Atopic dermatitis patients and caregivers experience a high physical, mental and financial burden in Australia. We outline how the current care model impacts disease management and patients' quality of life via a survey of 265 Australian patients and caregivers to capture the experience of managing atopic dermatitis (AD) in Australia. Patients report an unsatisfactory quality of life and a high burden of disease with poor long-term control and low treatment satisfaction. They also reported changing spending and saving patterns to fund medical care. Patient experience improves with more specialised care that incorporates shared decision-making and patient/caregiver training beyond the clinic visit. These results highlight the need for improved general practitioner (GP) education, expedited access to medical specialists, greater patient involvement in treatment choices and more financial assistance to improve the experience of Australian patients and caregivers.
机构:
Icahn Sch Med Mt Sinai, Dept Dermatol, 234 East 85th St,5C, New York, NY 10028 USAIcahn Sch Med Mt Sinai, Dept Dermatol, 234 East 85th St,5C, New York, NY 10028 USA
Fitzmaurice, William
Silverberg, Nanette B.
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Icahn Sch Med Mt Sinai, Dept Dermatol, 234 East 85th St,5C, New York, NY 10028 USAIcahn Sch Med Mt Sinai, Dept Dermatol, 234 East 85th St,5C, New York, NY 10028 USA
机构:
Univ Kent, Qual & Outcomes Person Ctr Care Policy Res Unit Q, PSSRU, Canterbury, Kent, EnglandUniv Kent, Qual & Outcomes Person Ctr Care Policy Res Unit Q, PSSRU, Canterbury, Kent, England
Vadean, Florin
Rand, Stacey
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Univ Kent, Qual & Outcomes Person Ctr Care Policy Res Unit Q, PSSRU, Canterbury, Kent, EnglandUniv Kent, Qual & Outcomes Person Ctr Care Policy Res Unit Q, PSSRU, Canterbury, Kent, England
Rand, Stacey
Malley, Juliette
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London Sch Econ, Qual & Outcomes Person Ctr Care Policy Res Unit Q, PSSRU, London, EnglandUniv Kent, Qual & Outcomes Person Ctr Care Policy Res Unit Q, PSSRU, Canterbury, Kent, England