Tailored Self-Management App to Support Older Adults With Cancer and Multimorbidity: Development and Usability Testing

被引:5
作者
Sien, Sang-Wha [1 ]
Kobekyaa, Francis Kyerepagr [1 ]
Puts, Martine [2 ]
Currie, Leanne [3 ]
Tompson, Margaret [4 ]
Hedges, Penelope [5 ]
McGrenere, Joanna [1 ]
Mariano, Caroline [5 ]
Haase, Kristen R. [3 ]
机构
[1] Univ British Columbia, Dept Comp Sci, Vancouver, BC, Canada
[2] Univ Toronto, Lawrence S Bloomberg Fac Nursing, Toronto, ON, Canada
[3] Univ British Columbia, Sch Nursing, T201-2211 Wesbrook Mall, Vancouver, BC V6T 2B5, Canada
[4] Saskatchewan Ctr Patient Oriented Res, Saskatoon, SK, Canada
[5] BC Canc, Vancouver, BC, Canada
关键词
cancer; aging; self-management; usability testing; design thinking; design; oncology; develop; development; usability; gerontology; geriatric; geriatrics; older adult; older adults; elder; elderly; older person; older people; ageing; mHealth; mobile health; app; apps; application; applications; symptom; symptoms; comorbidity; comorbidities; comorbid; multimorbidity; multimorbidities; co-design; RAPID FITNESS ASSESSMENT; TOOL;
D O I
10.2196/53163
中图分类号
R592 [老年病学]; C [社会科学总论];
学科分类号
03 ; 0303 ; 100203 ;
摘要
Background: Globally, cancer predominates in adults aged older than 60 years, and 70% of older adults have >= 1 chronic condition. Cancer self -management interventions can improve symptom management and confidence, but few interventions target the complex needs of older adults with cancer and multimorbidity. Despite growing evidence of digital health tools in cancer care, there is a paucity of theoretically grounded digital self -management supports for older adults. Many apps for older adults have not been co -designed with older adults to ensure that they are tailored to their specific needs, which would increase usability and uptake. Objective: We aim to report on the user evaluations of a self- and symptom -management app to support older adults living with cancer and multimorbidity. Methods: This study used Grey's self -management framework, a design thinking approach, and involved older adults with lived experiences of cancer to design a medium -fidelity app prototype. Older adults with cancer or caregivers were recruited through community organizations or support groups to participate in co -designing or evaluations of the app. Data from interviews were iteratively integrated into the design process and analyzed using descriptive statistics and thematic analyses. Results: In total, 15 older adults and 3 caregivers (n=18) participated in this study: 10 participated (8 older adults and 2 caregivers) in the design of the low -fidelity prototype, and 10 evaluated (9 older adults and 1 caregiver) the medium -fidelity prototype (2 older adults participated in both phases). Participants emphasized the importance of tracking functions to make sense of information across physical symptoms and psychosocial aspects; a clear display; and the organization of notes and reminders to communicate with care providers. Participants also emphasized the importance of medication initiation or cessation reminders to mitigate concerns related to polypharmacy. Conclusions: This app has the potential to support the complex health care needs of older adults with cancer, creating a "home base" for symptom management and support. The findings from this study will position the researchers to conduct feasibility testing and real -world implementation. (JMIR Aging 2024;7:e53163) doi: 10.2196/53163
引用
收藏
页数:16
相关论文
共 57 条
[31]   Design Considerations for Mobile Health Applications Targeting Older Adults [J].
Li, Clara ;
Neugroschl, Judith ;
Zhu, Carolyn W. ;
Aloysi, Amy ;
Schimming, Corbett A. ;
Cai, Dongming ;
Grossman, Hillel ;
Martin, Jane ;
Sewell, Margaret ;
Loizos, Maria ;
Zeng, Xiaoyi ;
Sano, Mary .
JOURNAL OF ALZHEIMERS DISEASE, 2021, 79 (01) :1-8
[32]   Co-Creation with Older Adults to Improve User-Experience of a Smartphone Self-Test Application to Assess Balance Function [J].
Mansson, Linda ;
Wiklund, Maria ;
Ohberg, Fredrik ;
Danielsson, Karin ;
Sandlund, Marlene .
INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH, 2020, 17 (11)
[33]  
Medlock MichaelC., 2005, Cost-Justifying Usability, P489, DOI [DOI 10.1016/B978-012095811-5/50017-1, 10.1016/B978-01 2095 811--5/50017--1, 10.1016/B978-012095811, DOI 10.1016/B978-012095811]
[34]  
Meinel C., 2012, Design thinking research, P1, DOI DOI 10.1007/978-3-642-21643-5_1
[35]   Effects of a 12-Week Multimodal Exercise Intervention Among Older Patients with Advanced Cancer: Results from a Randomized Controlled Trial [J].
Mikkelsen, Marta K. ;
Lund, Cecilia M. ;
Vinther, Anders ;
Tolver, Anders ;
Johansen, Julia S. ;
Chen, Inna ;
Ragle, Anne-Mette ;
Zerahn, Bo ;
Engell-Noerregaard, Lotte ;
Larsen, Finn O. ;
Theile, Susann ;
Nielsen, Dorte L. ;
Jarden, Mary .
ONCOLOGIST, 2022, 27 (01) :67-78
[36]   The Design of a Mobile App for Promotion of Physical Activity and Self-Management in Prostate Cancer Survivors: Personas, Feature Ideation and Low-Fidelity Prototyping [J].
Monteiro-Guerra, Francisco ;
Rivera-Romero, Octavio ;
Mylonopoulou, Vasiliki ;
Signorelli, Gabriel R. ;
Zambrana, Francisco ;
Fernandez-Luque, Luis .
2017 IEEE 30TH INTERNATIONAL SYMPOSIUM ON COMPUTER-BASED MEDICAL SYSTEMS (CBMS), 2017, :761-766
[37]   ListeningTime; participatory development of a web-based preparatory communication tool for elderly cancer patients and their healthcare providers [J].
Noordman, Janneke ;
Driesenaar, Jeanine A. ;
van Bruinessen, Inge R. ;
van Dulmen, Sandra .
INTERNET INTERVENTIONS-THE APPLICATION OF INFORMATION TECHNOLOGY IN MENTAL AND BEHAVIOURAL HEALTH, 2017, 9 :51-56
[38]   eHEALS: The eHealth Literacy Scale [J].
Norman, Cameron D. ;
Skinner, Harvey A. .
JOURNAL OF MEDICAL INTERNET RESEARCH, 2006, 8 (04) :e27
[39]   Design thinking as an approach for innovation in healthcare: systematic review and research avenues [J].
Oliveira, Mariana ;
Zancul, Eduardo ;
Fleury, Andre Leme .
BMJ INNOVATIONS, 2021, 7 (02) :491-498
[40]   Symptom experiences of older adults during treatment for metastatic prostate cancer: A qualitative investigation [J].
Parthipan, Milothy ;
Feng, Gregory ;
Toledano, Nelly ;
Donison, Valentina ;
Breunis, Henriette ;
Sudharshan, Abirami ;
Emmenegger, Urban ;
Finelli, Antonio ;
Warde, Padraig ;
Soto-Perez-de-Celis, Enrique ;
Krzyzanowska, Monika ;
Matthew, Andrew ;
Clarke, Hance ;
Santa Mina, Daniel ;
Alibhai, Shabbir M. H. ;
Puts, Martine .
JOURNAL OF GERIATRIC ONCOLOGY, 2023, 14 (01)