Assessing the Quality and Reliability of Videos Related to Fibromyalgia on TikTok: A Comprehensive Analysis

被引:0
作者
Canatan, Ahmed N. [1 ]
机构
[1] Marmara Univ, Sch Med, Istanbul, Turkiye
关键词
patient education; health information; social media; tiktok; fibromyalgia; CONSUMER HEALTH INFORMATION; SOCIAL MEDIA;
D O I
10.7759/cureus.64704
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Introduction Fibromyalgia, characterized by chronic musculoskeletal pain and associated symptoms, poses significant challenges in diagnosis and management. While social media platforms like TikTok have emerged as popular sources of health information, their variable content quality necessitates critical evaluation. This study aimed to assess the quality and reliability of TikTok videos related to fibromyalgia, thereby enhancing the understanding of their impact on patient education and self-management. Methods A cross-sectional observational study was conducted in June 2024, which analyzed 150 TikTok videos using search terms like "Fibromyalgia", "Fibromyalgia Symptoms", and "Fibromyalgia Treatment". Videos were evaluated for inclusion based on relevance and language (English), by employing the Global Quality Scale (GQS) and Quality Criteria for Consumer Health Information (DISCERN) score for assessment. Statistical analysis was performed by using IBM SPSS Statistics v21.0 (IBM Corp., Armonk, NY). The Kruskall-Wallis test was employed, and a p-value less than 0.05 was deemed statistically significant. Results Of the 150 videos initially reviewed, 96 (64%) met the inclusion criteria. Content categories included disease description (34, 35.42%), symptoms (81, 84.38%), management (64, 66.67%), and personal experiences (63, 65.63%). The videos were uploaded by doctors (8, 8.33%), patients (63, 65.63%), healthcare workers ( 7, 7.29%), and others (18, 18.75%). Mean GQS scores varied significantly by uploader type: doctors (4.63 +/- 0.52), healthcare workers (3.43 +/- 0.79), patients (2.37 +/- 0.81), and others (2.11 +/- 0.47) (p<0.001). DISCERN scores followed a similar trend: doctors (3.88 +/- 0.64), healthcare workers (2.14 +/- 1.46), patients (1.08 +/- 0.27), and others (1.61 +/- 0.50) (p<0.001). Conclusions TikTok serves as a pivotal platform for fibromyalgia-related discourse, predominantly shaped by patientgenerated content. However, even though it provides insights into symptoms and management strategies, gaps exist in comprehensive medical guidance and preventive measures. The study underscores the critical role of healthcare professionals in enhancing content reliability and educational value on social media. Future research should explore cultural and linguistic diversity to broaden the accessibility and relevance of health information on platforms like TikTok.
引用
收藏
页数:8
相关论文
共 20 条
[1]   Obesity: An Instagram Analysis [J].
Aiman, Umme ;
Mylavarapu, Maneeth ;
Gohil, Namra, V ;
Holge, Shubham ;
Gajre, Ashwin ;
Akhila, Kodali ;
Ghadge, Nitin M. .
CUREUS JOURNAL OF MEDICAL SCIENCE, 2023, 15 (05)
[2]   The concomitant diagnosis of fibromyalgia and connective tissue disorders: A systematic review [J].
Alsiri, Najla ;
Alhadhoud, Meshal ;
Alkatefi, Tebah ;
Palmer, Shea .
SEMINARS IN ARTHRITIS AND RHEUMATISM, 2023, 58
[3]   DEMOGRAPHICAL, SOCIOPROFESSIONAL FACTORS AND HABITS ASSOCIATED WITH CHRONIC WIDESPREAD PAIN IN A LARGE GENERAL POPULATION COHORT [J].
Bailly, F. ;
Petit, A. ;
Kab, S. ;
Foltz, V. ;
Badard, M. ;
Fautrel, B. .
ANNALS OF THE RHEUMATIC DISEASES, 2023, 82 :1914-1915
[4]   Challenges in fibromyalgia diagnosis: from meaning of symptoms to fibromyalgia labeling [J].
Bidari, Ali ;
Parsa, Banafsheh Ghavidel ;
Ghalehbaghi, Babak .
KOREAN JOURNAL OF PAIN, 2018, 31 (03) :147-154
[5]   Social media use by physicians: a qualitative study of the new frontier of medicine [J].
Campbell, Lauren ;
Evans, Yolanda ;
Pumper, Megan ;
Moreno, Megan A. .
BMC MEDICAL INFORMATICS AND DECISION MAKING, 2016, 16
[6]   DISCERN: an instrument for judging the quality of written consumer health information on treatment choices [J].
Charnock, D ;
Shepperd, S ;
Needham, G ;
Gann, R .
JOURNAL OF EPIDEMIOLOGY AND COMMUNITY HEALTH, 1999, 53 (02) :105-111
[7]   Quality of Online Video Resources Concerning Patient Education for the Meniscus: A YouTube-Based Quality-Control Study [J].
Kunze, Kyle N. ;
Krivicich, Laura M. ;
Verma, Nikhil N. ;
Chahla, Jorge .
ARTHROSCOPY-THE JOURNAL OF ARTHROSCOPIC AND RELATED SURGERY, 2020, 36 (01) :233-238
[8]   The Response of Governments and Public Health Agencies to COVID-19 Pandemics on Social Media: A Multi-Country Analysis of Twitter Discourse [J].
Li, Lan ;
Aldosery, Aisha ;
Vitiugin, Fedor ;
Nathan, Naomi ;
Novillo-Ortiz, David ;
Castillo, Carlos ;
Kostkova, Patty .
FRONTIERS IN PUBLIC HEALTH, 2021, 9
[9]   Diet and Lifestyle Modifications for Fibromyalgia [J].
Metyas, Caroline ;
Aung, Tun Tun ;
Cheung, Jennifer ;
Joseph, Marina ;
Ballester, Andrew M. ;
Metyas, Samy .
CURRENT RHEUMATOLOGY REVIEWS, 2024, 20 (04) :405-413
[10]   Evaluation of a self-management patient education programme for fibromyalgia-results of a cluster-RCT in inpatient rehabilitation [J].
Musekamp, G. ;
Gerlich, C. ;
Ehlebracht-Koenig, I. ;
Dorn, M. ;
Hoefter, A. ;
Tomiak, C. ;
Schlittenhardt, D. ;
Faller, H. ;
Reusch, A. .
HEALTH EDUCATION RESEARCH, 2019, 34 (02) :209-222