Ethical implications of defining longstanding anorexia nervosa

被引:4
作者
Voswinkel, Marthe M. [1 ,2 ]
Hanegraaff, Simone M. [1 ]
Mares, Suzanne H. W. [1 ]
Wezenberg, Elke [1 ]
van Delden, Johannes J. M. [3 ]
van Elburg, Annemarie A. [1 ,2 ]
机构
[1] GGNet Mental Hlth, Dept Eating Disorders Amarum, Vordenseweg 12, NL-7231 PA Warnsveld, Netherlands
[2] Univ Utrecht, Dept Clin Psychol, Heidelberglaan 1, NL-3584 CS Utrecht, Netherlands
[3] Univ Med Ctr Utrecht, Julius Ctr Hlth Sci & Primary Care, Bioeth & Hlth Humanities, Univ Weg 100, NL-3584 CG Utrecht, Netherlands
来源
JOURNAL OF EATING DISORDERS | 2024年 / 12卷 / 01期
关键词
Anorexia nervosa; SE-AN; Ethics; Lived experience perspective; Epistemic injustice; PUBLIC INVOLVEMENT; EATING-DISORDERS; PROFESSIONALS; PATIENT; IMPACT;
D O I
10.1186/s40337-024-01040-w
中图分类号
B849 [应用心理学];
学科分类号
040203 ;
摘要
The label severe and enduring anorexia nervosa (SE-AN) is widely used in the literature on longstanding anorexia nervosa (AN). However, the process of constructing the criteria and the use of the label SE-AN has ethical implications that have not been taken into account. Through combining existing literature and lived experience perspective, this paper addresses to what extent the current criteria do and do not reflect the lived experience. Arguments are presented on why the process of constructing the criteria for SE-AN and the application of the label can be both identified as, and give rise to, epistemic injustice. Epistemic injustice is an injustice that is done to a person as an individual with the capacity of acquiring and sharing knowledge. This type of injustice can occur at any stage of an interaction between people in which knowledge is shared with one another. The paper concludes by giving suggestions on how to pursue epistemic justice in the process of defining longstanding AN. Plain English summary Some patients with anorexia nervosa (AN) develop a longstanding eating disorder. Over the years different labels, such as 'chronic AN' or 'treatment resistant AN', have been used to describe longstanding AN. Currently, the label that is used most often in scientific literature is 'severe and enduring AN' (SE-AN) and criteria for what entails SE-AN have been proposed. This paper looks at the possible ethical issues that have arisen in the process of constructing the criteria and possible ethical problems that may result from using the label SE-AN. The paper focuses on injustice that may arise when people with specific experiences, such as lived experience of longstanding AN, are not acknowledged as people with important knowledge to share. The paper concludes by giving suggestions on how to overcome this type of injustice.
引用
收藏
页数:6
相关论文
共 39 条
[1]  
Audi Robert., 2011, Epistemology: A Contemporary Introduction to the Theory of Knowledge, V3rd
[2]   Weighing in: qualitative explorations of weight restoration as recovery in anorexia nervosa [J].
Barko, Emily B. ;
Moorman, Sara M. .
JOURNAL OF EATING DISORDERS, 2023, 11 (01)
[3]  
BORSON S, 1981, WESTERN J MED, V135, P257
[4]   A Systematic Review of the Impact of Patient and Public Involvement on Service Users, Researchers and Communities [J].
Brett, Jo ;
Staniszewska, Sophie ;
Mockford, Carole ;
Herron-Marx, Sandra ;
Hughes, John ;
Tysall, Colin ;
Suleman, Rashida .
PATIENT-PATIENT CENTERED OUTCOMES RESEARCH, 2014, 7 (04) :387-395
[5]   Lived experience perspectives on labeling and defining long-standing anorexia nervosa [J].
Broomfield, Catherine ;
Rhodes, Paul ;
Touyz, Stephen .
JOURNAL OF EATING DISORDERS, 2021, 9 (01)
[6]   Labeling and defining severe and enduring anorexia nervosa: A systematic review and critical analysis [J].
Broomfield, Catherine ;
Stedal, Kristin ;
Touyz, Stephen ;
Rhodes, Paul .
INTERNATIONAL JOURNAL OF EATING DISORDERS, 2017, 50 (06) :611-623
[7]   Diagnostic Overshadowing in Psychiatric-Somatic Comorbidity: A Case for Structural Testimonial Injustice [J].
Bueter, Anke .
ERKENNTNIS, 2023, 88 (03) :1135-1155
[8]   The Dignity Project Framework: An extreme citizen science framework in occupational therapy and rehabilitation research [J].
Chapman, Kelsey ;
Dixon, Angel ;
Cocks, Kevin ;
Ehrlich, Carolyn ;
Kendall, Elizabeth .
AUSTRALIAN OCCUPATIONAL THERAPY JOURNAL, 2022, 69 (06) :742-752
[9]   Listening in the dark: Why we need stories of people living with severe and enduring anorexia nervosa [J].
Conti J. ;
Rhodes P. ;
Adams H. .
Journal of Eating Disorders, 4 (1)
[10]  
Dobrescu SR, 2020, BRIT J PSYCHIAT, V216, P97, DOI [10.1192/bjp.2019.113, 10.1192/bjp.2019.113[Opens]