Carrying on with life as a lung cancer survivor: a qualitative study of Australian survivors' employment, finances, relationships, and healthcare experiences

被引：3

作者：

Laidsaar-Powell, Rebekah ^{[1
]}

Butow, Phyllis ^{[1
]}

Brown, Bea ^{[2
]}

Mander, Kimberley ^{[2
]}

Young, Jane ^{[3
,4
]}

Stone, Emily ^{[5
]}

Chin, Venessa ^{[6
,7
,8
]}

Banks, Emily ^{[9
]}

Lim, Chloe Yi Shing ^{[1
]}

Rankin, Nicole M. ^{[3
,10
]}

机构：

[1] Univ Sydney, Fac Sci, Ctr Med Psychol & Evidence Based Decis Making CeMP, Sch Psychol, Level 3,Griffith Taylor Bldg A19, Sydney, NSW 2006, Australia

[2] Univ Sydney, Fac Med & Hlth, NHMRC Clin Trials Ctr, Sydney, NSW, Australia

[3] Univ Sydney, Fac Med & Hlth, Sydney Sch Publ Hlth, Sydney, NSW, Australia

[4] Univ Sydney, Daffodil Ctr, Joint Venture Canc Council, Sydney, NSW, Australia

[5] Univ Melbourne, Melbourne Sch Populat & Global Hlth, Melbourne, Vic, Australia

[6] Univ New South Wales, Sch Clin Med, Sydney, NSW, Australia

[7] Kinghorn Canc Ctr, Sydney, NSW, Australia

[8] Garvan Inst Med Res, Sydney, NSW, Australia

[9] Australian Natl Univ, Natl Ctr Epidemiol & Populat Hlth, Canberra, ACT, Australia

[10] Univ Melbourne, Ctr Hlth Policy, Melbourne Sch Populat & Global Hlth, Melbourne, Vic, Australia

来源：

TRANSLATIONAL LUNG CANCER RESEARCH | 2024年 / 13卷 / 04期

基金：

澳大利亚国家健康与医学研究理事会; 英国医学研究理事会;

关键词：

Lung cancer (LC); novel therapy; employment; finances; qualitative; PALLIATIVE CARE; PERSPECTIVES; DISTRESS;

D O I：

10.21037/tlcr-23-815

中图分类号：

R73 [肿瘤学];

学科分类号：

100214 ;

摘要：

Background: With novel therapies, more individuals are living longer with lung cancer (LC). This study aimed to understand the impacts of LC on life domains such as employment, finances, relationships, and healthcare needs. Methods: Individuals 18+, diagnosed with LC, 6-24 months post-treatment were recruited through an Australian LC cohort study (Embedding Research and Evidence in Cancer Healthcare-EnRICH). Demographic, clinical, quality-of-life and distress data were obtained through the EnRICH study database. Participants completed telephone interviews. Qualitative data were analysed via Framework methods. Results: Twenty interviews (10 females) were conducted. Most participants were diagnosed with advanced LC (Stage III =8, Stage IV =6), and were on average 17 (range, 10-24) months post-diagnosis. Four themes related to "carrying on with life" as a LC survivor were identified: (I) the winding path back to work: those working pre-diagnosis discussed challenges of maintaining/returning to employment, and the meaning and satisfaction derived from work. (II) Vulnerability versus protection: managing the financial impacts of LC: wide variations in financial impacts, some described lost income and high healthcare expenses, others felt financially protected. (III) Connection and loneliness: navigating relationships as a survivor: some experienced lost friendships due to their diagnosis, others noted more meaningful connections. (IV) Still under the umbrella: healthcare during survivorship: participants noted the importance of ongoing oncology team connection and the vital role of cancer care coordinators. Conclusions: Many individuals living with LC want to "carry on" with life. Participants spoke of challenges and opportunities across life domains of relationships, work, and finances, and noted the importance of continued specialist healthcare throughout survivorship.

引用

页码：785 / 798

页数：15

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