Preferences, Needs, and Values of Patients With Chronic Obstructive Pulmonary Disease Attending a Telehealth Service: Qualitative Interview Study

被引:1
作者
Schmidt, Camilla Wong [1 ,2 ]
Borgnakke, Karen [2 ]
Frolich, Anne [3 ,4 ]
Kayser, Lars [2 ]
机构
[1] Holbaek Sygehus, Med Dept, Smedelundsgade 60, DK-4300 Holbaek, Denmark
[2] Univ Copenhagen, Sect Hlth Serv Res, Copenhagen, Denmark
[3] Slagelse Hosp, Innovat & Res Ctr Multimorbid, Slagelse, Denmark
[4] Univ Copenhagen, Dept Publ Hlth, Copenhagen, Denmark
来源
JMIR HUMAN FACTORS | 2024年 / 11卷
基金
欧盟地平线“2020”;
关键词
people with long-term health condition; patient education; COPD; digital health; ethnography; inductive; ethnographic; chronic; lung; lungs; pulmonary; respiratory; self-management; interview; interviews; qualitative; experience; experiences; attitude; attitudes; opinion; perception; perceptions; perspective; perspectives; acceptance;
D O I
10.2196/53131
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Background: Digitally assisted health care services and technologies are gaining popularity. They assist patients in managing their conditions, thereby reducing the burden on health care staff. Digital health care enables individuals to receive care that is more tailored to their needs and preferences. When implemented properly, it can promote equity by considering each person's opportunities and limitations in the context of health care needs, preferences, values, and capabilities. Objective: This study aims to understand the needs, values, and preferences of individuals with chronic obstructive pulmonary disease (COPD) who are provided with a 24/7 digital health care service. Furthermore, we aim to understand the dynamics of the communities to which they belong and how these communities intersect. This will provide us with the essential knowledge to establish new methods of providing education, including the development of educational activities for health professionals to Methods: The study included 7 informants diagnosed with COPD who received 24/7 digital health care service support from a regional project in Region Zealand, Denmark. The informants were visited 4 times during 2 months, including a "Hello" visit, a day with a semistructured interview, and 2 days with field observations. The informants participated in a semistructured interview, following participant observation and an ethnographic approach. The interview content was analyzed using an inductive methodology to categorize the empirical data. Results: Using the inductive approach, we identified 3 main categories related to the informants' needs, values, and preferences: (1) Health, (2) Value Creation, and (3) Resources. These 3 main categories were based on 9 subcategories: (1) health and barriers, (2) self-monitoring, (3) medication, (4) behavior, (5) motivation, (6) hobbies, (7) social networks, (8) health professionals, and (9) technology. These findings revealed that the informants placed value on maintaining their daily activities and preserving their sense of identity before the onset of COPD. Furthermore, they expressed a desire not to be defined by their COPD, as conversations Conclusions: Digital health solutions and the health care professionals who offer them should prioritize the individuals they serve, considering their needs, values, and preferences rather than solely focusing on the medical condition. This approach ensures the highest level of daily living and empowerment for those living with long-term health conditions. The communities surrounding individuals must engage in constant interaction and collaboration. They should work together to incorporate people's needs, values, and preferences into future digital health services, thereby promoting empowerment and self-management. New educational programs aimed at developing the digital health service competencies of registered nurses should facilitate collaboration between the 2 communities. This collaboration is essential for supporting patients with long-term health conditions in their daily activities.
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页数:14
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