece
[15] Barts Hlth NHS Trust, London, England
[16] Queen Mary Univ, London, England
[17] Univ Angers, Nantes Univ, INSERM, Dept Dermato Oncol,Immunol & New Concepts Immuno T, Nantes, France
[18] Univ Zaragoza, Dept Psychol, Zaragoza, Spain
[19] Aragon Hlth Sci Inst IACS, Zaragoza, Spain
来源：
JAAD INTERNATIONAL | 2024年 / 16卷
关键词：
acne; patient-reported outcome measures; quality of life; DERMATOLOGY;
D O I：
10.1016/j.jdin.2024.03.007
中图分类号：
R75 [皮肤病学与性病学];
学科分类号：
100206 ;
摘要：
Background: Participating members of the European Academy of Dermatology and Venereology Task Forces on quality of life (QoL) and Patient Oriented Outcomes and Acne, Rosacea and Hidradenitis Suppurativa initiated data collection in 9 European countries and formed the list of the most relevant topics for acne patients. Objective: The aim of this study was to develop a new acne-specific health-related QoL instrument based on the list of the most relevant topics for acne patients. Methods: After assessment by acne patients ( n = 715) on how clear and relevant the items in the prototype questionnaire were, a group of experts on acne and QoL performed discussions on items inclusion, which resulted in a series of 21 items. Then another group of acne patients ( n = 1502) filled in the new version of the instrument. A factor analysis was conducted on the 21 -item version. Results: Three-factor model with 19 items indicated a satisfactory fit. The three dimensions were called: Socioemotional; Symptoms; Stigma and Suicidal thoughts. Limitations: Included patients and experts may not fully represent acne patients and health care professionals worldwide. Conclusion: A final 19 -item version of the Quality of Life Relevance-Acne was developed. ( JAAD Int 2024;16:9-17.)
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收藏
页码：9 / 17
页数：9
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