The burden of atopic dermatitis in Australia: Medical care, treatment satisfaction, financial impact, long-term control and quality of life

被引:0
|
作者
Howie, Lynita [1 ]
Orevillo, Kara [1 ]
Tu, Michelle [1 ]
Schwartz, Alan [2 ]
Funk, Melanie [3 ]
Talent, Cheryl [4 ]
Capozza, Korey [8 ,1 ]
机构
[1] Global Parents Eczema Res, 1117 State St, Santa Barbara, CA 93101 USA
[2] Univ Illinois, Chicago, IL USA
[3] Eczema Support Australia, Gold Coast, Qld, Australia
[4] Eczema Assoc Australasia, Redland, Qld, Australia
关键词
atopic dermatitis; burden; eczema; health-related quality of life; patient education; shared decision-making;
D O I
10.1111/ajd.14299
中图分类号
R75 [皮肤病学与性病学];
学科分类号
100206 ;
摘要
Atopic dermatitis patients and caregivers experience a high physical, mental and financial burden in Australia. We outline how the current care model impacts disease management and patients' quality of life via a survey of 265 Australian patients and caregivers to capture the experience of managing atopic dermatitis (AD) in Australia. Patients report an unsatisfactory quality of life and a high burden of disease with poor long-term control and low treatment satisfaction. They also reported changing spending and saving patterns to fund medical care. Patient experience improves with more specialised care that incorporates shared decision-making and patient/caregiver training beyond the clinic visit. These results highlight the need for improved general practitioner (GP) education, expedited access to medical specialists, greater patient involvement in treatment choices and more financial assistance to improve the experience of Australian patients and caregivers.
引用
收藏
页码:514 / 519
页数:6
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