Emotional Burden of Care in Mothers of Children with Cerebral Palsy: Functional Dependency, Emotional Intelligence, and Coping Strategies

被引:0
作者
Ruetti, Eliana [1 ]
Pirotti, Sofia [2 ]
机构
[1] UBA, Lab Neurobiol Modulac Memoria, IFIBYNE,CONICET, Buenos Aires, Argentina
[2] Univ Favaloro, Fac Ciencias Humanas & Conducta, Buenos Aires, Argentina
关键词
Cerebral palsy; coping strategies; emotional burden; emotional intelligence; family care; functional dependence; PATIENT-CAREGIVER DYADS; QUALITY-OF-LIFE; PSYCHOLOGICAL ADJUSTMENT; MENTAL-ILLNESS; SELF-EFFICACY; PARENTS; STRESS; HEALTH; DEPRESSION; DISABILITIES;
D O I
10.1080/1034912X.2024.2355345
中图分类号
G76 [特殊教育];
学科分类号
040109 ;
摘要
BackgroundCerebral palsy (CP) is caused by a static and non progressive injury to the brain. Children with CP need continuous and dedicated attention from caregivers. Mothers of children with CP experience emotional burden, reducing their life quality and exhausting their condition to care. The coping strategies (CS) in mothers of children with CP are ineffective, exacerbating anxiety and negative affect, and present inadequate levels of emotional intelligence (EI).ObjectivesThis work analyses the relationship between emotional burden of care, EI, and CS in mothers of children with CP; and compares this relationship depending on functional dependence<acute accent>s children.MethodLatina mothers of 6-16-year-old children with CP. The instruments used were the Barthel Index, Family Symptom Inventory, Coping Strategies Inventory, and Schutte Self-report Emotional Intelligence.ResultsAn association between high levels of the emotional burden of care, a high propensity to use disengagement CS and low levels of EI was found. High levels of the emotional burden of care and high use of problem-focused disengagement CS were found in mothers of total children with functional dependence.ConclusionsIntervention programs should be designed to educate and stimulate personal resources to deal with the emotional burden of caregiving effectively.
引用
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页码:737 / 752
页数:16
相关论文
共 79 条
  • [1] Agency for Clinical Innovation, 2018, MANAGEMENT CEREBRAL
  • [2] Assessment of pain, care burden, depression level, sleep quality, fatigue and quality of life in the mothers of children with cerebral palsy
    Albayrak, Ilknur
    Biber, Ayten
    Caliskan, Ahmet
    Levendoglu, Funda
    [J]. JOURNAL OF CHILD HEALTH CARE, 2019, 23 (03) : 483 - 494
  • [3] Coping and Psychological Adjustment Among Mothers of Children with ASD: An Accelerated Longitudinal Study
    Benson, Paul R.
    [J]. JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2014, 44 (08) : 1793 - 1807
  • [4] Blair E., 2018, Cerebral Palsy, P19, DOI DOI 10.1007/978-3-319-67858-0
  • [5] Emotional intelligence and coping strategies as determinants of quality of life in depressed patient-caregiver dyads: An actor-partner interdependence analysis
    Boyer, L.
    Baumstarck, K.
    Alessandrini, M.
    Hamidou, Z.
    Testart, J.
    Serres, M.
    Arquilliere, P.
    Auquier, P.
    Leroy, T.
    Zendjidjian, X.
    [J]. COMPREHENSIVE PSYCHIATRY, 2017, 74 : 70 - 79
  • [6] Brehaut Jamie C, 2004, Pediatrics, V114, pe182, DOI 10.1542/peds.114.2.e182
  • [7] Garcia FJC, 2007, ACTAS ESP PSIQUIATRI, V35, P29
  • [8] Surveillance of cerebral palsy in Europe:: a collaboration of cerebral palsy surveys and registers
    Cans, C
    Guillem, P
    Baille, F
    Arnaud, C
    Chalmers, J
    Cussen, G
    McManus, V
    Parkes, J
    Dolk, H
    Hagberg, G
    Hagberg, B
    Hensey, O
    Dowding, V
    Jarvis, S
    Colver, A
    Johnson, A
    Surmann, G
    Krägeloh-Mann, I
    Michaelis, R
    Pharoah, P
    Platt, MJ
    Topp, M
    Udall, P
    Torrioli, MG
    Miceli, M
    Wichers, M
    van Nieuwenhuizen, O
    [J]. DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY, 2000, 42 (12) : 816 - 824
  • [9] ASSESSING COPING STRATEGIES - A THEORETICALLY BASED APPROACH
    CARVER, CS
    SCHEIER, MF
    WEINTRAUB, JK
    [J]. JOURNAL OF PERSONALITY AND SOCIAL PSYCHOLOGY, 1989, 56 (02) : 267 - 283
  • [10] Chalipat S., 2016, J EVID BASED MED HEA, V3, P4673, DOI [https://doi.org/10.18410/jebmh/2016/984, DOI 10.18410/JEBMH/2016/984]