Self-Reported Quality of Life Outcomes in Aphasia Using Life Participation Approach Values: 1-Year Outcomes

被引:12
作者
Armour, Michelle [1 ,2 ,6 ]
Brady, Susan [1 ,3 ]
Sayyad, Anjum [1 ,4 ]
Krieger, Richard [1 ,5 ]
机构
[1] Marianjoy Rehabil Hosp, Northwestern Med, Wheaton, IL USA
[2] Northwestern Med Aphasia Ctr Marianjoy, Wheaton, IL USA
[3] Marianjoy Rehabil Hosp, Dept Qual & Patient Safety, Northwestern Med, Wheaton, IL USA
[4] Marianjoy Rehabil Hosp, Dept Phys Med & Rehabil Brain Injury Program, Northwestern Med, Wheaton, IL USA
[5] Marianjoy Rehabil Hosp, Dept Phys Med & Rehabil Stroke Program, Northwestern Med, Wheaton, IL USA
[6] 26 W 171 Roosevelt Rd, Wheaton, IL 60187 USA
关键词
Aphasia; Quality of life; Rehabilitation; Stroke; PEOPLE; HEALTH; THERAPY; STROKE;
D O I
10.1016/j.arrct.2019.100025
中图分类号
R49 [康复医学];
学科分类号
100215 ;
摘要
Objective: To evaluate the effectiveness of a newly initiated aphasia center program using Life Participation Approach to Aphasia (LPAA) values.Design: Evidence-based practice quality improvement project.Setting: Ambulatory care aphasia center part of a larger health care system.Participants: Participants included 41 clients with aphasia and 40 primary caregivers of clients with aphasia. Participants included all clients and caregivers that were enrolled in the aphasia center within the first year of opening. All participants were enrolled in 1-4 eleven-week sessions of the aphasia center program. Participants with aphasia included 19 women and 22 men with a mean age of 65.2 years (range, 33-84 years).Interventions: Group therapy was provided using the LPAA statement of values with each client receiving 3 hours of treatment once per week for 11 weeks. Clients were provided with the opportunity to complete multiple 11-week enrollment sessions if they chose to do so.Main Outcome Measures: Client-reported outcomes included the Stroke and Aphasia Quality of Life Scale, and caregiver-reported outcomes included the Modified Caregiver Strain Index. Both measures are self-reported and scale based. Client satisfaction data were also collected via a self-reported program evaluation upon completion of each 11-week session.Results: Results indicated statistically significant improvements in quality of life scores for clients with aphasia following initial participation of an 11-week aphasia center program (P <=.0001) and following 1-year participation (P <=.0001). Additionally, caregiver's level of burden decreased significantly following initial participation of the family member (P=.003) and following completion of three 11-week sessions (P <=.0001). Self-reported client satisfaction program evaluation results also demonstrated improved quality of life (100%) and improved language skills (average=89.75%).Conclusions: The project provided further evidence supporting the use of LPAA values with clients experiencing chronic aphasia.
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页数:7
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共 17 条
[1]  
[Chapey R. LPAA Project Group LPAA Project Group], 2001, Language intervention strategies in aphasia and related neurogenic communication disorders, V5, P23
[2]   The relevance of emotional and psychosocial factors in aphasia to rehabilitation [J].
Code, C ;
Herrmann, M .
NEUROPSYCHOLOGICAL REHABILITATION, 2003, 13 (1-2) :109-132
[3]   Measuring quality of life: Comparing family members' and friends' ratings with those of their aphasic partners [J].
Cruice, M ;
Worrall, L ;
Hickson, L ;
Murison, R .
APHASIOLOGY, 2005, 19 (02) :111-129
[4]   Finding a focus for quality of life with aphasia: Social and emotional health, and psychological well-being [J].
Cruice, M ;
Worrall, L ;
Hickson, L ;
Murison, R .
APHASIOLOGY, 2003, 17 (04) :333-353
[5]  
Elman R J, 1999, ASHA, V41, P38
[6]   Memories of the 'plateau': health-care changes provide an opportunity to redefine aphasia treatment and discharge [J].
Elman, RJ .
APHASIOLOGY, 1998, 12 (03) :227-231
[7]   Aphasia Centers and the Life Participation Approach to Aphasia: A Paradigm Shift [J].
Elman, Roberta J. .
TOPICS IN LANGUAGE DISORDERS, 2016, 36 (02) :154-167
[8]   Predictors of health-related quality of life (HRQL) in people with chronic aphasia [J].
Hilari, K ;
Wiggins, RD ;
Roy, P ;
Byng, S ;
Smith, SC .
APHASIOLOGY, 2003, 17 (04) :365-381
[9]   Psychometric properties of the Stroke and Aphasia Quality of Life Scale (SAQOL-39) in a generic stroke population [J].
Hilari, Katerina ;
Lamping, Donna L. ;
Smith, Sarah C. ;
Northcott, Sarah ;
Lamb, Alice ;
Marshall, Jane .
CLINICAL REHABILITATION, 2009, 23 (06) :544-557
[10]   Improvement in psychological well-being of people with aphasia and their families: Evaluation of a community-based programme [J].
Hoen, B ;
Thelander, M ;
Worsley, J .
APHASIOLOGY, 1997, 11 (07) :681-691