Patient-Reported Wait Times and the Impact of Living with Chronic Pain on their Quality of Life: A Waiting Room Survey in Chronic Pain Clinics in Ontario, Manitoba, and Quebec

被引：3
作者：
Liddy, Clare [1 ,2 ,3 ]
Cooper, Lynn [4 ]
Bellingham, Geoff [5 ]
Deyell, Tracy [2 ]
Ingelmo, Pablo [6 ,7 ]
Moroz, Isabella [2 ]
Poulin, Patricia [8 ,9 ,10 ]
Singer, Alexander [11 ]
Logan, Gabrielle S. [12 ]
Visca, Regina [13 ,14 ]
Zahrai, Amin [9 ]
Buckley, Norman [15 ]
机构：
[1] Univ Ottawa, Dept Family Med, 600 Peter Morand Crescent,Room 201, Ottawa, ON K1G 5Z3, Canada
[2] Bruyere Res Inst, CT Lamont Primary Hlth Care Res Ctr, Ottawa, ON, Canada
[3] Ottawa Hosp, Ontario eConsult Ctr Excellence, Ottawa, ON, Canada
[4] Canadian Injured Workers Alliance, Thunder Bay, ON, Canada
[5] Western Univ, Dept Anesthesia & Perioperat Med, London, ON, Canada
[6] Montreal Childrens Hosp, Edwards Family Interdisciplinary Ctr Complex Pain, Div Pediat Anesthesia, Montreal, PQ, Canada
[7] McGill Univ, Dept Anesthesia, Montreal, PQ, Canada
[8] Ottawa Hosp Pain Clin, Dept Anesthesiol, Ottawa, ON, Canada
[9] Ottawa Hosp Res Inst, Clin Epidemiol, Ottawa, ON, Canada
[10] Univ Ottawa, Dept Anesthesiol & Pain Med, Ottawa, ON, Canada
[11] Univ Manitoba, Dept Family Med, Winnipeg, MB, Canada
[12] Univ Manitoba, Max Rady Coll Med, Dept Anesthesiol Perioperat & Pain Med, Winnipeg, MB, Canada
[13] McGill Univ, Fac Med, Dept Family Med, Montreal, PQ, Canada
[14] RUISSS McGill Ctr Expertise Chron Pain, Montreal, PQ, Canada
[15] McMaster Univ, Dept Anesthesia, Hamilton, ON, Canada
来源：
CANADIAN JOURNAL OF PAIN-REVUE CANADIENNE DE LA DOULEUR | 2024年 / 8卷 / 01期
关键词：
Chronic pain; wait times; patient experience; quality of life; TREATMENT FACILITIES; CARE; PREVALENCE; GENDER; SEX;
D O I：
10.1080/24740527.2024.2345612
中图分类号：
R74 [神经病学与精神病学];
学科分类号：
摘要：
BackgroundWait times at Canadian multidisciplinary pain clinics have been reported as excessive for nearly 2 decades.AimsThe aim of this study was to gain insight into the patient experience of waiting for chronic pain specialty care.MethodsA cross-sectional survey of new patients waiting for an appointment was conducted in six multidisciplinary pain clinics, including one pediatric clinic, in Ontario, Quebec, and Manitoba between February 2020 and October 2022. Participants were asked about the length of time they waited for their appointment since being referred, their quality of life, health care professionals seen while waiting, and an open-ended question, "Is there anything else you'd like to tell us?"ResultsAmong the 493 adult and 100 pediatric respondents, 53% of adults and 82% of children reported wait times under 6 months, whereas 22% of adults and 4% of children waited longer than a year. Between 52% and 63% of adults and 29% to 48% of children reported being affected by chronic pain "quite a bit" or "extremely" on measures of quality of life. The most visited health care professionals while waiting for a pain clinic appointment were family doctors/nurse practitioners for adults and physiotherapists for children. Qualitative analysis of open-ended question responses revealed eight themes: system navigation issues, administrative issues, decreased quality of life, distress, self-advocacy, coping strategies, communication, and distrust.ConclusionsOur findings provide real-time regional snapshots into the impact of long wait times experienced by Canadians living with chronic pain. There is an urgent need to better support patients during the waiting period. Expanding technologies such as electronic consultation hold great promise. Contexte: Les temps d'attente dans les cliniques multidisciplinaires de traitement de la douleur au Canada sont jug & eacute;s excessifs depuis pr & egrave;s de deux d & eacute;cennies.Objectifs: L'objectif de cette & eacute;tude & eacute;tait de mieux comprendre l'exp & eacute;rience des patients en attente de soins sp & eacute;cialis & eacute;s pour la douleur chronique.M & eacute;thodes: Une enqu & ecirc;te transversale sur les nouveaux patients en attente d'un rendez-vous a & eacute;t & eacute; men & eacute;e dans six cliniques multidisciplinaires de traitement de la douleur, dont une clinique p & eacute;diatrique, en Ontario, au Qu & eacute;bec et au Manitoba, entre f & eacute;vrier 2020 et octobre 2022. Les participants ont & eacute;t & eacute; interrog & eacute;s sur le temps d'attente pour leur rendez-vous depuis qu'ils avaient & eacute;t & eacute; r & eacute;f & eacute;r & eacute;s, sur leur qualit & eacute; de vie, sur les professionnels de la sant & eacute; qu'ils avaient consult & eacute;s pendant qu'ils attendaient, et sur une question ouverte : << Y a-t-il autre chose que vous aimeriez nous dire? >> R & eacute;sultats: Parmi les 493 adultes et les 100 enfants interrog & eacute;s, 53 % des adultes et 82 % des enfants ont d & eacute;clar & eacute; des temps d'attente inf & eacute;rieurs & agrave; six mois, tandis que 22 % des adultes et 4 % des enfants ont attendu plus d'un an. Entre 52 % et 63 % des adultes et 29 % & agrave; 48 % des enfants ont d & eacute;clar & eacute; & ecirc;tre affect & eacute;s par la douleur chronique << assez >> ou << extr & ecirc;mement >> sur les mesures de la qualit & eacute; de vie. Les professionnels de la sant & eacute; les plus consult & eacute;s pendant l'attente d'un rendez-vous & agrave; la clinique de la douleur & eacute;taient les m & eacute;decins de famille/infirmi & egrave;res praticiennes pour les adultes et les physioth & eacute;rapeutes pour les enfants. L'analyse qualitative des r & eacute;ponses aux questions ouvertes a r & eacute;v & eacute;l & eacute; huit th & egrave;mes : les probl & egrave;mes de navigation dans le syst & egrave;me; les probl & egrave;mes administratifs; la diminution de la qualit & eacute; de vie; la d & eacute;tresse; l'autonomie; les strat & eacute;gies d'adaptation; la communication et la m & eacute;fiance.Conclusions: Nos r & eacute;sultats offrent des instantan & eacute;s r & eacute;gionaux en temps r & eacute;el des r & eacute;percussions des longs temps d'attente sur les Canadiens souffrant de douleur chronique. Il est urgent de mieux soutenir les patients pendant la p & eacute;riode d'attente. Les technologies en expansion, telles que la consultation & eacute;lectronique, sont tr & egrave;s prometteuses.
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共 53 条
  • [1] [Anonymous], Power over pain portal-power over pain
  • [2] The relationship between patients' income and education and their access to pharmacological chronic pain management: A scoping review
    Atkins, Nicole
    Mukhida, Karim
    [J]. CANADIAN JOURNAL OF PAIN-REVUE CANADIENNE DE LA DOULEUR, 2022, 6 (01): : 142 - 170
  • [3] Bailey NGN, 2023, CAN J ANESTH, V70, P1047, DOI 10.1007/s12630-023-02461-y
  • [4] Sex differences in pain: a brief review of clinical and experimental findings
    Bartley, E. J.
    Fillingim, R. B.
    [J]. BRITISH JOURNAL OF ANAESTHESIA, 2013, 111 (01) : 52 - 58
  • [5] Birnie Kathryn A, 2019, CMAJ Open, V7, pE654, DOI 10.9778/cmajo.20190060
  • [6] Chronic Pain, Mood Disorders and Substance Use: Outcomes of Interdisciplinary Care in a Residential Psychiatric Hospital
    Buono, Frank D.
    Savage, Seddon R.
    Cerrito, Brianna
    O'Connell, Julianne
    Garakani, Amir
    Ackerman, Sigurd
    Cutter, Christopher J.
    [J]. JOURNAL OF PAIN RESEARCH, 2020, 13 : 1515 - 1523
  • [7] Canada H., 2021, Canadian Pain Task Force Report
  • [8] Canadian Pain Task Force, Working together to better understand, prevent and, manage chronic pain: what we heard
  • [9] Chadwick AL, 2024, medRxiv, DOI [10.1101/2023.11.27.23299101, 10.1101/2023.11.27.23299101, DOI 10.1101/2023.11.27.23299101]
  • [10] Accessing care in multidisciplinary pain treatment facilities continues to be a challenge in Canada
    Choiniere, Manon
    Peng, Philip
    Gilron, Ian
    Buckley, Norman
    Williamson, Owen
    Janelle-Montcalm, Audree
    Baerg, Krista
    Boulanger, Aline
    Di Renna, Tania
    Finley, Gordon Allen
    Intrater, Howard
    Lau, Brenda
    Pereira, John
    [J]. REGIONAL ANESTHESIA AND PAIN MEDICINE, 2020, 45 (12) : 943 - 948
123456