Understanding Dementia Carer Experiences Before Admission to a Residential Aged Care Facility: Implications for Integrated Care

被引：2

作者：

White, Jennifer ^{[1
,2
]}

Falcioni, Dane ^{[1
,2
]}

Barker, Roslyn ^{[3
]}

Bajic-Smith, Julie ^{[4
]}

Krishnan, Chitra ^{[3
]}

Mansfield, Elise ^{[1
,2
]}

Hullick, Carolyn ^{[1
,2
,3
,5
]}

机构：

[1] Univ Newcastle, Sch Med & Publ Hlth, Callaghan, NSW, Australia

[2] Hunter Med Res Inst, New Lambton Hts, NSW, Australia

[3] Hunter New England Local Hlth Dist, New Lambton Hts, NSW, Australia

[4] Wise Care, Malabar, NSW, Australia

[5] Australian Commiss Safety & Qual Hlth Care, Sydney, NSW, Australia

来源：

JOURNAL OF APPLIED GERONTOLOGY | 2024年 / 43卷 / 12期

基金：

澳大利亚国家健康与医学研究理事会;

关键词：

access; carer; decision-making; dementia; qualitative; PERSON-CENTERED CARE; QUALITATIVE RESEARCH; PEOPLE; SUPPORT; FOCUS;

D O I：

10.1177/07334648241261454

中图分类号：

R4 [临床医学]; R592 [老年病学];

学科分类号：

1002 ; 100203 ; 100602 ;

摘要：

In-depth understanding of dementia carer experience can assist clinicians by providing insight into dementia onset, symptoms and management, and help conceptualize and understand the pattern of dementia progress over time and what help is needed. We undertook a qualitative study to understand dementia carers experiences of providing care and reasons for admission to a residential aged care facility (RACF). Three themes were identified: (1) Challenges in the path to diagnosis and care, leading to delays accessing support; (2) Carer role impacted by living circumstances; and (3) Variation in decision support prior to admission to a RACF. Identifying dementia carer experiences, reinforces the need for more timely diagnosis, referral for support and interventions to promote better quality of life for a people living with dementia and their carer and to delay premature RACF placement.

引用

页码：1835 / 1844

页数：10

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